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Hello everyone
hi, I am currently going through the motions after my diagnosis with lupus and i am finding it hard to get people to understand my condition, its been 15 years since I started with my symptoms and its has had a detrimental impact on my life and my mental health, the fatigue and the amount of sleep I
hi, I am currently going through the motions after my diagnosis with lupus and i am finding it hard to get people to understand my condition, its been 15 years since I started with my symptoms and its has had a detrimental impact on my life and my mental health, the fatigue and the amount of sleep I
BikerDanny
in
LUPUS UK
2 years ago
Blockage or reoccurrence worry
Afternoon you lovely lot. Hope everyone is keeping well. Been a while since I’ve posted about Mum, mainly as she has been doing so fantastic. Bit of a worry today though, she’s been having ‘wind type’ pain on and off for a week or 2, she had it quite bad in the night last night and she was also sick
Afternoon you lovely lot. Hope everyone is keeping well. Been a while since I’ve posted about Mum, mainly as she has been doing so fantastic. Bit of a worry today though, she’s been having ‘wind type’ pain on and off for a week or 2, she had it quite bad in the night last night and she was also sick
LouieB123
in
My Ovacome
2 years ago
Really wet nights - 9 year old
We are struggling with how to help our 9 year old (very soon 10) - he has primary enuresis. He is getting very conscious of his wet nights. We have just been camping for 4 nights and 3/4 he was wet so much it came through everything (he wears a drynite) and through to his air bed. The drynites are
We are struggling with how to help our 9 year old (very soon 10) - he has primary enuresis. He is getting very conscious of his wet nights. We have just been camping for 4 nights and 3/4 he was wet so much it came through everything (he wears a drynite) and through to his air bed. The drynites are
Phoenix78
in
ERIC
2 years ago
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colonoscopy and moviprep
After having stomach and bowel issues for many years .Raised calprotectin of 105 and 117 and awaiting my 3rd calprotectin result,? I am booked for a colonoscopy Saturday. ive been given Moviprep and hesrd awful stories about this stuff. i havd been panicking all week and as prep day approaches im
After having stomach and bowel issues for many years .Raised calprotectin of 105 and 117 and awaiting my 3rd calprotectin result,? I am booked for a colonoscopy Saturday. ive been given Moviprep and hesrd awful stories about this stuff. i havd been panicking all week and as prep day approaches im
Paula1710
in
IBS Network
2 years ago
2.5 year old potty refusal and wee holding up to 9 hours
new to this. hoping post makes it to ERIC site. have emailled for help but 4 week expected wait for response! myself and husband have been potty training in the hot weather 6 days now. Initially son did really well. naked waist down day. sat on potty, played, books, fun. did wee on potty then sat with
new to this. hoping post makes it to ERIC site. have emailled for help but 4 week expected wait for response! myself and husband have been potty training in the hot weather 6 days now. Initially son did really well. naked waist down day. sat on potty, played, books, fun. did wee on potty then sat with
going_potty
in
ERIC
2 years ago
EDACand Bramitob
I’m taking Bramitob (28 day on/off cycle) to try and kill pseudomonas that pops up every 6 weeks or so due to my bronchiectasis. I have trouble clearing my lungs because of my lungs EDAC, and forced expiration is so bad for me. Unfortunately I am experiencing the side effects of Bramitob, one of it being
I’m taking Bramitob (28 day on/off cycle) to try and kill pseudomonas that pops up every 6 weeks or so due to my bronchiectasis. I have trouble clearing my lungs because of my lungs EDAC, and forced expiration is so bad for me. Unfortunately I am experiencing the side effects of Bramitob, one of it being
Shrimpy-13-22-25
in
Lung Conditions Community Forum
2 years ago
Body Responses to Home Hemodialysis
What makes me so very sleepy after home hemodialysis? Why have my legs become very soft since dialysis? I can't walk.
What makes me so very sleepy after home hemodialysis? Why have my legs become very soft since dialysis? I can't walk.
wrester
in
Kidney Disease
2 years ago
a "year"
well,yesterday was exactly a year since i first saw my boy after his horrible accident.some of you will recall that i was unable to see him for 17 weeks due to covid/restrictions in h.d.u ward at hospital.he had been transffered to nuero unit from hospital.i remember how terrified i was on my way there
well,yesterday was exactly a year since i first saw my boy after his horrible accident.some of you will recall that i was unable to see him for 17 weeks due to covid/restrictions in h.d.u ward at hospital.he had been transffered to nuero unit from hospital.i remember how terrified i was on my way there
Dogsabighelp
in
Headway
2 years ago
Same old same old
Well here I am again still stuck in fatigued and stiff sore body trying to just drag myself on. It been 3 mths since my synatchen test that was normal. So still just trying to get down on the steroids and don’t feel any different . Don’t know if it’s post covid , flair, steroid withdrawal ( doing 1/
Well here I am again still stuck in fatigued and stiff sore body trying to just drag myself on. It been 3 mths since my synatchen test that was normal. So still just trying to get down on the steroids and don’t feel any different . Don’t know if it’s post covid , flair, steroid withdrawal ( doing 1/
Avadip12
in
PMRGCAuk
2 years ago
S.A.D. help
Hey everyone! I have some seasonal affective Depression. It is worse in the dark winter months, but it starts to get better around March. However, this year my area has been hit with late snow, and wind for the past week-and-a-half. I have been doing pretty well, and excited to think that "Spring"
Hey everyone! I have some seasonal affective Depression. It is worse in the dark winter months, but it starts to get better around March. However, this year my area has been hit with late snow, and wind for the past week-and-a-half. I have been doing pretty well, and excited to think that "Spring"
SurvivingEveryday
in
Mental Health Support
2 years ago
How to build support around you during a cycle?
