I just sat here and dictated a post probably as long as War and peace. (. I'm feeling a bit desperate). Then accidentally deleted it!!!!!
Has anyone had a prescriptive drug from the doctor that breaks the cycle of a kind of status migraine that has gone on for weeks.
I use Tiptons when I really have to. I was asked to stop the candesartan because GP thought it might be making my neck and shoulders sore although the pain pre dates candesartan or Botox .I struggled with the side-effects of the amitriptyline so have not taken the last two nights.
I get Botox.. 8 weeks since last jags.
I have way way more bad days than good days ,a bad day is not being able to move from lying in the dark on my right hand side.
A good day is surviving the essentials ...before lying in the dark.
I read on line prednisolone can sometimes help. I have been referred back to neurology but it will be at least 16 weeks before I hear about that.
I need something to happen now. So looking for information or advice for when I go to the GP. Or do I sit and cry until he gives me something, or do I just vomit on his desk.
I have tried a load of the strong drugs that they like to prescribe , but terrible side effects with absolutely no relief from migraine pain or after a lot of vomiting Trigeminal neuralgia.
Sad, sore sixty year old. Very desperate .
Got book suggested (headache. Healers handbook) impossible for me to read just now. Also impossible to type because of the pain in my neck and shoulders going down my arms and up my head so I am dictating and it doesn't like a Scottish accent so I apologise for any mistakes.
Look forward to a miracle