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Right Sided Pacemaker
I had a pacemaker inserted last year for sick sinus syndrome. Unfortunately it got infected and had to be removed. I found the whole thing very traumatic. Unfortunately had a four hour episode of low heart rate the other evening so might have to reconsider having another fitted which of course would
I had a pacemaker inserted last year for sick sinus syndrome. Unfortunately it got infected and had to be removed. I found the whole thing very traumatic. Unfortunately had a four hour episode of low heart rate the other evening so might have to reconsider having another fitted which of course would
Flutterbird
in
AF Association
2 years ago
Memory book
Has anyone made a memory book to help with a loved one's brain injury? If so do you think it helped? What did it consist of? I've collected a load of photographs but wondered if anything else would be helpful. Hubby still in hospital after a traumatic injury 6 months ago. He is very interactive but
Has anyone made a memory book to help with a loved one's brain injury? If so do you think it helped? What did it consist of? I've collected a load of photographs but wondered if anything else would be helpful. Hubby still in hospital after a traumatic injury 6 months ago. He is very interactive but
Eltonsilver
in
Headway
2 years ago
Home Hemodialysis Dialysis Experience
NKF is looking for people currently on home hemodialysis (patients and caregivers!) to share their experience with one of our partners in a 1 hour zoom interview. Compensation for your time will be provided! If interested, please sign up here: https://www.surveymonkey.com/r/J8F2G7H
NKF is looking for people currently on home hemodialysis (patients and caregivers!) to share their experience with one of our partners in a 1 hour zoom interview. Compensation for your time will be provided! If interested, please sign up here: https://www.surveymonkey.com/r/J8F2G7H
KelliC_NKF
in
Kidney Dialysis
2 years ago
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Desmopressin stopped working
Hi there, this is my first time posting, and I'm hoping others in similar situations can share advice. My 11 year old son still wets the bed. He's been using desmopressin and an alarm since October. Initially things got better (waking up sooner when the alarm sounded, and fewer wet nights) to the point
Hi there, this is my first time posting, and I'm hoping others in similar situations can share advice. My 11 year old son still wets the bed. He's been using desmopressin and an alarm since October. Initially things got better (waking up sooner when the alarm sounded, and fewer wet nights) to the point
CherryRose13
in
ERIC
2 years ago
The PSP-CBD Ice Cream Challenge Day 29
Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The 'blue' jeans get their colour from a mixture of flour and blue food colouring, belt from Smucker's chocolate magic shell (hair also), shoes - chocolate
Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The 'blue' jeans get their colour from a mixture of flour and blue food colouring, belt from Smucker's chocolate magic shell (hair also), shoes - chocolate
daddyt
in
PSP Association
2 years ago
Besremi and Phlebotomy
Hello, I had my first PB last week since starting Besremi (January 2022). Besremi is doing great job on my WBC and PLT, but the HCT has climbed above my goal of 42. I waited two extra weeks hoping a higher dose at 110 might knock it down a bit, but no luck. At Hunter's suggestion, HEM approved 250
Hello, I had my first PB last week since starting Besremi (January 2022). Besremi is doing great job on my WBC and PLT, but the HCT has climbed above my goal of 42. I waited two extra weeks hoping a higher dose at 110 might knock it down a bit, but no luck. At Hunter's suggestion, HEM approved 250
Elizka
in
MPN Voice
2 years ago
Back once again with the renegade runner....
Here I am again learning to run for probably the 6th or 7th time. I was out due to injury - a broken hand which meant they advised me not to run for 12 weeks, followed by covid hitting the week I should have been back. Back to the drawing board for me! I've enough residual fitness to start again from
Here I am again learning to run for probably the 6th or 7th time. I was out due to injury - a broken hand which meant they advised me not to run for 12 weeks, followed by covid hitting the week I should have been back. Back to the drawing board for me! I've enough residual fitness to start again from
Eletheelephant
Graduate
in
Couch to 5K
2 years ago
Withholding help!
We are on our 5th day of maximum laxido sachets for dissimpaction for my 3 year old and she is still withholding constantly. So far, she will only poo when fast asleep and unaware. I keep trying to explain to the gp that maybe if she poos whilst awake, I can help reassure her it doesn't hurt and break
We are on our 5th day of maximum laxido sachets for dissimpaction for my 3 year old and she is still withholding constantly. So far, she will only poo when fast asleep and unaware. I keep trying to explain to the gp that maybe if she poos whilst awake, I can help reassure her it doesn't hurt and break
Staino1990
in
ERIC
2 years ago
Anyone Taking Linaclotide?
I have been following this forum for awhile but this is my first post. I started Linaclotide a few months ago (first at 145, then a week ago was upped to 290 as I have a very stubborn case of IBS-C). It does seem to be giving me some relief in terms of the gas, pain, and severe bloating I have, but it's
I have been following this forum for awhile but this is my first post. I started Linaclotide a few months ago (first at 145, then a week ago was upped to 290 as I have a very stubborn case of IBS-C). It does seem to be giving me some relief in terms of the gas, pain, and severe bloating I have, but it's
Hidden
in
IBS Network
2 years ago
Have I got IBS?