I'm struggling a lot this cycle - more than I expected. I know the drugs make me feel low and anxious but I'm feeling so lonely during the process, and pretty let down by friends and family. We've been through this many times before and were super lucky to have had my daughter (now 20 months) through
I'm struggling a lot this cycle - more than I expected. I know the drugs make me feel low and anxious but I'm feeling so lonely during the process, and pretty let down by friends and family. We've been through this many times before and were super lucky to have had my daughter (now 20 months) through
lmno
in
Fertility Network UK
2 years ago
Constipation suggestions
Anyone have any suggestions for chronic constipation? Have tried numerous things without success. Thinking of trying Dulcolex and would be grateful for any opinions on this medication. Oh, and also Linaclotide which can only be prescribed. Thank you.
Anyone have any suggestions for chronic constipation? Have tried numerous things without success. Thinking of trying Dulcolex and would be grateful for any opinions on this medication. Oh, and also Linaclotide which can only be prescribed. Thank you.
Harley1020
in
IBS Network
2 years ago
Unknown Condition
It’s been 24 years since I found out that I have McCune Albright Syndrome/Fibrous dysplasia. This is a very rare condition affecting my bones and endocrine system (Hormones). I have fibrous dysplasia in my head, face, jaw and it’s taken away most of my front teeth. I have a disfigurement although I don
It’s been 24 years since I found out that I have McCune Albright Syndrome/Fibrous dysplasia. This is a very rare condition affecting my bones and endocrine system (Hormones). I have fibrous dysplasia in my head, face, jaw and it’s taken away most of my front teeth. I have a disfigurement although I don
Leeds1968
in
Changing Faces
2 years ago
Still worried
I'm still worried after 8months and having ultrasound scans, blood rests, fit tests and others and all are OK results but I'm still having the lower left side bowel pain, I've had 2 colonoscopies in 2017 and the end of 2019 and were clear and ok apart from gas but am i still best having another bowel
I'm still worried after 8months and having ultrasound scans, blood rests, fit tests and others and all are OK results but I'm still having the lower left side bowel pain, I've had 2 colonoscopies in 2017 and the end of 2019 and were clear and ok apart from gas but am i still best having another bowel
Calamity64
in
IBS Network
2 years ago
New post, old member
Good Morning I should apologise for not being a bit more proactive on this site. I suffered a TBI caused by an AVM 2 years ago (this caused a subarachnoid hemmorage) this has left me with permanent double vision and a balance problem. I spent 4 months in hospital, only left there because I forced it
Good Morning I should apologise for not being a bit more proactive on this site. I suffered a TBI caused by an AVM 2 years ago (this caused a subarachnoid hemmorage) this has left me with permanent double vision and a balance problem. I spent 4 months in hospital, only left there because I forced it
timd59
in
Headway
2 years ago
3 Peg injections later
Hi My Friends! I hope everyone is doing well! Its been very hot and humid, here. I don’t appreciate it! LOL. I have had 3 Peg injections and have my 4th this Friday. I am finding that my energy levels have plummeted. I am feeling weak and getting breathless with little activity. My HCT was 43.7 a week
Hi My Friends! I hope everyone is doing well! Its been very hot and humid, here. I don’t appreciate it! LOL. I have had 3 Peg injections and have my 4th this Friday. I am finding that my energy levels have plummeted. I am feeling weak and getting breathless with little activity. My HCT was 43.7 a week
Wewo01
in
MPN Voice
2 years ago
whats happing to hubby he was improving so well last month
hiya all my hubby had a hypoxic brain injury about 15months ago last month he was improving so much like talking walkin was more aware of himself and everyone but all of a sudden his stopped talking walking is not really intrested in anything just wants to sleep all the time has stopped using his mobile
hiya all my hubby had a hypoxic brain injury about 15months ago last month he was improving so much like talking walkin was more aware of himself and everyone but all of a sudden his stopped talking walking is not really intrested in anything just wants to sleep all the time has stopped using his mobile
fity123r
in
Headway
2 years ago
How common is bezoar in PD?
Bezoar is a concretion of food in the abdomen. Photos resemble cannon balls. One sign of a bezoar is gastroparesis: Stomach emptying very slowly. I don't have the common signs of PD; No slowness or freezing in place . I have constipation. In two weeks I have to swallow a "Smart Pill" which
Bezoar is a concretion of food in the abdomen. Photos resemble cannon balls. One sign of a bezoar is gastroparesis: Stomach emptying very slowly. I don't have the common signs of PD; No slowness or freezing in place . I have constipation. In two weeks I have to swallow a "Smart Pill" which
kaypeeoh
in
Cure Parkinson's
2 years ago
Moviprep colonoscopy with IBS constipation
Hello, I'm having a colonoscopy in 2 days time and really worried moviprep is not going to work and make things even worse with my chronic constipation. Any experiences with moviprep and chronic constipation? Thank you for reading
Hello, I'm having a colonoscopy in 2 days time and really worried moviprep is not going to work and make things even worse with my chronic constipation. Any experiences with moviprep and chronic constipation? Thank you for reading
Bluemon75
in
IBS Network
2 years ago
Adventures in anal probing...
I saw a new doc today for gastroparesis. She said my diet is the worst and a big cause of my gastric problems. I need to swallow a "Smart Pill" which will travel through my guts recording things and I need an anal probe which will measure the muscle contractions of my colon and rectum. We had
I saw a new doc today for gastroparesis. She said my diet is the worst and a big cause of my gastric problems. I need to swallow a "Smart Pill" which will travel through my guts recording things and I need an anal probe which will measure the muscle contractions of my colon and rectum. We had
kaypeeoh
in
Cure Parkinson's
2 years ago
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