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Deferiprone and the Iron Connection
There's a new trial for Deferiprone for EU and UK patients. Unfortunately my dad isn't a candidate but it might be beneficial for those who have had a more recent diagnosis: http://www.fairpark2.eu/29-the-project/france/76-uk-patients There's not a lot of information on the iron/Parkinson's connection
There's a new trial for Deferiprone for EU and UK patients. Unfortunately my dad isn't a candidate but it might be beneficial for those who have had a more recent diagnosis: http://www.fairpark2.eu/29-the-project/france/76-uk-patients There's not a lot of information on the iron/Parkinson's connection
Dee1980
in
Cure Parkinson's
6 years ago
Liver biopsy and no answers!
Sorry I have not replied back to anyone but I have been having a pity party. All the anxiety and being so upset and afraid over the dam biopsy, I finally find the courage to go thinking I will finally have my answer. NOTHING....a big fat nothing. My biopsy only showed some abnormalities, nothing diagnostic
Sorry I have not replied back to anyone but I have been having a pity party. All the anxiety and being so upset and afraid over the dam biopsy, I finally find the courage to go thinking I will finally have my answer. NOTHING....a big fat nothing. My biopsy only showed some abnormalities, nothing diagnostic
Souppie
in
British Liver Trust
6 years ago
coarse skin in hands
Has anyone experienced very dry skin during treatment? I am leukeran +gazyva and my hands get very dry and coarse even treating them with hand cream
Has anyone experienced very dry skin during treatment? I am leukeran +gazyva and my hands get very dry and coarse even treating them with hand cream
CAGIULIANO
in
CLL Support
6 years ago
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10 months post heart attack
I’m at 10 months since my heart attack.............. This is my story, bit like a diary I guess, I hope it helps someone............. 51 years old Firefighter, active runner and cyclist, not big drinker, not overweight, stopped smoking 10 years ago, not that bad a diet, that was until 27th April when
I’m at 10 months since my heart attack.............. This is my story, bit like a diary I guess, I hope it helps someone............. 51 years old Firefighter, active runner and cyclist, not big drinker, not overweight, stopped smoking 10 years ago, not that bad a diet, that was until 27th April when
Carlobar
in
British Heart Foundation
6 years ago
Silly fall
Hi.. Silly blind me..slipped on the bathroom mat, hit the metal bottom of the shower stand, split the skin on my ankle..it took my breath away, swell right up and bled profusely because of the steroids I expect..So A&E..waited for 2h30mn, lucky I had done my own first aid.. GP wasn’t happy because they
Hi.. Silly blind me..slipped on the bathroom mat, hit the metal bottom of the shower stand, split the skin on my ankle..it took my breath away, swell right up and bled profusely because of the steroids I expect..So A&E..waited for 2h30mn, lucky I had done my own first aid.. GP wasn’t happy because they
Hidden
in
Lung Conditions Community Forum
6 years ago
Medication options
For the past 9 months I have been taking Coumadin from the UK because I cannot tolerate the US brands do to the fillers. I no longer can get it. Prof Hughes wanted me on Coumadin because he said the newer medications are not therapeutic. Is there a long acting Warfarin? Or any other options. Designer16
For the past 9 months I have been taking Coumadin from the UK because I cannot tolerate the US brands do to the fillers. I no longer can get it. Prof Hughes wanted me on Coumadin because he said the newer medications are not therapeutic. Is there a long acting Warfarin? Or any other options. Designer16
designer16
in
Hughes Syndrome APS Forum
6 years ago
Coming off thinners after 1 year
Hi, I had a DVT in thigh in December 2016 and due to length of time it took to disperse was kept on edoxoban 60mg for 6 months, then told to continue as I was having chest pains and they thought it was AF so to stay on thinners just in case. Today I saw the cardioliogist for a follow up and he said
Hi, I had a DVT in thigh in December 2016 and due to length of time it took to disperse was kept on edoxoban 60mg for 6 months, then told to continue as I was having chest pains and they thought it was AF so to stay on thinners just in case. Today I saw the cardioliogist for a follow up and he said
Hidden
in
Anticoagulation Support
6 years ago
Any suggestions
