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Is it worth going private?
Im feeling a bit overwhelmed today, sick of feeling sick and tired and sore. So far my own GP has been good but all my results show up as normal, last one being the ANA test. Its hard to explain to him my joints hurt, they ache, my bones ache, my legs are heavy, my neck hurts, its as if my heads too
Im feeling a bit overwhelmed today, sick of feeling sick and tired and sore. So far my own GP has been good but all my results show up as normal, last one being the ANA test. Its hard to explain to him my joints hurt, they ache, my bones ache, my legs are heavy, my neck hurts, its as if my heads too
Loulouella
in
LUPUS UK
8 years ago
Finally progress
I had my appointment yesterday with a multi disciplinary team at the pain clinic. After an interview lasting about 30 minutes I have been accepted for a Spinal Cord Stimulator. Before that I have a nerve ablation procedure to try and relieve the pain in my lower back. Then the wait for a date to have
I had my appointment yesterday with a multi disciplinary team at the pain clinic. After an interview lasting about 30 minutes I have been accepted for a Spinal Cord Stimulator. Before that I have a nerve ablation procedure to try and relieve the pain in my lower back. Then the wait for a date to have
gaj6512
in
Pain Concern
8 years ago
SGPT IS HIGH
hi Please advise me to control SGPT . My blood report says that 78 U/L. And advice me for diet as well . and my total cholesterol also 233 mg/dL TRIGLYCERIDES 224 mg/dL.
hi Please advise me to control SGPT . My blood report says that 78 U/L. And advice me for diet as well . and my total cholesterol also 233 mg/dL TRIGLYCERIDES 224 mg/dL.
mdmeeran84
in
Lung Conditions Community Forum
8 years ago
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Stuttering
I will be seeing the Rhematologist in October for the first time since my positive ANA result. I have began to stutter a little and sometimes have a hard time getting my words out. Is there anyone who has experience the stuttering with lupus
I will be seeing the Rhematologist in October for the first time since my positive ANA result. I have began to stutter a little and sometimes have a hard time getting my words out. Is there anyone who has experience the stuttering with lupus
faithnhm333
in
LUPUS UK
8 years ago
Trying to understand blood work
I have hypo have been taking 75 levo. Last blood work tsh 3.25 (.3-4). Tpo .7 (.0-9). Thyroglobulin antibody <0.9 (.0-4). I believe dr was checking if I had hashimotos. I don't understand tests. He never addressed these because he was more concerned about positive ana 1:320 speckled. And I possible
I have hypo have been taking 75 levo. Last blood work tsh 3.25 (.3-4). Tpo .7 (.0-9). Thyroglobulin antibody <0.9 (.0-4). I believe dr was checking if I had hashimotos. I don't understand tests. He never addressed these because he was more concerned about positive ana 1:320 speckled. And I possible
missyc73
in
Thyroid UK
8 years ago
Redeemed skin all over
Hi I am new here. I have been referred to a rheumatologist based on a positive ANA and signs n symptoms, and just the other day Lichen Sclerosus confirmed by biopsy which I suspect I had from age 8 or 9. Since a recent symptom flare I have developed red skin pretty much all over, like i have too much
Hi I am new here. I have been referred to a rheumatologist based on a positive ANA and signs n symptoms, and just the other day Lichen Sclerosus confirmed by biopsy which I suspect I had from age 8 or 9. Since a recent symptom flare I have developed red skin pretty much all over, like i have too much
Jar1973
in
LUPUS UK
8 years ago
Ranitidine (Zantec): Warning in Immune (autoimmune?) Conditions. Anybody had any problems or have anymore information about this?
Hello All. My GP recently prescribed a course of Ranitidine (histamine H2 receptor antagonist) for multiple duodenal ulcers / gastritis / duodenitis. Prior to taking the tablets I read the patient information leaflet and it said to check with a pharmacist if there were problems with the immune system
Hello All. My GP recently prescribed a course of Ranitidine (histamine H2 receptor antagonist) for multiple duodenal ulcers / gastritis / duodenitis. Prior to taking the tablets I read the patient information leaflet and it said to check with a pharmacist if there were problems with the immune system
Foggyme
Administrator
in
Pernicious Anaemia Society
8 years ago
Your route to diagnosis
I have read the Lupus UK guide to diagnosis but my experience doesn't really fit this. I was wondering what path others followed to their diagnosis and how they managed to get a confirmed diagnosis - and did it take months or years? My rheumatologist says I have an autoimmune disease 'in the lupus/sjogrens
I have read the Lupus UK guide to diagnosis but my experience doesn't really fit this. I was wondering what path others followed to their diagnosis and how they managed to get a confirmed diagnosis - and did it take months or years? My rheumatologist says I have an autoimmune disease 'in the lupus/sjogrens
LuckyJC
in
LUPUS UK
8 years ago
Dr appointment today
Seen a difference dr today and says my positive ana 1:320 speckled with elevated sed rate and elevated protein was "inconclusive and insignificant". I possible have autoimmune progesterone dermatitis, and that interests him. I assume because it is rare. I understand that the tests I had do not determine
Seen a difference dr today and says my positive ana 1:320 speckled with elevated sed rate and elevated protein was "inconclusive and insignificant". I possible have autoimmune progesterone dermatitis, and that interests him. I assume because it is rare. I understand that the tests I had do not determine
missyc73
in
LUPUS UK
8 years ago
Let's start this over
I deleted my last post about my 2nd Rheumy appt.. I was being a little whiny and realized it after a few hrs of thinking it through. I must admit I was upset and quite frustrated that my second ana test came back negative- even though the first one was positive. My Rheumy went with the second test
I deleted my last post about my 2nd Rheumy appt.. I was being a little whiny and realized it after a few hrs of thinking it through. I must admit I was upset and quite frustrated that my second ana test came back negative- even though the first one was positive. My Rheumy went with the second test
