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Campaign for Changes
Firstly Happy New Year to you all. Just wanted to let you know about the work we are doing to raise awareness. We are launching a new epilepsy first aid campaign this year, and we continue to work around benefits, employment and the cost of living. You can keep up today with our campaigns work on
Firstly Happy New Year to you all. Just wanted to let you know about the work we are doing to raise awareness. We are launching a new epilepsy first aid campaign this year, and we continue to work around benefits, employment and the cost of living. You can keep up today with our campaigns work on
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
2 years ago
I’m scared
I have been diagnosed with autoimmune hepatitis and my consultant is saying that my most recent scan suggests more scaring than they previously thought . I need to stay on steroids now for longer and then reduce more slowly. My blood tests are all good and I feel well but this has scared me . I should
I have been diagnosed with autoimmune hepatitis and my consultant is saying that my most recent scan suggests more scaring than they previously thought . I need to stay on steroids now for longer and then reduce more slowly. My blood tests are all good and I feel well but this has scared me . I should
Olly_bb
in
British Liver Trust
2 years ago
Can levothyroxine cause breast enlargement?
Is it the hypothyroidism or the medication causing my growing breasts? I feel so uncomfortable.
Is it the hypothyroidism or the medication causing my growing breasts? I feel so uncomfortable.
Journeytobabyj
in
Thyroid UK
2 years ago
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Recommendation
I need advice under standing how to take my meds and supplements. I take omeprazole, (for gerd) Losartan 12.5 mg.(Blood pressure) Allegra 180mg ((Allergy) Multi Vitamin, B12 1000mg, zinc 50mg, Gentle Iron 25 mg, 1200 mg of Gabapentin, I also take a sleep aid either Tylenol PM, Advil PM, or Trazodone
I need advice under standing how to take my meds and supplements. I take omeprazole, (for gerd) Losartan 12.5 mg.(Blood pressure) Allegra 180mg ((Allergy) Multi Vitamin, B12 1000mg, zinc 50mg, Gentle Iron 25 mg, 1200 mg of Gabapentin, I also take a sleep aid either Tylenol PM, Advil PM, or Trazodone
Courtroad
in
Restless Legs Syndrome
2 years ago
Radiation Proctitis - comments from those that have been diagnosed with chronic (>6 months post radiation).
20 months following the end of my salvage radiation, I have been experiencing blood spotting after bowel movements and a preliminary dx indicates Radiation Proctitis may be the cause. This is disheartening given radiation was 20 months ago and I had no problems during or immediately after. Being sent
20 months following the end of my salvage radiation, I have been experiencing blood spotting after bowel movements and a preliminary dx indicates Radiation Proctitis may be the cause. This is disheartening given radiation was 20 months ago and I had no problems during or immediately after. Being sent
JRPnSD
in
Advanced Prostate Cancer
2 years ago
need urgent advice , please help
I have autoimmune hepatitis for several years started coming down from pred and got down to 1mg then 18 days ago got covid it’s flared liver inflammation and my specialist told me to go up to 10mg straight away for 7 days which I have, told me to keep in touch I’ve phoned hosp and haven’t had a phone
I have autoimmune hepatitis for several years started coming down from pred and got down to 1mg then 18 days ago got covid it’s flared liver inflammation and my specialist told me to go up to 10mg straight away for 7 days which I have, told me to keep in touch I’ve phoned hosp and haven’t had a phone
Eternity6
in
British Liver Trust
2 years ago
CPR Courses
There was an interesting post recently about training in resuscitation techniques. Inspired by this I contacted The Red Cross. Here's their reply, unfortunately no CPR training near to me, but for anyone in London, Salford, Edinburgh, or Belfast there's an opportunity to acquire a skill that might
