Experiences with

Amputation

I have a partial foot amputation and was wondering if anyone else is participating in the program has the same. If so what advice would you offer?

Hi, I recently had surgery on my feet, on my left foot they removed all my toes, a trans metatarcsal amputation and they removed the little toe on my right foot. I am in a wheelchair and have little mobility. I found out last year that i was diagnosed with cerebral palsy in 1985 but didn't know.

Anybody in a similar situation from finger amputation?

Hospital won't operate due to the state of my spleen etcsaying I could get sepsis or amputation. Twice been prepped for surgery. Twice they called off last minute. Have a consultant who I have see twice in 3 years. Compensated at the moment I think who knows. Fed up. Depressed.

I have spinal cord injuries, a below knee amputation and osteoporosis and kyphosis. This new surgery freaked out about the amount of MST I was on so I halved it.

A toe fusion on one foot & a an amputation of the toe end on the other foot. It’s not been easy but I’m getting there. The fusion was going to be a tendon release but continuing to a fusion if the release didn’t work.

Last week I finally had surgery to remove my toes on my left foot where the wound was trans metatarsal amputation. Before I had the surgery they were treating me for gout, they found the urea levels were quite high. I also had a toe removed on my right foot because it was very problematic.

I have suffered phantom pain since my amputation over two years ago. Some consultants think it is worse because I suffered severe pain for months beforehand as treatment was delayed because of you know what. It was improving but worsened after my revision.

Only, that wasn't in the plan for my life. 7 years ago I was diagnosed with diabetes, 5 years ago I had a triple bypass, 3years ago I had 4 surgeries on my tight legs, there was talk of amputation.

Run 1 of week 4, first 5 minutes of jogging since before amputation, Stu the stump was felling it at the end of this, I had to take the weight off him at the end, so a 5 minute sit on a park bench was just the thing at the very end. Very happy with it.

I've always wondered if RLS symptoms would change after an amputation ? Let's be honest. (In no way making light of the situation.) At some point or another during an awful bout of RLS I'm sure many of us have ignorantly cursed out. "Just get rid of these damn things."

It wasn't really trivial, he knows a lady in her thirties who has just had an amputation and wanted to talk about amputation and how I had coped, so I gave him a potted history of my amputation story so far, so if my story helps someone it's not time wasted.

Has anyone occluded their popliteal arteries and or have had an amputation because of this ?

Hi everyone I was dx with SLE in 2001 which came as a complete shock. My 1st visit to my rheumy was shortly afterwards, but sadly there were two specialists arguing about the possibilities of me having APLS and not SLE. GREAT HELP!! This disagreement has carried on through the years with every few months

I am now left with Mental health problems Scars Arthritis Amputation of fingers Kidney disease Hearing loss Neurology problems Chronic pain Fatigue

I was told that if the wound won't heal I could risk amputation. I was told that if I opt for a spinal block I could bleed into it and become paralysed. I was also told that I risk a major bleed and possible death. I am confused, stunned and don't know where to turn.

My peripheral veins are in bad state, causing gangrene and necessitating both self-amputation and surgical amputation. I've been on bosenton, tadalafil, and injections of cyclophosphamide 500 mg and mythhylprednisolone 500 mg every one month.

My 105 degree fever was quite serious and I was on antibiotics of all kinds to stop cellulitis in my arm from reaching the point of death or amputation. I was unaware of anything for days. Since I was use to hands and wrists swelling with Pmr I thought this was the same.

In 1995 almost died from meningococcal sepsis. Was hospitalised over 6 months requiring wound care, debridement, skin grafts, amputations of fingers and toes. The resulting kidney damage classified as meningococcal Waterhouse Fridericksen syndrome. The treatment was dialysis to remove the bacteria

I would rather not survive the op than come through with major problems like amputation or paralysis