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Adrenalin rushes in?
I've had a few weeks where I the daily flushing/nausea/shaking episodes had eased off. But this week, they seemed to be returning. This afternoon, I had a dramatic demonstration that they must surely be related to adrenal dysfunction. The morning had been ordinary, with me simply pacing myself through
I've had a few weeks where I the daily flushing/nausea/shaking episodes had eased off. But this week, they seemed to be returning. This afternoon, I had a dramatic demonstration that they must surely be related to adrenal dysfunction. The morning had been ordinary, with me simply pacing myself through
whisperit
in
LUPUS UK
7 years ago
Polymyalgia/Schnitzler Syndrome
2 years ago diagnosis was PMR. A year later I have this rash and find I have Schnitzler Syndrome. Added image just in case anyone else expieriences it. Or I have both. I am beginning to think both for an injection I get monthly, Canakinumab should take care of my range of motion and muscle issues
2 years ago diagnosis was PMR. A year later I have this rash and find I have Schnitzler Syndrome. Added image just in case anyone else expieriences it. Or I have both. I am beginning to think both for an injection I get monthly, Canakinumab should take care of my range of motion and muscle issues
mikldiamond
in
PMRGCAuk
7 years ago
Hair loss due to prednison
Hi all, I am new here. I am an 48 year old Dutch woman and I was diagnosed with PMR in February 2017. I was wandering if anyone here also has hair loss as a side effect of the prednisone and at what dose your hair became normal again. I am loosing a lot of hair since this summer and no shampoo for hair
Hi all, I am new here. I am an 48 year old Dutch woman and I was diagnosed with PMR in February 2017. I was wandering if anyone here also has hair loss as a side effect of the prednisone and at what dose your hair became normal again. I am loosing a lot of hair since this summer and no shampoo for hair
Ollanda
in
PMRGCAuk
7 years ago
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Trametinab Diaries
Some of you may remember I posted a few weeks ago that I was on a break from the trial drug trametinab for recurrent low grade serous ovarian cancer. I had been taken off the trial because my echocardiogram had revealed that my ejection fraction had dropped from 60% to about 50%. I was off the trial
Some of you may remember I posted a few weeks ago that I was on a break from the trial drug trametinab for recurrent low grade serous ovarian cancer. I had been taken off the trial because my echocardiogram had revealed that my ejection fraction had dropped from 60% to about 50%. I was off the trial
ScardyCat40
in
My Ovacome
7 years ago
Please help reading U.S. results for a friend
Hello all, I would like some help reading a friend’s TSH as she’s taking 0.112g of Tirosint and 5mcg Cytomel. I think she’s being ripped off by paying $700 a month. She was diagnosed 10 years ago. She thinks her supplements are perfect as she’s been prescribed by a doctor but she mentioned ‘multi vitamins
Hello all, I would like some help reading a friend’s TSH as she’s taking 0.112g of Tirosint and 5mcg Cytomel. I think she’s being ripped off by paying $700 a month. She was diagnosed 10 years ago. She thinks her supplements are perfect as she’s been prescribed by a doctor but she mentioned ‘multi vitamins
EbonyEvans
in
Thyroid UK
7 years ago
Heart issues
Can anyone tell me if they have heart issues related to underactive thyroid? I was undiagnosed for around 15 years. After being treated, not effectively for 8 years I now appear to have been diagnosed with aortic stenosis. Anyone have similar issues?
Can anyone tell me if they have heart issues related to underactive thyroid? I was undiagnosed for around 15 years. After being treated, not effectively for 8 years I now appear to have been diagnosed with aortic stenosis. Anyone have similar issues?
Numberone1
in
Thyroid UK
7 years ago
Sleep aid
I tried Ashwagandha and 3 mg time release melatonin taking Ashwagandha 400 mg at 8 pm (I take Azilect 1 mg 8 am) and melatonin at 10 pm. Instead of sleeping through TV I felt social and talkative not a bit anxious and sleep was restful and restorative. But next day found that after taking 5 mg Isradapine
I tried Ashwagandha and 3 mg time release melatonin taking Ashwagandha 400 mg at 8 pm (I take Azilect 1 mg 8 am) and melatonin at 10 pm. Instead of sleeping through TV I felt social and talkative not a bit anxious and sleep was restful and restorative. But next day found that after taking 5 mg Isradapine
Ruffinglgo
in
Cure Parkinson's
7 years ago
Myo-inositol and folic acid
I had my consultation with a gynaecologist on Friday and he said that some of the tests were "suggestive" of PCOS that were just on the border, like, 3.97 instead of 4, and then some were normal, and that based on that he couldn't diagnose PCOS but agreed that I show all the symptoms and advised me to
I had my consultation with a gynaecologist on Friday and he said that some of the tests were "suggestive" of PCOS that were just on the border, like, 3.97 instead of 4, and then some were normal, and that based on that he couldn't diagnose PCOS but agreed that I show all the symptoms and advised me to
Letitgrow
in
PCOS UK (Verity)
7 years ago
Pbc/AIH
Just been diagnosed with aih/pbc overlap I've had pbc for 5 years Does anybody know the mean life expectancy for prednisone unresponsive aih treatment combined with pbc?
Just been diagnosed with aih/pbc overlap I've had pbc for 5 years Does anybody know the mean life expectancy for prednisone unresponsive aih treatment combined with pbc?
terri2109
in
PBC Foundation
7 years ago
Eye ulcer
Hi everyone I hope all is well as can be. I have this horrible very sore eye ulcer which is a pain when I blink or even open my eye.
