Hypothyroidism and complications?

[Sheilamiss]

I'm a new member. I've just had my thyroxine increased after scans showed my pituitary gland is very enlarged and pressing on my brain and my TSH levels are totally out of control. I also have a growth in the centre of my brain which could be a pineal cyst or something worse also creating pressure on my brain. The neurologist had reviewed my scans from February and found thus out after the consultants at that time hadnt spotted these findings. He has said they could be linked or not linked at all. So I'm not sure what it all means yet. I've heard about T3 medication. Maybe it's something the specialists will give me when i see them in December. Just thought ld comment and see if anyone could give any advice? 😊

[Clutter]

Welcome to the forum, Sheilamiss.

If you are diagnosed with hypothyroidism it is more likely you will be prescribed Levothyroxine. T3 (Liothyronine) is an alternative thyroid replacement to Levothyroxine.

[Sheilamiss in reply to Clutter]

Yeah I was diagnosed 20yrs ago and was told then my results were "spectacular " lol whatever that means. I was in 100mgs but been moved to 150mgs recently and waiting for endocrinologist specialist appointment in December. My TSH is in the hundreds lol I'll get the exact levels from my gp today and post them but I'm just looking for recent information and developments. Research which might help me guess the next steps as I kind of stumbled out of my neurologists office completely blown away by what he had said and he couldn't or wouldn't give me any hypothesis of what it all means 😊

[Clutter in reply to Sheilamiss]

Sheilamiss,

If your TSH can't be trusted due to pituitary dysfunction or the pineal cyst your doctors should be checking FT4 and FT3 which are the thyroid hormones to see whether 150mcg is optimal dose. Do you have results and ranges for either of these?

Other reasons for TSH being very high can be interference by heterophile antibodies. The blood should be sent to another lab which uses a different assay to rule out interference from heterophile antibodies.

[Sheilamiss in reply to Clutter]

I'll ask my gp at 430 today. Like I say I'm really just starting to accept all this and look into it all. My health has been in decline for about 18months. I had mulitiple unprovoked blood clots in both lungs, bells palsy, stroke, FND , PTSD, my father passed... then i get told something that was present in February is now only being disclosed to me. Ill ask about those tests and see if they have been done. Just getting my head above water right now 😊

[Clutter in reply to Sheilamiss]

Sheilamiss,

I hope you are on the mend now. You've had an awful lot going on.

[Sheilamiss in reply to Clutter]

Its been insane lol if i didnt have the medical proof and appointments and hosptial stays to prove it people wouldn't believe it all! but this news has really knocked me and my family for six. Just trying to develop an understanding of what it all could mean. Thanks for you help and advice 😊 I'll get back to you with the blood work that's been done 😊