Ratana21
in
LUPUS UK
8 years ago
Professor Graham Hughes' Monthly Blog August 2016
BLOG August 2016 What a beautiful August! And what a difference a month makes! I generally regard August as early Autumn rather than summer. Not this year! For me it was good to be back at work after my illness. This month, September, is the start of the academic year, usually peaking in October,
BLOG August 2016 What a beautiful August! And what a difference a month makes! I generally regard August as early Autumn rather than summer. Not this year! For me it was good to be back at work after my illness. This month, September, is the start of the academic year, usually peaking in October,
MaryF
Administrator
in
Hughes Syndrome APS Forum
8 years ago
First post - waiting for some sort of diagnosis
Hi all, I've been following this community recently. I have been suffering worsening anaemia for the 1-2yrs. I have had various tests and scopes via gastro consultant but everything was negative so i was discharged. I have now had to begin a series of iron transfusions as it was so low and tablets and
Hi all, I've been following this community recently. I have been suffering worsening anaemia for the 1-2yrs. I have had various tests and scopes via gastro consultant but everything was negative so i was discharged. I have now had to begin a series of iron transfusions as it was so low and tablets and
Trigger2
in
LUPUS UK
8 years ago
PBC and working
I have recently been diagnosed with PBC, ANA positive and a weak positive autoimmune hepatitis. I have been out of work for almost a month now. I have a very high paced job (about 50 hr's a week, plus 10 more in commute), getting up at 4am and often not returning home until well after 5. I drive about
I have recently been diagnosed with PBC, ANA positive and a weak positive autoimmune hepatitis. I have been out of work for almost a month now. I have a very high paced job (about 50 hr's a week, plus 10 more in commute), getting up at 4am and often not returning home until well after 5. I drive about
Jaksgirl
in
PBC Foundation
8 years ago
Ana
Can u have more than one pattern with a positive ana
Can u have more than one pattern with a positive ana
Deenicole
in
LUPUS UK
8 years ago
20 years of RA frustrations?
I just want to say Thank you for this site and all of you amazing people. I read the posts often and this is my first post. I am a 54 year old female from Alberta Canada. I was diagnosed with RA in July of this year with a CCP over 1000. Not sure what that means exactly. I just know that I was put
I just want to say Thank you for this site and all of you amazing people. I read the posts often and this is my first post. I am a 54 year old female from Alberta Canada. I was diagnosed with RA in July of this year with a CCP over 1000. Not sure what that means exactly. I just know that I was put
Arrlly1
in
Cure Arthritis Community
8 years ago
Scs implant for migraine
Today is the day I have my procedure for my spinal cord stimulation implant for migraine in London. Really nervous,have read lots of stories about the pain levels after from the implant site. Would appreciate any posts from anyone who has had this done. Many thanks
Today is the day I have my procedure for my spinal cord stimulation implant for migraine in London. Really nervous,have read lots of stories about the pain levels after from the implant site. Would appreciate any posts from anyone who has had this done. Many thanks
ben1988
in
National Migraine Centre
8 years ago
Hello from Balletmum
Hi All, I'm new to this forum . Suffered from joint pain for many years , blood work normal but after a prolonged bout of feeling very unwell with fatigue and joint pain and rash have still normal blood work but positive AnA . Due to see consultant in September . Have just had a time in hospital with
Hi All, I'm new to this forum . Suffered from joint pain for many years , blood work normal but after a prolonged bout of feeling very unwell with fatigue and joint pain and rash have still normal blood work but positive AnA . Due to see consultant in September . Have just had a time in hospital with
Balletmum71
in
Arthritis Action
8 years ago
Massively confused about RA diagnosis
Hi everybody! I am new here and also quite new to RA. I was just diagnosed July 1, 2016. I had joint pain that moved around for 3 years but I just chalked it up to sleeping wrong or something, only because I'm 30 (this started when I was 27) and I didn't even know what RA was. Well, the joint pain took
Hi everybody! I am new here and also quite new to RA. I was just diagnosed July 1, 2016. I had joint pain that moved around for 3 years but I just chalked it up to sleeping wrong or something, only because I'm 30 (this started when I was 27) and I didn't even know what RA was. Well, the joint pain took
karilynn85
in
NRAS
8 years ago
Newly diagnosed and totally confused
Hi I have recently been given a diagnosis of Undifferentiated Connective Tissue Disease. After a bout of gastroenteritis 4/5 yrs ago I started to experience pain and stiffness in my shoulders and hips I though I had bursitis . All blood tests and X-rays came back negative minus a weak positive rheumatoid
Hi I have recently been given a diagnosis of Undifferentiated Connective Tissue Disease. After a bout of gastroenteritis 4/5 yrs ago I started to experience pain and stiffness in my shoulders and hips I though I had bursitis . All blood tests and X-rays came back negative minus a weak positive rheumatoid
Cherrywerry
in
LUPUS UK
8 years ago
Lumbar Spine Pain. Nerve Ablation & Spinal Cord Stimulator
Greetings. Has anyone had Nerve Ablation done to help with lumbar spine pain? Has anyone had a trail or a permanent spinal cord stimulator fitted? My pain consultant wants to try the first one in a few weeks time and I have my first appointment next month with a view to having a spinal cord stimulator
Greetings. Has anyone had Nerve Ablation done to help with lumbar spine pain? Has anyone had a trail or a permanent spinal cord stimulator fitted? My pain consultant wants to try the first one in a few weeks time and I have my first appointment next month with a view to having a spinal cord stimulator
gaj6512
in
Pain Concern
8 years ago
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