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Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
8 months ago
Swollen painful hand
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
noslak
in
PMRGCAuk
8 months ago
Preventing IBS diarrhea before plane travel
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
MrsSJO
in
IBS Network
9 months ago
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Monocular Vision Pain
Good evening, I lost sight in my right eye from a freak accident in January. I'm having constant eye pain in the good eye, I have seen many consultants that have examined the eye and unable to identify anything that could be causing the pain. I use eye drops daily, eye gel and many pain killers
Good evening, I lost sight in my right eye from a freak accident in January. I'm having constant eye pain in the good eye, I have seen many consultants that have examined the eye and unable to identify anything that could be causing the pain. I use eye drops daily, eye gel and many pain killers
ItsBrandon
in
Pain Concern
9 months ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
10 months ago
bed wetting has stopped but now child is highly emotional?
hi, just wondering if anyone here that’s had a child that wets the bed had any emotional problems when they stopped? I certainly didn’t expect that stopping bed wetting would cause us any problems 🤦🏼♀️. So this last wee my 9 year old girl has been dry at night. Great news… but now she’s so emotional
hi, just wondering if anyone here that’s had a child that wets the bed had any emotional problems when they stopped? I certainly didn’t expect that stopping bed wetting would cause us any problems 🤦🏼♀️. So this last wee my 9 year old girl has been dry at night. Great news… but now she’s so emotional
Skyfullofstars1
in
ERIC
10 months ago
Dental problems
I have over the past couple of years had trouble with a dry burning mouth , which has caused gum problems which I have never had before also just recently my eyes have been very dry and itchy does anyone else suffer with these symptoms are they another Fibromyalgia gift !
I have over the past couple of years had trouble with a dry burning mouth , which has caused gum problems which I have never had before also just recently my eyes have been very dry and itchy does anyone else suffer with these symptoms are they another Fibromyalgia gift !
Thornthorpe
in
Fibromyalgia Action UK
11 months ago
Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
11 months ago
one final chance of survival
hi, Yesterday I posted an update about my mum and her icu journey. I have a further update I would like to share. From her ct the original infection is finally clearing up. She has a lot of fluid around her lungs and pneumonia at the bottom that the antibiotics are not clearing. They said the chance
hi, Yesterday I posted an update about my mum and her icu journey. I have a further update I would like to share. From her ct the original infection is finally clearing up. She has a lot of fluid around her lungs and pneumonia at the bottom that the antibiotics are not clearing. They said the chance
Westbeginners1
in
ICUsteps
11 months ago
Exhaustion
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Lili6
in
British Liver Trust
11 months ago
Chronic pain research
Teesside University are recruiting individuals with chronic pain to take part in an online study as part of my doctorate thesis. The aim of the study is to investigate the relationship between injustice, unfair treatment, and chronic pain. You can participate automatically by accessing the study link
Teesside University are recruiting individuals with chronic pain to take part in an online study as part of my doctorate thesis. The aim of the study is to investigate the relationship between injustice, unfair treatment, and chronic pain. You can participate automatically by accessing the study link
pain_researcher
Researcher
in
Pain Concern
11 months ago
Diverticulitis, hemerrhoids (?), fissure (?), bleeding
Hello. After a pretty unusual bout of diverticulitis diagnosed by a CT scan, I saw my GI doc and he wants to do another colonoscopy. This is my 4th bout in 6 years - not very bothered by it - but the last one, well, I could not get the stool out, and then started pooping orangy slime. After that I went
Hello. After a pretty unusual bout of diverticulitis diagnosed by a CT scan, I saw my GI doc and he wants to do another colonoscopy. This is my 4th bout in 6 years - not very bothered by it - but the last one, well, I could not get the stool out, and then started pooping orangy slime. After that I went
NewEnglander
in
IBS Network
11 months ago
UK - Liver Resection
