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Experiences with
Amitriptyline / Perphenazine
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Running out of treatments
I failed on Rituximab this year after 11 years ( 16 cycles). The team decided to try me on Tocilizumab (TCZ) seeing as its also a b cell depleter. It took them 14 weeks to get organised by then I was in a state so had a depo the day I started the TCZ. After 12 weeks I had flared again so had another
I failed on Rituximab this year after 11 years ( 16 cycles). The team decided to try me on Tocilizumab (TCZ) seeing as its also a b cell depleter. It took them 14 weeks to get organised by then I was in a state so had a depo the day I started the TCZ. After 12 weeks I had flared again so had another
Hidden
in
NRAS
5 years ago
Amitriptyline and AF
Just been prescribed Amitriptyline for neck pain and lack of sleep. Just read leaflet it says do not take if you have disturbance of the heart rhythm as seen on a ECG. My doctor said they would be alright with my AF. Unsure whether to take them. Anyone else take them?
Just been prescribed Amitriptyline for neck pain and lack of sleep. Just read leaflet it says do not take if you have disturbance of the heart rhythm as seen on a ECG. My doctor said they would be alright with my AF. Unsure whether to take them. Anyone else take them?
Gillybean123
in
AF Association
5 years ago
Parietal cell antibody test
I know I'm repeating myself but want to be clear. Is it correct that if you test negative for this it's reliable? I've not had the intrinsic factor test. I'm asking as I'm getting the vibe as one year in now the surgery want to decrease my B12 injections. B12 was put on my latest blood form after
I know I'm repeating myself but want to be clear. Is it correct that if you test negative for this it's reliable? I've not had the intrinsic factor test. I'm asking as I'm getting the vibe as one year in now the surgery want to decrease my B12 injections. B12 was put on my latest blood form after
Nackapan
in
Pernicious Anaemia Society
5 years ago
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Why didn't *I* think of that?
I'm not sure where to 'put' this, but remember how supportive this forum has been in the past. Almost two weeks ago, I was verbally diagnosed with an Autistic Spectrum Disorder (or Condition, depending who you ask.) I'm still waiting for it to come out in writing, to make it tangible. I'd always been
I'm not sure where to 'put' this, but remember how supportive this forum has been in the past. Almost two weeks ago, I was verbally diagnosed with an Autistic Spectrum Disorder (or Condition, depending who you ask.) I'm still waiting for it to come out in writing, to make it tangible. I'd always been
Gaia_rising
in
Headway
5 years ago
Alcohol - leflunomide & benepali
Does anyone know whether I can drink alcohol on this combo. I forgot to ask my Doc. I don't drink as a rule normally but I'm going on hols and really enjoy mojitos but I don't want to do anything thing which sets me back Thanks in advance :) Probably should add in I'm on prednisolone and amitriptyline
Does anyone know whether I can drink alcohol on this combo. I forgot to ask my Doc. I don't drink as a rule normally but I'm going on hols and really enjoy mojitos but I don't want to do anything thing which sets me back Thanks in advance :) Probably should add in I'm on prednisolone and amitriptyline
Ouchyjenna
in
NRAS
5 years ago
Looking for advice on Amitriptyline withdrawal
I’ve been taking 10mg Amitriptyline for just over a year now to prevent my migraines, although it worked it has left me feeling constantly tired and messed up my sleep. Last week I decided to go and get a daith piercing after reading about how it can stop migraines. Confident that it would work I stopped
I’ve been taking 10mg Amitriptyline for just over a year now to prevent my migraines, although it worked it has left me feeling constantly tired and messed up my sleep. Last week I decided to go and get a daith piercing after reading about how it can stop migraines. Confident that it would work I stopped
Poppy17815
in
Migraine Support
5 years ago
Newbie
Hi, Just come back from the docs where they said it might be fibromyalgia and have put me on amitriptyline. Basically, my blood test came back normal, but I've been having increasing headaches and pain in my shoulders and back which are waking me up many times in the night so I'm getting really worn
Hi, Just come back from the docs where they said it might be fibromyalgia and have put me on amitriptyline. Basically, my blood test came back normal, but I've been having increasing headaches and pain in my shoulders and back which are waking me up many times in the night so I'm getting really worn
aeonturnip
in
Fibromyalgia Action UK
5 years ago
Thought I finally had an answer for my pain
Had my laproscopy 14 weeks ago where they found endometriosis. I’ve just had my follow up with the consultant who said I had the tiniest amounts of endometriosis, I explained I still had lots of pelvic pain all on my right side and he said that the amount of endometriosis I had wouldn’t be causing this
Had my laproscopy 14 weeks ago where they found endometriosis. I’ve just had my follow up with the consultant who said I had the tiniest amounts of endometriosis, I explained I still had lots of pelvic pain all on my right side and he said that the amount of endometriosis I had wouldn’t be causing this
rae02
in
Endometriosis UK
5 years ago
Not the norm RA symptoms, is anyone else experiencing the same?