There was an interesting post recently about training in resuscitation techniques. Inspired by this I contacted The Red Cross. Here's their reply, unfortunately no CPR training near to me, but for anyone in London, Salford, Edinburgh, or Belfast there's an opportunity to acquire a skill that might
Chappychap
in
British Heart Foundation
2 years ago
A study looking for Toronto PD patients called Transcranial Magnetic Stimulation (referred to as TMS)
The researcher for this study is looking for more participants if you are in the Toronto area. There is no compensation other than travelling costs. If you are interested please send me a PM with your name, email and phone number and I will provide that to the research team. The lead Neurologist is
The researcher for this study is looking for more participants if you are in the Toronto area. There is no compensation other than travelling costs. If you are interested please send me a PM with your name, email and phone number and I will provide that to the research team. The lead Neurologist is
Missy0202
in
Cure Parkinson's
2 years ago
Hair loss
Hi guys. i was diagnosed with SLE a couple weeks ago Over the last couple of months, but defo worst in the last couple of weeks, i have been losing so much hair and its showing up as patches on my scalp. Naturally i had very long thick curly hair and seeing the change has been really hard to cope with
Hi guys. i was diagnosed with SLE a couple weeks ago Over the last couple of months, but defo worst in the last couple of weeks, i have been losing so much hair and its showing up as patches on my scalp. Naturally i had very long thick curly hair and seeing the change has been really hard to cope with
nada28
in
LUPUS UK
2 years ago
Dihexa peptide shows potential for PD and ALZ and (I believe) is currently available
hypothesis, demonstrating that Dihexa, given by abdominal injection or orally, completely restored lost motor function. Moreover, staining for tyrosine hydroxylase (TH), a marker for the dopamine neurons that were lost following chemical lesioning, returned to near normal after 34 days of treatment.
hypothesis, demonstrating that Dihexa, given by abdominal injection or orally, completely restored lost motor function. Moreover, staining for tyrosine hydroxylase (TH), a marker for the dopamine neurons that were lost following chemical lesioning, returned to near normal after 34 days of treatment.
Little_apple
in
Cure Parkinson's
2 years ago
1st Recurrence: GemCarbo (gemcitabine and carboplatin)
Hi everyone I have my first recurrence (lucky for me localised lesion, detected early). Initial diagnoses: stage 4B peritoneal cancer Oct 2020. Way forward: surgery to remove the lesion then 6 cycles of GemCarbo (gemcitabine and carboplatin). Week 1 GemCarbo gemcitabine and carboplatin, week 2
Hi everyone I have my first recurrence (lucky for me localised lesion, detected early). Initial diagnoses: stage 4B peritoneal cancer Oct 2020. Way forward: surgery to remove the lesion then 6 cycles of GemCarbo (gemcitabine and carboplatin). Week 1 GemCarbo gemcitabine and carboplatin, week 2
Itha
in
My Ovacome
2 years ago
Hospice + private-equity = about what you'd expect
Massive fraud. Quotas for hospice marketers. (Yes, 70% of hospices are for-profit, and for them it's all about marketing.) Whistleblower lawsuits. Federal prosecutors going to work for the firms they prosecute. Patients not needing hospice signed up without their knowledge, depriving them of the curative
Massive fraud. Quotas for hospice marketers. (Yes, 70% of hospices are for-profit, and for them it's all about marketing.) Whistleblower lawsuits. Federal prosecutors going to work for the firms they prosecute. Patients not needing hospice signed up without their knowledge, depriving them of the curative
kapakahi
in
Advanced Prostate Cancer
2 years ago
Hi folks, I need help sourcing Tirosint, Please PM
Hi all, I'm based in Ireland, am post partial thyroidectomy and suffering. I don't tolerate binders and fillers in meds generally, as well as having food sensitivities etc. I'm looking to find an online source. My doctor isn't espeically understanding of my difficulties unfortunately. Please PM if
Hi all, I'm based in Ireland, am post partial thyroidectomy and suffering. I don't tolerate binders and fillers in meds generally, as well as having food sensitivities etc. I'm looking to find an online source. My doctor isn't espeically understanding of my difficulties unfortunately. Please PM if
