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Just me again was wanting more advice on somethings i got diagnosed with symptomatic and problematic ibs in 2018 after having a pill cam done but over the years it has been getting worse now i have bile acid malabsorption which i got diagnosed with in January 2023 , i was back and forth to doctors over
Just me again was wanting more advice on somethings i got diagnosed with symptomatic and problematic ibs in 2018 after having a pill cam done but over the years it has been getting worse now i have bile acid malabsorption which i got diagnosed with in January 2023 , i was back and forth to doctors over
Netbet22
in
IBS Network
10 months ago
Survival rate of esophageal cancer.
Dxd 2 weeks ago. Did a CT scan and ultra sound. Have a mass at bottom of esophagus. Some lymph nodes involved nearby. Did a PET scan .Results not back yet. What is my fate?
Dxd 2 weeks ago. Did a CT scan and ultra sound. Have a mass at bottom of esophagus. Some lymph nodes involved nearby. Did a PET scan .Results not back yet. What is my fate?
Messiah6980
in
Oesophageal & Gastric Cancer
1 month ago
Best Salvage Brachytherapy and SBRT locations
I'm trying to find top hospitals that have an experienced RO in salvage treatments for radio-recurrent PCa. I'm close to Duke Cancer Center and they have a RO there who does salvage Brachytherapy but he's only been practicing for 5 years so I doubt he has as much experience as I'd like. I think my
I'm trying to find top hospitals that have an experienced RO in salvage treatments for radio-recurrent PCa. I'm close to Duke Cancer Center and they have a RO there who does salvage Brachytherapy but he's only been practicing for 5 years so I doubt he has as much experience as I'd like. I think my
hwrjr
in
Prostate Cancer Network
1 month ago
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Jaw necrosis. Check up. Better safe than sorry. Thought I would get away with dying from my PC before I would need to be at a dentist lol.
4 plus years on Zometa so getting a check up for necrosis to be on the safe side. One of the members of my oncology team who I see about every other appointment finally for about the 3rd time bringing it up with me I agreed best to get a dental check for any signs of jaw necrosis. So delayed my Zometa
4 plus years on Zometa so getting a check up for necrosis to be on the safe side. One of the members of my oncology team who I see about every other appointment finally for about the 3rd time bringing it up with me I agreed best to get a dental check for any signs of jaw necrosis. So delayed my Zometa
CAMPSOUPS
in
Advanced Prostate Cancer
1 month ago
Lung Biopsy - Lucky?
During my 1st PEt scan for PC a shadow was revealed on my lung. Subsequent to my PC treatment I did a CT scan of the area and am undergoing a biopsy of that node in a few days. The pulmonary Dr. had doubts that it was from the PC since it was so far removed from the prostate and my cancer was not advanced
During my 1st PEt scan for PC a shadow was revealed on my lung. Subsequent to my PC treatment I did a CT scan of the area and am undergoing a biopsy of that node in a few days. The pulmonary Dr. had doubts that it was from the PC since it was so far removed from the prostate and my cancer was not advanced
Eadgbe
in
Prostate Cancer Network
1 month ago
Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
1 month ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
1 month ago
Radiotherapy
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
Hota
in
My Ovacome
1 month ago
Cancerous thyroid nodules. Are they painful sometimes?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Aoifel73
in
Thyroid UK
1 month ago
Any help on my issue would be great
Years and years ago I was very very over weight hmm 26 stone .. I used to have a lot of issues with jar and ear pain, first the doctor thought it might be a dental problem so I had to get my teeth investigated and it wasn't so I was put on medication for nerve damage with some investigations via ENT
Years and years ago I was very very over weight hmm 26 stone .. I used to have a lot of issues with jar and ear pain, first the doctor thought it might be a dental problem so I had to get my teeth investigated and it wasn't so I was put on medication for nerve damage with some investigations via ENT
Peanutbutterplease
in
Pain Concern
7 months ago
2ND Opinion by Radiologist
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
Jimbo47
in
Advanced Prostate Cancer
2 months ago
IBS Storm
I was diagnosed with IBS by my GP but at the time I was thinking my symptoms were mostly caused by virus or bacteria. I suspect taking supplements like multivitamins I definitely could negatively affect one’s gut; however the onset of my problems started with acute stress, anxiety and sudden consumption
I was diagnosed with IBS by my GP but at the time I was thinking my symptoms were mostly caused by virus or bacteria. I suspect taking supplements like multivitamins I definitely could negatively affect one’s gut; however the onset of my problems started with acute stress, anxiety and sudden consumption
overcomer42
in
IBS Network
10 months ago
Monopost and Hydrosan
I have OHT and have been using Monopost for several months. I have been using Vaseline around my eyes but they now have a sunken appearance and dark circles. My eyes are dry overnight and in the morning after using the drops. I have recently suffered with a sore eye and ear infection after using Hydrosan
I have OHT and have been using Monopost for several months. I have been using Vaseline around my eyes but they now have a sunken appearance and dark circles. My eyes are dry overnight and in the morning after using the drops. I have recently suffered with a sore eye and ear infection after using Hydrosan
Dorset22
in
Glaucoma UK
7 months ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
5 months ago
How to deal with Tinnitus?
Dear community, I'm rather new with Tinnitus suffering since the end of August, first in one year, now both ears and it is unbearable. I also got a feeling of Fullness and Blocked of the right ear but MRI and specialist consultant were not useful to find the cause just yet so trying to investigate
Dear community, I'm rather new with Tinnitus suffering since the end of August, first in one year, now both ears and it is unbearable. I also got a feeling of Fullness and Blocked of the right ear but MRI and specialist consultant were not useful to find the cause just yet so trying to investigate
ImproveYourLifestyle
in
Tinnitus UK
7 months ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
2 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
2 months ago
Pseudomonas colonised.
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
falcon68
in
Lung Conditions Community Forum
3 months ago
Does having CLL really make you 3 times more likely to get (another) cancer, and does CLL treatment add to the risk? - Part 1
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
bennevisplace
in
CLL Support
2 months ago
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