I'm having my liver resection on Friday 18th August to remove HCC and I'm just falling apart. I'm so scared and nervous. I feel sick, I'm bloated (from stress), I feel I have no desire to eat properly so I'm eating the wrong foods. I'm getting heart burn too. I'm convinced it's all anxiety related to
I'm having my liver resection on Friday 18th August to remove HCC and I'm just falling apart. I'm so scared and nervous. I feel sick, I'm bloated (from stress), I feel I have no desire to eat properly so I'm eating the wrong foods. I'm getting heart burn too. I'm convinced it's all anxiety related to
BumbleCat
in
British Liver Trust
11 months ago
Induced coma
Hello, I was an induced coma for 6 weeks from early may, I'm out of hospital and home now. I'm finding my memory is terrible. I have no memory from about a month before my admission and now I keep forgetting little things and lots of them, like remembering to look at my diary where I have written appointments
Hello, I was an induced coma for 6 weeks from early may, I'm out of hospital and home now. I'm finding my memory is terrible. I have no memory from about a month before my admission and now I keep forgetting little things and lots of them, like remembering to look at my diary where I have written appointments
Lornz
in
ICUsteps
11 months ago
Disimpacted 9 year old and still soiling
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
Natster90
in
ERIC
1 year ago
9 year old is so fed up
Hi. My 9 year old is so fed up. He has been diagnosed with CC and has had problems with soiling for years. Gp has been involved and i managed to get him to poop twice a day and no soiling for 6 weeks. Doing very gentle clean out with senna and docusate fir 3 days. Nothing watery. He was great fir 6
Hi. My 9 year old is so fed up. He has been diagnosed with CC and has had problems with soiling for years. Gp has been involved and i managed to get him to poop twice a day and no soiling for 6 weeks. Doing very gentle clean out with senna and docusate fir 3 days. Nothing watery. He was great fir 6
Mumanddad1
in
ERIC
1 year ago
6.5 regular daytime wetting some intentional
Hello, My son has had issues on and off for the past two years, worse
at
school and rarely
accidents
at
home
. He has had maybe 10 dry nights in his lifetime maybe slightly more. Most of the time the issue seems to be that he tries to hold it and then it’s too late and he wets himself.
Hello, My son has had issues on and off for the past two years, worse
at
school and rarely
accidents
at
home
. He has had maybe 10 dry nights in his lifetime maybe slightly more. Most of the time the issue seems to be that he tries to hold it and then it’s too late and he wets himself.
Montydoodle
in
ERIC
5 months ago
3 year old poop withholding journey
My 3 year old daughter has been poop withholding on and off for a year. Lucky she has never had any poop accidents because I would never let her go more than 3 days without a poop- I would put a suppository. She was on senna for 3 weeks and we slowly weened her off until she would poop everyday on her
My 3 year old daughter has been poop withholding on and off for a year. Lucky she has never had any poop accidents because I would never let her go more than 3 days without a poop- I would put a suppository. She was on senna for 3 weeks and we slowly weened her off until she would poop everyday on her
zfuzaylova
in
ERIC
1 year ago
Jetwill
I saw physio at the hospital this week. I have suffered for 5 years with my stomach. Had 2 colonoscopies, I was diagnosed with some diverticulitis. IBS C and sometimes D I have small rectocele and hiatis hernia.i have found over the years that most meds prescribed for me play havoc with my stomach. The
I saw physio at the hospital this week. I have suffered for 5 years with my stomach. Had 2 colonoscopies, I was diagnosed with some diverticulitis. IBS C and sometimes D I have small rectocele and hiatis hernia.i have found over the years that most meds prescribed for me play havoc with my stomach. The
jetwill
in
IBS Network
1 year ago
Two interesting articles
Here are links to two interesting articles. The first one details the benefits of exercise in preventing AF (it’s not clear if this applies to those who already have AF). The second-an older one which has been posted before but can probably stand repetition-details the negative effects of even small
Here are links to two interesting articles. The first one details the benefits of exercise in preventing AF (it’s not clear if this applies to those who already have AF). The second-an older one which has been posted before but can probably stand repetition-details the negative effects of even small
Samazeuilh2
in
Atrial Fibrillation Support
1 year ago
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