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Non-responder stopped taking UCDA/Urso
Hi, I’ve been told I’m a non-responder to ucda after taking it for 13 yrs! My LFTs have progressively worsened in stages with plateaus in between. I’ve recently stopped taking the ucda since I’m a bit despondent and don’t see the point taking it. I do feel worse but my symptoms have been worsening and
Hi, I’ve been told I’m a non-responder to ucda after taking it for 13 yrs! My LFTs have progressively worsened in stages with plateaus in between. I’ve recently stopped taking the ucda since I’m a bit despondent and don’t see the point taking it. I do feel worse but my symptoms have been worsening and
Kateb17
in
PBC Foundation
7 years ago
Gabapentin
Hi all, I'm new to this forum but have had restless legs for over 30 years. I've never seen my doctor about it because I try to keep off drugs. For the past 5 years or so I have been using spatone iron and that has generally kept it at bay. That is until i went on omeprazole. At first I was ok but
Hi all, I'm new to this forum but have had restless legs for over 30 years. I've never seen my doctor about it because I try to keep off drugs. For the past 5 years or so I have been using spatone iron and that has generally kept it at bay. That is until i went on omeprazole. At first I was ok but
Mum007
in
Restless Legs Syndrome
7 years ago
Stats query
Hi all you lovely people, hope everyone is doing OK. My question is my husband John who has pulmonary fibrosis is doing good at the present, exercising every day, mainly on the treadmill, his stats at rest are nearly always 93-96 but when he exercises on the treadmill it can go as low as 83 even on
Hi all you lovely people, hope everyone is doing OK. My question is my husband John who has pulmonary fibrosis is doing good at the present, exercising every day, mainly on the treadmill, his stats at rest are nearly always 93-96 but when he exercises on the treadmill it can go as low as 83 even on
Johnsel
in
Lung Conditions Community Forum
7 years ago
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Hypothyroidism and complications?
I'm a new member. I've just had my thyroxine increased after scans showed my pituitary gland is very enlarged and pressing on my brain and my TSH levels are totally out of control. I also have a growth in the centre of my brain which could be a pineal cyst or something worse also creating pressure on
I'm a new member. I've just had my thyroxine increased after scans showed my pituitary gland is very enlarged and pressing on my brain and my TSH levels are totally out of control. I also have a growth in the centre of my brain which could be a pineal cyst or something worse also creating pressure on
Sheilamiss
in
Thyroid UK
7 years ago
In my belief this is what caused my RLS!
For many years I was taking codeine for pain. After I got hooked on it the codeine took over my body. I finally got off them about 2 years ago and ever since I have gained RLS. I sleep maybe an hour a night if I'm lucky. I don't really have triggers they ache every night. I started smoking pot before
For many years I was taking codeine for pain. After I got hooked on it the codeine took over my body. I finally got off them about 2 years ago and ever since I have gained RLS. I sleep maybe an hour a night if I'm lucky. I don't really have triggers they ache every night. I started smoking pot before
Mrsdonnie
in
Restless Legs Syndrome
7 years ago
Went to Dr today
So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (10mg long term) along with the Urso and Atarax. My last blood tests on Monday showed my levels elevated but still dropping. My bilirubin is at 6.9 now. Saw my PC this morning and asked him if he could see my liver biopsy.
So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (10mg long term) along with the Urso and Atarax. My last blood tests on Monday showed my levels elevated but still dropping. My bilirubin is at 6.9 now. Saw my PC this morning and asked him if he could see my liver biopsy.