Hello greetings I'm 25 years old i have autoimmune hepatitis Primary sclerosing cholangitis overlapsyndrome I'm currently on prednisone 40 mg. I was on azathioprine 100 mg but my doctor stopped it because my blood haemoglobin levels drops. Don't know what to do. I'm from India and here have to
Hello greetings I'm 25 years old i have autoimmune hepatitis Primary sclerosing cholangitis overlapsyndrome I'm currently on prednisone 40 mg. I was on azathioprine 100 mg but my doctor stopped it because my blood haemoglobin levels drops. Don't know what to do. I'm from India and here have to
Manmeet_
in
British Liver Trust
6 years ago
Autoimmune hepatitis
Hi all, my name is Julie I’m 57. After years of infection of the liver and after a recent liver biopsy I have been diagnosed with autoimmune hepatitis. I’m on steroids for the liver and the consultant now wants me to go on azathprine to suppress my immune system but I have read up on them and not happy
Hi all, my name is Julie I’m 57. After years of infection of the liver and after a recent liver biopsy I have been diagnosed with autoimmune hepatitis. I’m on steroids for the liver and the consultant now wants me to go on azathprine to suppress my immune system but I have read up on them and not happy
Julie_ann_1960
in
British Liver Trust
6 years ago
Advice on B12 complex please.
Hi Everyone, I would just like some advice on taking B12 complex please. Just wondering if this is usually necessary long term if someone is self injecting B12 which I am. At the moment I am taking Swansons B12 which does have Biotin in it. I am wondering if Biotin is needed. i mainly started taking
Hi Everyone, I would just like some advice on taking B12 complex please. Just wondering if this is usually necessary long term if someone is self injecting B12 which I am. At the moment I am taking Swansons B12 which does have Biotin in it. I am wondering if Biotin is needed. i mainly started taking
Cn13
in
Pernicious Anaemia Society
6 years ago
Heparin to Warfarin Bridging
Hi, I recently came out of surgery and was given heparin injections (came off warfarin in advance of the surgery). I am now being bridged back to warfarin. I'm injecting 15,000 single doses of heparin while "reloading" my warfarin. The warfarin dosage is 12 mg. I have to do this for 3 days, and then
Hi, I recently came out of surgery and was given heparin injections (came off warfarin in advance of the surgery). I am now being bridged back to warfarin. I'm injecting 15,000 single doses of heparin while "reloading" my warfarin. The warfarin dosage is 12 mg. I have to do this for 3 days, and then
1818hst
in
Hughes Syndrome APS Forum
6 years ago
Pleural effusion
Hi ladies Just wondering if anyone out there has had a pleural effusion and had it drained and a pleurodesis done. I have just had it done and was expecting to be able to breath normally once the fluid was drained. Its now two days after the drain came out still struggling with breathing heart rate resting
Hi ladies Just wondering if anyone out there has had a pleural effusion and had it drained and a pleurodesis done. I have just had it done and was expecting to be able to breath normally once the fluid was drained. Its now two days after the drain came out still struggling with breathing heart rate resting
Wiganw
in
My Ovacome
6 years ago
CFX ( chromogenic Factor X) Assay
*I’m including my results on a few draws compared in IV vein value draws, as well as coagucheck Finger prick values. This , my hematologist, confirms I’m likely now Lupus Anticoagulant Antibody Positive as well. ( likely I’ve “picked up “ the third anti body.) I was origionaly only positive for aCL
*I’m including my results on a few draws compared in IV vein value draws, as well as coagucheck Finger prick values. This , my hematologist, confirms I’m likely now Lupus Anticoagulant Antibody Positive as well. ( likely I’ve “picked up “ the third anti body.) I was origionaly only positive for aCL
KellyInTexas
Administrator
in
Hughes Syndrome APS Forum
6 years ago
13k
Feeling a bit snoozy right now (think it’s the underactive thyroid making itself known) so this will be a very brief post. This morning’s Canicross run was practically on my doorstep, but I had to do some advance planning so that I could do the 13k that MyAsics wanted me to, instead of the 8k that
Feeling a bit snoozy right now (think it’s the underactive thyroid making itself known) so this will be a very brief post. This morning’s Canicross run was practically on my doorstep, but I had to do some advance planning so that I could do the 13k that MyAsics wanted me to, instead of the 8k that
Maddee_6333
Graduate10
in
Bridge to 10K
6 years ago
Zombie!