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Allot
in
IBS Network
2 years ago
Update on “20 years old and Scared”
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Lc06091
in
MPN Voice
2 years ago
PATHOLOGICAL CRYING
"Pathologic tearfulness (emotional incontinence) is a disorder of emotional expression rather than a primary disturbance of feelings." It's not you - it's your brain injury. I cry easy - too easy. I often lose credibility with the doctor when it happens to me. The imbalance of power in the exam room
"Pathologic tearfulness (emotional incontinence) is a disorder of emotional expression rather than a primary disturbance of feelings." It's not you - it's your brain injury. I cry easy - too easy. I often lose credibility with the doctor when it happens to me. The imbalance of power in the exam room
SilentEchoes
in
Cure Parkinson's
2 years ago
Tips on reducing regular bouts of diarrhea.
Still waiting for a diagnosis. 8 days diarrhea, stopped 5 days later 4 days diarrhea. GP told me to wait until I see a consultant, which could be months away. Any tips to reduce this happening on such a regular basis. Living on dry toast and Imodium at the moment.
Still waiting for a diagnosis. 8 days diarrhea, stopped 5 days later 4 days diarrhea. GP told me to wait until I see a consultant, which could be months away. Any tips to reduce this happening on such a regular basis. Living on dry toast and Imodium at the moment.
wb54
in
IBS Network
2 years ago
Injury years after fibromyalgia diagnosis
So I am already diagnosed with fibro, I hadn’t had a flare for a long time so managed to go back to part time work as a learning assistant Unfortunately yesterday I took a blow to the head with a close contact and hard leather football causing mild concussion and whiplash My body is now in major flare
So I am already diagnosed with fibro, I hadn’t had a flare for a long time so managed to go back to part time work as a learning assistant Unfortunately yesterday I took a blow to the head with a close contact and hard leather football causing mild concussion and whiplash My body is now in major flare
Yara1
in
Fibromyalgia Action UK
2 years ago
First Visit With My MPN Specialist!
Oh my goodness! There was no comparison to the level of care I’ve been receiving and what I experienced today. Thank you all so much for encouraging me to see a specialist. Special shout outs to Hunter and EP Guy! I went to UNC Chapel Hill Cancer Hospital. I saw Dr Brandi Reeves. She was amazing
Oh my goodness! There was no comparison to the level of care I’ve been receiving and what I experienced today. Thank you all so much for encouraging me to see a specialist. Special shout outs to Hunter and EP Guy! I went to UNC Chapel Hill Cancer Hospital. I saw Dr Brandi Reeves. She was amazing
Barbiebreath
in
MPN Voice
2 years ago
Struggling after emergency surgery
Hi everyone I had emergency surgery in December for a blocked intestine I don’t remember much so assume i was in and out of consciousness I was in intensive care for 7 days then moved to a ward it was only then that I knew what had happened to me. I was on the ward for 3 days and then rushed back to
Hi everyone I had emergency surgery in December for a blocked intestine I don’t remember much so assume i was in and out of consciousness I was in intensive care for 7 days then moved to a ward it was only then that I knew what had happened to me. I was on the ward for 3 days and then rushed back to
dippy111
in
ICUsteps
2 years ago
Stiff person syndrome
Intriguing articles. Can be confused with PD https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome https://rarediseases.org/rare-diseases/stiff-person-syndrome/ “General Discussion Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive
Intriguing articles. Can be confused with PD https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome https://rarediseases.org/rare-diseases/stiff-person-syndrome/ “General Discussion Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive
LAJ12345
in
Cure Parkinson's
2 years ago
Week 8 Run 2
Rain was bouncing of the ground this morning so this was the first time since starting c25k where I actually wondered... Do I even have shorts that still fit me? It's a bit of nuisance trying to keep track bottoms from ending up round your knees once they're soaked. There is one pair but hmmm... I
Rain was bouncing of the ground this morning so this was the first time since starting c25k where I actually wondered... Do I even have shorts that still fit me? It's a bit of nuisance trying to keep track bottoms from ending up round your knees once they're soaked. There is one pair but hmmm... I
BrokeyNotSoBusted
Graduate
in
Couch to 5K
2 years ago
Help! What to do after faecal disimpaction
Hello, I'm new to this chat. I have a 3 year old who is currently going through faecal disimpaction. We are on about day 3, seems to be going according to plan. My question is, once all the blocked up poo has been removed and he poo is watery/bitty, can I just encourage lots of fluids and give him prune
Hello, I'm new to this chat. I have a 3 year old who is currently going through faecal disimpaction. We are on about day 3, seems to be going according to plan. My question is, once all the blocked up poo has been removed and he poo is watery/bitty, can I just encourage lots of fluids and give him prune
Mumuk
in
ERIC
2 years ago
Hi, Does anyone have any long-term experience of using high-fiber Psyllium capsules for IBS constipation?
I have just started using them and they seem to help with bowel movements although I am unsure about bloating and abdominal pain!
I have just started using them and they seem to help with bowel movements although I am unsure about bloating and abdominal pain!
Lewis_mackenzie
in
IBS Network
2 years ago
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