It's been awhile since I last contributed here, although I read nras posts regularly. I'm 3 years into a rheumatoid arthritis diagnosis but I have never experienced the usual pain, redness, heat and swelling I read about. I've always had hip and pelvic pain that aches and burns, sometimes down my legs
It's been awhile since I last contributed here, although I read nras posts regularly. I'm 3 years into a rheumatoid arthritis diagnosis but I have never experienced the usual pain, redness, heat and swelling I read about. I've always had hip and pelvic pain that aches and burns, sometimes down my legs
Hidden
in
NRAS
5 years ago
Not sure how to carry on / who or what can help me 🤞
Really need some help/advice please 🤞 I was diagnosed with fibromyalgia 3 years ago after 8 years of symptoms and I'm now struggling more than ever. Is it normal for rheumatologist/GP to provide no treatment at all? I've tried taking amitriptyline and pregabalin (separately for 6-8 months each) and
Really need some help/advice please 🤞 I was diagnosed with fibromyalgia 3 years ago after 8 years of symptoms and I'm now struggling more than ever. Is it normal for rheumatologist/GP to provide no treatment at all? I've tried taking amitriptyline and pregabalin (separately for 6-8 months each) and
Colleggleton
in
Fibromyalgia Action UK
5 years ago
painful sudecks dystrophy in my hands and foot
hi everyone. has anyone found anything to releave the pain of sudecks dystrophy. I already use gabapentin. paracetamol. lidocaine patches. amitriptyline. but after 9 years on these I'm not getting any better. I can now hardly walk as the pain is to much. any ideas. I see the doctor again next week
hi everyone. has anyone found anything to releave the pain of sudecks dystrophy. I already use gabapentin. paracetamol. lidocaine patches. amitriptyline. but after 9 years on these I'm not getting any better. I can now hardly walk as the pain is to much. any ideas. I see the doctor again next week
Brunobilbo
in
Pain Concern
5 years ago
I’m driving myself mad
Long story short I lost my job due to long term sickness but work said when I’m ready they will get me back but then I started experiencing things first started the heart palpitations and the worry of what if and things that haven’t even happened yet will I get my old job back will they keep there word
Long story short I lost my job due to long term sickness but work said when I’m ready they will get me back but then I started experiencing things first started the heart palpitations and the worry of what if and things that haven’t even happened yet will I get my old job back will they keep there word
Kevtrev
in
Mental Health Support
5 years ago
Amitriptyline added to assist with prednisone tapering : GCA patient diagnosed feb 2018
Hey everyone! I've been to see the specialist who advised I try taking 10mg of amitriptyline for pain associated with moderate steroid withdrawal. I'd have niggles of head ache and body aches all day--every day. It's been a week, and the medication is really helping. I'm surprised! Still have significant
Hey everyone! I've been to see the specialist who advised I try taking 10mg of amitriptyline for pain associated with moderate steroid withdrawal. I'd have niggles of head ache and body aches all day--every day. It's been a week, and the medication is really helping. I'm surprised! Still have significant
Blurry62
in
PMRGCAuk
5 years ago
Advice needed
Iv had to come off Prozac made me feel so ill. I just have 10mg if Amitriptyline at night. A friend of mine has had good results with St. John’s wort. Does anyone know if it’s safe to take during the day. With me having the other tablet at night. I know there’s certain things that don’t mix with St.