IAmTheGlue
in
PBC Foundation
7 years ago
Travelling with PSP
TRAVELLING with PSP Hi everyone. Thought I would tell you about how Ch and I managed to travel from Australia to Norway for grandchild christening and back, over the last month. We had 3 legs on outward journey planned to be over 21hours (4 legs and longer on the way home). The day before we left
TRAVELLING with PSP Hi everyone. Thought I would tell you about how Ch and I managed to travel from Australia to Norway for grandchild christening and back, over the last month. We had 3 legs on outward journey planned to be over 21hours (4 legs and longer on the way home). The day before we left
crab2093
in
PSP Association
7 years ago
I'm new - worried about auto-immune hepatitis
Hi everyone A month ago I went for a routine blood test which found my liver functioning was abnormal. My GP and hepatologist confirmed it is not any form of hepatitis or glandular fever, which they originally thought it would be. Given that my mother has rheumatoid arthritis, they are now testing
Hi everyone A month ago I went for a routine blood test which found my liver functioning was abnormal. My GP and hepatologist confirmed it is not any form of hepatitis or glandular fever, which they originally thought it would be. Given that my mother has rheumatoid arthritis, they are now testing
DomBr
in
British Liver Trust
7 years ago
Low INR again
Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 this morning. Feel rough and worried . Still waiting for vein test . Thank gif I'm seeing Prof Haye next Monday . Think I might need Heparin as well 😐
Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 this morning. Feel rough and worried . Still waiting for vein test . Thank gif I'm seeing Prof Haye next Monday . Think I might need Heparin as well 😐
amy1808
in
Hughes Syndrome APS Forum
7 years ago
Topiramate and Levothyroxine.
Hi My daughter has to take Topiramate for migraines. She was started on 50mcg. levo. as her TSH was 6.3. Six week later when she had her bloods redone her TSH had only fallen to 5.8. She did some research and found out that Topiramate can have an effect on thyroid meds. and wondered if this was the reason
Hi My daughter has to take Topiramate for migraines. She was started on 50mcg. levo. as her TSH was 6.3. Six week later when she had her bloods redone her TSH had only fallen to 5.8. She did some research and found out that Topiramate can have an effect on thyroid meds. and wondered if this was the reason
lucylocks
in
Thyroid UK
7 years ago
What cooking oils are people using to cook their meals?
Hi guys, i wanted to know what cooking oils people are using. As i have started a healthy diet to reduce my weight i wanted to know what people are using. As there are so many options at supermarkets these days for oils you can find a range of oils like Olive oil, Coconut oil, sunflower oil, Sesame oil
Hi guys, i wanted to know what cooking oils people are using. As i have started a healthy diet to reduce my weight i wanted to know what people are using. As there are so many options at supermarkets these days for oils you can find a range of oils like Olive oil, Coconut oil, sunflower oil, Sesame oil
daviddonovan119
in
Healthy Eating
7 years ago
AIH SUPPORT GROUP MEETING BIRMINGHAM 11 NOVEMBER 2017
AIH Support is the charity in UK which supports people with autoimmune hepatitis (AIH). We have organised a meeting for anyone with AIH plus partners/carers etc. This is a great opportunity to hear from AIH experts about the condition (the main speaker is Prof Gideon Hirschfield - who is based at the
AIH Support is the charity in UK which supports people with autoimmune hepatitis (AIH). We have organised a meeting for anyone with AIH plus partners/carers etc. This is a great opportunity to hear from AIH experts about the condition (the main speaker is Prof Gideon Hirschfield - who is based at the
AIHAnn
in
British Liver Trust
7 years ago
Pulmonary Embolism
Hi everyone. Hope you are all staying positive. I was rushed into a&e last week and after a ct scan was diagnosed with a blood clot on one of my lungs. I was put on blood -thinning medication. At the moment I am very short of breath whenever I try to walk a few yards and cannot currently do things that
Hi everyone. Hope you are all staying positive. I was rushed into a&e last week and after a ct scan was diagnosed with a blood clot on one of my lungs. I was put on blood -thinning medication. At the moment I am very short of breath whenever I try to walk a few yards and cannot currently do things that
Geronimo
in
Lung Conditions Community Forum
7 years ago
Advice please on supplements
I am here on behalf of girlfriend who is worried about symptoms she can't make sense of. She is 29 years old and has thyroid peroxidase antibodies of 377 (<34 IU/mL). Symptoms list - Seeing flashing spots/floaters in her eyes Dizziness and breathlessness when standing from squatting Tiredness
I am here on behalf of girlfriend who is worried about symptoms she can't make sense of. She is 29 years old and has thyroid peroxidase antibodies of 377 (<34 IU/mL). Symptoms list - Seeing flashing spots/floaters in her eyes Dizziness and breathlessness when standing from squatting Tiredness
Domikk
in
Thyroid UK
7 years ago
Air embolism with compressed air
At my work place we have loads of compressed air guns that we use for our jobs, before today I was unaware how dangerous air embolisms actually are. After my shift at work I would use it to clean the dust of my clothes, I started messing about with it and pointed it at a bite on my arm, it popped the
At my work place we have loads of compressed air guns that we use for our jobs, before today I was unaware how dangerous air embolisms actually are. After my shift at work I would use it to clean the dust of my clothes, I started messing about with it and pointed it at a bite on my arm, it popped the
Jonhhruddy
in
Anticoagulation Support
7 years ago
Thinning hair with PBC? Urso side effects?
