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69 public communities
JIA-at-NRAS
392 members
This community is for anyone affected by the condition, Juvenile Idiopathic Arthritis (JIA). It is run by the National Rheumatoid Arthritis Society (NRAS) and HealthUnlocked and exists to help you find support and information from other people living with or affected by JIA. This is an independent, patient led, forum so please take time to read our community guidelines which you can read under ‘Pinned Posts’. NRAS are a UK based charity providing support, information, and advocacy for people with juvenile idiopathic arthritis and rheumatoid arthritis, their families, friends, and carers. Our vision is for everyone with JIA (Juvenile Idiopathic Arthritis) and RA (Rheumatoid Arthritis) to be able to live their life to the full. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines: 0800 298 7650 or email helpline@nras.org.uk Free information booklets are available for download or to order as hardcopy from our online shop, visit www.jia.org.uk/shop to get your copies of JIA Explained, Managing JIA in schools, Medicines in Juvenile Idiopathic Arthritis.
Epilepsy Australia
173 members
Epilepsy Australia is the national coalition of Australian Epilepsy Associations raising our voices as one to advance the cause of all Australians living with epilepsy. Actively delivering counseling, support and information to all who access our services, Epilepsy Australia is committed to raising awareness and understanding of the very real issues faced by those living with epilepsy. The unpredictable nature of seizures can force people to stay at home, fearful of a seizure occurring in public. Would you know what to do if you saw someone having a seizure? A goal of Epilepsy Australia is for every household in Australia to be seizure aware. Our challenge is to build on the success of our Seizure First Aid Awareness Campaign where more than 20,000 Seizure First Aid Kits were delivered to households Australia-wide.
Vasculitis UK
7,842 members
Vasculitis UK is the UK's number one Vasculitis charity, run by people with Vasculitis for people with Vasculitis. We promote a national network of support groups, have a website, social media resources and a near 24 hour helpline that all help the trust to achieve its aims; offering support to sufferers, their families and friends both at home and abroad by providing information, advice and the means to contact each other. We work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of Vasculitis. We raise awareness of Vasculitis among medical professions and the general population. We encourage and support the formation and development of local independant Vasculitis support groups. We raise funds in order to support research into the causes and effects of vasculitis, into improvements in the diagnosis of vasculitis and into the treatment of people suffering from all the different types of vasculitis.
MY SKIN
8,707 members
Welcome to the MY SKIN Community, a peer support community for those experiencing issues with their skin. Join us to share your story and experiences, ask questions, and support others. Connect with others like you today and get real opinions from others who have experienced similar conditions. Anyone needing help or support from a patient organisation can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Anxiety Support
53,416 members
Anxiety Support helps people with general anxiety and anxiety from health related reasons. Facilitated by Malecare, one of the world's leading patient support nonprofit organizations. Our group provides a sense of belonging with others in similar situations and to be able to chat and learn with a community of like minds. Members here have a wide range of different experiences and backgrounds. Anyone needing in-person or immediate help or support from a patient organization can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Functional Neurological Disorder - FND Hope
5,816 members
FND Hope supports patients and families impacted by Functional Neurological Disorder. We advocate for the men, women, and children who have had their lives turned upside down with physical and often debilitating symptoms. Many of which, were sent home with little information and the reassurance that it will go away on its own. We give FND patients a voice, we lend them our ear. We give everyone a place to call their own and a place to feel secure. We give our members the courage to keep going and the strength they need to endure each day. Most of all… We give them hope.
Restless Legs Syndrome
22,149 members
Welcome to the European Alliance for Restless Legs Syndrome (EARLS) and RLS-UK forum. Learn more about us at www.earls.eu and www.rls-uk.org
Hot Yoga Society
167 members
We’re London’s biggest community of happy hot yoga lovers, brought together by our passion for staying fit, feeling great, and putting hot yoga at the centre of a healthy lifestyle, for the body and mind.
Unsalted Heart
538 members
Being heart healthy is more than just watching Saturated and Trans fats. If you have too much sodium/salt in your diet, it can continue to put you at risk for heart disease. Join the conversation to learn more!
Erectile Dysfunction Support
2,052 members
A friendly, informal atmosphere for restoring erections and sexual enjoyment. No topic is off bounds. Pick each other's brains. Our 24 hour online support group. Talking about erectile dysfunction is a powerful tool. Our community is run by Malecare Cancer Support, but this community is not at all limited to cancer survivors.
Prostate Cancer Caregivers
894 members
Welcome to caregivers currently caring for loved ones with PCa. Spouses and partners...a safe, caring community for all of us. It's OK to think of "me." You can't help the man you love if you don't take care of yourself, too. Sign up for our newsletter at https://malecare.org/prostate-cancer-newsletter/
National Foundation for Transplants
306 members
At the National Foundation for Transplants, our goal is to ensure that transplant patients are given every opportunity to fully enjoy the gift of life. Since 1983, NFT has offered fundraising support and expertise to transplant patients across the country. In that time, we have helped generate nearly $65 million to assist patients in need.
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