Pastorbarrett
in
Thyroid UK
2 years ago
Two natural substances seem to help subclinical hypothyroidism
Make of this paper what you will. It claims that myo-inositol and selenium therapy can normalise TSH in subclinical hypothyroidism. I just mention it because it could possibly differentiate those with temporary SCH and those who are firmly on their way to overt hypothyroidism. Front. Endocrinol., 16
Make of this paper what you will. It claims that myo-inositol and selenium therapy can normalise TSH in subclinical hypothyroidism. I just mention it because it could possibly differentiate those with temporary SCH and those who are firmly on their way to overt hypothyroidism. Front. Endocrinol., 16
diogenes
in
Thyroid UK
2 years ago
coming off targinact
Hi All. I am very anxious at the moment as the NHS have a drive to get people off targinact 10/5 mg which has been a miracle worker for me. Also on a 2 mg rotigitine patch. Not sure what to expect when coming off and been given gabepentim to try. Tried pregabelim but was a shocker for side effects
Hi All. I am very anxious at the moment as the NHS have a drive to get people off targinact 10/5 mg which has been a miracle worker for me. Also on a 2 mg rotigitine patch. Not sure what to expect when coming off and been given gabepentim to try. Tried pregabelim but was a shocker for side effects
Gaz8630
in
Restless Legs Syndrome
2 years ago
Back with blood results, need your advice again please!
Hi Hope youre all well. After my last post i took the advice to stop all Thyroid medication as I was overmedicating. I took a 3 day break and started 100 mcg Levo only..its been just over 8 weeks. I have had my bloods done recently with 24hour gap from levo, i would really appreciate your advice on what
Hi Hope youre all well. After my last post i took the advice to stop all Thyroid medication as I was overmedicating. I took a 3 day break and started 100 mcg Levo only..its been just over 8 weeks. I have had my bloods done recently with 24hour gap from levo, i would really appreciate your advice on what
Umayya40
in
Thyroid UK
2 years ago
Quality of life?
Hi ladies, I have been on Carboplatin /Gemcitabine for first recurrence & then on Gemcitabine on its own for a year which was been used as maintenance. This has worked very well for me as, remaining nodes after my last op have decreased & my oncologist is very pleased with my recent Ct scan. On my
Hi ladies, I have been on Carboplatin /Gemcitabine for first recurrence & then on Gemcitabine on its own for a year which was been used as maintenance. This has worked very well for me as, remaining nodes after my last op have decreased & my oncologist is very pleased with my recent Ct scan. On my
Tulips66
in
My Ovacome
2 years ago
methotrexate hair loss
Hello All. Has anyone here found a solution to Methotrexate hair loss. I have been on it since 2012 and my fringe is now so scant and I have the equivalent of male pattern baldness. (I’m female!) Any ideas to thicken my hair would be welcome. Thanks in advance. Jayne
Hello All. Has anyone here found a solution to Methotrexate hair loss. I have been on it since 2012 and my fringe is now so scant and I have the equivalent of male pattern baldness. (I’m female!) Any ideas to thicken my hair would be welcome. Thanks in advance. Jayne
Jadite
in
NRAS
2 years ago
4th time lucky: an interesting appointment
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
pleural effusion
I just found out two days ago I have fluid on my right lung. I had one litre drained yesterday and I’m going next Tuesday to get more drained. Waiting for a CT scan. I was first diagnosed 3 years ago stage 3c. Had interval debulking and declared NED had 2 years on Olapaib. Has anyone any experience
I just found out two days ago I have fluid on my right lung. I had one litre drained yesterday and I’m going next Tuesday to get more drained. Waiting for a CT scan. I was first diagnosed 3 years ago stage 3c. Had interval debulking and declared NED had 2 years on Olapaib. Has anyone any experience
Purplerose12
in
My Ovacome
2 years ago
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