Hi there, I'm Steph, 41, and a scoliosis sufferer. I've tried many meds on the scale and Am currently on 200 pregab morning and night. And 30mg zomorph morning and night. I have finally found a level that combats my pain which is excellent. However, I get home of an evening and am completely useless.
Hi there, I'm Steph, 41, and a scoliosis sufferer. I've tried many meds on the scale and Am currently on 200 pregab morning and night. And 30mg zomorph morning and night. I have finally found a level that combats my pain which is excellent. However, I get home of an evening and am completely useless.
thepinkplasterer
in
Endometriosis UK
6 years ago
Rivaroxaban
Being put on a trial of Rivaroxaban. Have done a little research and here’s hoping this will help me. Been told no INR testing etc. But cannot find much info to tell me if it is as effective as warfarin??
Being put on a trial of Rivaroxaban. Have done a little research and here’s hoping this will help me. Been told no INR testing etc. But cannot find much info to tell me if it is as effective as warfarin??
Jules23
in
Hughes Syndrome APS Forum
6 years ago
Restless Legs Syndrome and Zoloft.
I've been on and off Zoloft for years. I find it wonderful. But earlier this year I found myself with restless legs. Awful. So i suspected it was Zoloft and got off it. Recently I had a really stressful time, I was mobbed by anxiety and felt too depressed so I went back on it. It was such a relief. But
I've been on and off Zoloft for years. I find it wonderful. But earlier this year I found myself with restless legs. Awful. So i suspected it was Zoloft and got off it. Recently I had a really stressful time, I was mobbed by anxiety and felt too depressed so I went back on it. It was such a relief. But
Rockercover
in
Restless Legs Syndrome
6 years ago
Proscar vs. Propecia
Both of these drugs are Finasteride. 1mg. for male pattern baldness, and 5mg. for PCa. Assuming you're a healthy man, can the Propecia, 1mg., affect your PSA enough to lower it to almost nil numbers? F
Both of these drugs are Finasteride. 1mg. for male pattern baldness, and 5mg. for PCa. Assuming you're a healthy man, can the Propecia, 1mg., affect your PSA enough to lower it to almost nil numbers? F
Frankenski
in
Advanced Prostate Cancer
6 years ago
Hair Loss
Quite a few of us, on this forum and other sites, have mentioned how much hair loss they have suffered. My hair has always been fine and thin but with PBC and age the top of my head is sparse to the point where it worries me especially when there are strong ceiling lights. I have been investigating
Quite a few of us, on this forum and other sites, have mentioned how much hair loss they have suffered. My hair has always been fine and thin but with PBC and age the top of my head is sparse to the point where it worries me especially when there are strong ceiling lights. I have been investigating
butterflyEi
in
PBC Foundation
6 years ago
Selenium/Inositol & TSH
I have got a bit of a stupid question! I am considering supplementing with Selenium & Inositol as there have been studies that it lowers TPO antibodies and TSH. However, my TSH is 0.027 so doesn't need to be any lower so what would happen? Would it be dangerous in any way?
I have got a bit of a stupid question! I am considering supplementing with Selenium & Inositol as there have been studies that it lowers TPO antibodies and TSH. However, my TSH is 0.027 so doesn't need to be any lower so what would happen? Would it be dangerous in any way?
infomaniac
in
Thyroid UK
6 years ago
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