Hi everyone I hope all is well as can be. I have this horrible very sore eye ulcer which is a pain when I blink or even open my eye.
pete11
in
Behçet's UK
7 years ago
Non-responder stopped taking UCDA/Urso
Hi, I’ve been told I’m a non-responder to ucda after taking it for 13 yrs! My LFTs have progressively worsened in stages with plateaus in between. I’ve recently stopped taking the ucda since I’m a bit despondent and don’t see the point taking it. I do feel worse but my symptoms have been worsening and
Hi, I’ve been told I’m a non-responder to ucda after taking it for 13 yrs! My LFTs have progressively worsened in stages with plateaus in between. I’ve recently stopped taking the ucda since I’m a bit despondent and don’t see the point taking it. I do feel worse but my symptoms have been worsening and
Kateb17
in
PBC Foundation
7 years ago
Gabapentin
Hi all, I'm new to this forum but have had restless legs for over 30 years. I've never seen my doctor about it because I try to keep off drugs. For the past 5 years or so I have been using spatone iron and that has generally kept it at bay. That is until i went on omeprazole. At first I was ok but
Hi all, I'm new to this forum but have had restless legs for over 30 years. I've never seen my doctor about it because I try to keep off drugs. For the past 5 years or so I have been using spatone iron and that has generally kept it at bay. That is until i went on omeprazole. At first I was ok but
Mum007
in
Restless Legs Syndrome
7 years ago
Stats query
Hi all you lovely people, hope everyone is doing OK. My question is my husband John who has pulmonary fibrosis is doing good at the present, exercising every day, mainly on the treadmill, his stats at rest are nearly always 93-96 but when he exercises on the treadmill it can go as low as 83 even on
Hi all you lovely people, hope everyone is doing OK. My question is my husband John who has pulmonary fibrosis is doing good at the present, exercising every day, mainly on the treadmill, his stats at rest are nearly always 93-96 but when he exercises on the treadmill it can go as low as 83 even on
Johnsel
in
Lung Conditions Community Forum
7 years ago
Hypothyroidism and complications?
I'm a new member. I've just had my thyroxine increased after scans showed my pituitary gland is very enlarged and pressing on my brain and my TSH levels are totally out of control. I also have a growth in the centre of my brain which could be a pineal cyst or something worse also creating pressure on
I'm a new member. I've just had my thyroxine increased after scans showed my pituitary gland is very enlarged and pressing on my brain and my TSH levels are totally out of control. I also have a growth in the centre of my brain which could be a pineal cyst or something worse also creating pressure on
Sheilamiss
in
Thyroid UK
7 years ago
In my belief this is what caused my RLS!
For many years I was taking codeine for pain. After I got hooked on it the codeine took over my body. I finally got off them about 2 years ago and ever since I have gained RLS. I sleep maybe an hour a night if I'm lucky. I don't really have triggers they ache every night. I started smoking pot before
For many years I was taking codeine for pain. After I got hooked on it the codeine took over my body. I finally got off them about 2 years ago and ever since I have gained RLS. I sleep maybe an hour a night if I'm lucky. I don't really have triggers they ache every night. I started smoking pot before
Mrsdonnie
in
Restless Legs Syndrome
7 years ago
Went to Dr today
So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (10mg long term) along with the Urso and Atarax. My last blood tests on Monday showed my levels elevated but still dropping. My bilirubin is at 6.9 now. Saw my PC this morning and asked him if he could see my liver biopsy.
So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (10mg long term) along with the Urso and Atarax. My last blood tests on Monday showed my levels elevated but still dropping. My bilirubin is at 6.9 now. Saw my PC this morning and asked him if he could see my liver biopsy.
IAmTheGlue
in
PBC Foundation
7 years ago
Travelling with PSP
TRAVELLING with PSP Hi everyone. Thought I would tell you about how Ch and I managed to travel from Australia to Norway for grandchild christening and back, over the last month. We had 3 legs on outward journey planned to be over 21hours (4 legs and longer on the way home). The day before we left
TRAVELLING with PSP Hi everyone. Thought I would tell you about how Ch and I managed to travel from Australia to Norway for grandchild christening and back, over the last month. We had 3 legs on outward journey planned to be over 21hours (4 legs and longer on the way home). The day before we left
crab2093
in
PSP Association
7 years ago
Low INR again
Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 this morning. Feel rough and worried . Still waiting for vein test . Thank gif I'm seeing Prof Haye next Monday . Think I might need Heparin as well 😐
Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 this morning. Feel rough and worried . Still waiting for vein test . Thank gif I'm seeing Prof Haye next Monday . Think I might need Heparin as well 😐
amy1808
in
Hughes Syndrome APS Forum
7 years ago
I'm new - worried about auto-immune hepatitis
Hi everyone A month ago I went for a routine blood test which found my liver functioning was abnormal. My GP and hepatologist confirmed it is not any form of hepatitis or glandular fever, which they originally thought it would be. Given that my mother has rheumatoid arthritis, they are now testing
Hi everyone A month ago I went for a routine blood test which found my liver functioning was abnormal. My GP and hepatologist confirmed it is not any form of hepatitis or glandular fever, which they originally thought it would be. Given that my mother has rheumatoid arthritis, they are now testing
DomBr
in
British Liver Trust
7 years ago
Topiramate and Levothyroxine.
Hi My daughter has to take Topiramate for migraines. She was started on 50mcg. levo. as her TSH was 6.3. Six week later when she had her bloods redone her TSH had only fallen to 5.8. She did some research and found out that Topiramate can have an effect on thyroid meds. and wondered if this was the reason
Hi My daughter has to take Topiramate for migraines. She was started on 50mcg. levo. as her TSH was 6.3. Six week later when she had her bloods redone her TSH had only fallen to 5.8. She did some research and found out that Topiramate can have an effect on thyroid meds. and wondered if this was the reason
lucylocks
in
Thyroid UK
7 years ago
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