This is a random post and my first. After almost 3 years of symptoms, I was FINALLY diagnosed with PBC. I had been on Imuran because they thought it was autoimmune hepatitis, but my livers enzymes actually doubled while I was on it. I’ve also been on Prednisone for almost 5 months and am in the process
This is a random post and my first. After almost 3 years of symptoms, I was FINALLY diagnosed with PBC. I had been on Imuran because they thought it was autoimmune hepatitis, but my livers enzymes actually doubled while I was on it. I’ve also been on Prednisone for almost 5 months and am in the process
Stephanellie
in
PBC Foundation
7 years ago
Dry skin
Hi I am on a fairly low dose of Levo and my last test came back normal but I am getting side effects back again especially dry skin tingling and itching has anyone got any idea what I can do about this. Thanks
Hi I am on a fairly low dose of Levo and my last test came back normal but I am getting side effects back again especially dry skin tingling and itching has anyone got any idea what I can do about this. Thanks
Zizzy1591
in
Thyroid UK
7 years ago
Interstitial Lung Disease
I am new here for the past few months I have been suffering with shortness of breath on exertion that has been getting slightly worse. I do have Ovarian Cancer and have had three lines of chemotherapy. I am on a clinical trial for a drug called trametinib and one of the side effects is that it can cause
I am new here for the past few months I have been suffering with shortness of breath on exertion that has been getting slightly worse. I do have Ovarian Cancer and have had three lines of chemotherapy. I am on a clinical trial for a drug called trametinib and one of the side effects is that it can cause
ScardyCat40
in
Lung Conditions Community Forum
7 years ago
Regaine hair foam for hair loss due to b12 deficiency?
Hi all..... I've posted a few times about my hair loss but I have to say I have noticed alot more has fallen out in the last two weeks. Keep finding it on my pillow in the morning, when I brush my hair....put in a ponytail or shower. I am on my 5th week of every other day b12 injections.....My question
Hi all..... I've posted a few times about my hair loss but I have to say I have noticed alot more has fallen out in the last two weeks. Keep finding it on my pillow in the morning, when I brush my hair....put in a ponytail or shower. I am on my 5th week of every other day b12 injections.....My question
mdoh1918
in
Pernicious Anaemia Society
7 years ago
Help understanding blood test results
Hi, My daughter has been suffering from hair loss, excessive weight gain and a range of other PCOS symptoms and recently had a scan which was clear but her blood tests showed 2 abnormal results : sex hormone binding globulin level 19.9 (ref range 32.4-128.0) and free androgen index 9 (ref range 0.0-4.0
Hi, My daughter has been suffering from hair loss, excessive weight gain and a range of other PCOS symptoms and recently had a scan which was clear but her blood tests showed 2 abnormal results : sex hormone binding globulin level 19.9 (ref range 32.4-128.0) and free androgen index 9 (ref range 0.0-4.0
walfoh
in
PCOS UK (Verity)
7 years ago
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