Iv had to come off Prozac made me feel so ill. I just have 10mg if Amitriptyline at night. A friend of mine has had good results with St. John’s wort. Does anyone know if it’s safe to take during the day. With me having the other tablet at night. I know there’s certain things that don’t mix with St.
Megs64
in
Anxiety and Depression Support
5 years ago
IBS without bowel symptoms?!
Hello 😊 I will try to keep it short but basically can you have IBS without bowel issues? I was thought to have endometriosis, I will list my symptoms down below if you want to read them. I had a laproscopy 4 weeks ago and all that was found was a distended large intestine so I've been told I have
Hello 😊 I will try to keep it short but basically can you have IBS without bowel issues? I was thought to have endometriosis, I will list my symptoms down below if you want to read them. I had a laproscopy 4 weeks ago and all that was found was a distended large intestine so I've been told I have
Jae95
in
IBS Network
5 years ago
Amitriptyline antidepressant for IBS
I am finally being referred to a dietician after my visit to the Doctor yesterday. I am happy with this as the chronic constipation and awful bloating is really getting me down. However he also prescribed me with Amitriptyline for IBS and depression. Looking up the side effects I'm not sure I want to
I am finally being referred to a dietician after my visit to the Doctor yesterday. I am happy with this as the chronic constipation and awful bloating is really getting me down. However he also prescribed me with Amitriptyline for IBS and depression. Looking up the side effects I'm not sure I want to
Earthflower
in
IBS Network
5 years ago
Thank you
Thank you to all the people who replied to my post regarding my blurred eyes. I am sorry it has taken me so long to reply, but I have not been 100 percent. Well I have had a full scan done on my eyes, and various other eye test, fields tests etc, and all came back clear. I have blood tests done doctor
Thank you to all the people who replied to my post regarding my blurred eyes. I am sorry it has taken me so long to reply, but I have not been 100 percent. Well I have had a full scan done on my eyes, and various other eye test, fields tests etc, and all came back clear. I have blood tests done doctor
Blackcat1M
in
PMRGCAuk
5 years ago
Timescale for levo at night
Hi I'm thinking of trying my levo in the evening. Would the timescale be 2 hours after meal with only water in between and then after an hour I could take my low dose amitriptyline? When having blood test would I then leave 36 hours?
Hi I'm thinking of trying my levo in the evening. Would the timescale be 2 hours after meal with only water in between and then after an hour I could take my low dose amitriptyline? When having blood test would I then leave 36 hours?
Hibs1
in
Thyroid UK
5 years ago
Amitriptyline
Is anyone here on this? I’m having some sleep issues and my sister gave me low dose (10mg) to try !! I know, not the best idea but only 2 tablets 10mg each. Any experience/knowledge of this med in relation to af and apixaban. Google seems to indicate might cause palpitations but not clear.
Is anyone here on this? I’m having some sleep issues and my sister gave me low dose (10mg) to try !! I know, not the best idea but only 2 tablets 10mg each. Any experience/knowledge of this med in relation to af and apixaban. Google seems to indicate might cause palpitations but not clear.
Dodie117
in
AF Association
5 years ago
Restless legs keeps coming back
My mum has suffered from rls since about 8 years, she's been on many medications and all will work for a while. Recently she was diagnosed with sleep apnea and was using cpap which made all her rls symptoms go away however after 2 months it has returned really bad. I took her to the gp and he has prescribed
My mum has suffered from rls since about 8 years, she's been on many medications and all will work for a while. Recently she was diagnosed with sleep apnea and was using cpap which made all her rls symptoms go away however after 2 months it has returned really bad. I took her to the gp and he has prescribed
Bejwo50
in
Restless Legs Syndrome
5 years ago
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