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Continuing Healthcare Farce
We have just been declined for CHC funding for my dad who has advanced stage CBD. Apparently he does not meet the health criteria!! He is on lots of medication which my mum administers. He is at home with carers coming in 4 times a day to do all the personal care and has a visit from the District Nurses
We have just been declined for CHC funding for my dad who has advanced stage CBD. Apparently he does not meet the health criteria!! He is on lots of medication which my mum administers. He is at home with carers coming in 4 times a day to do all the personal care and has a visit from the District Nurses
Stormtrooper4
in
PSP Association
1 year ago
gabapentin , Nuerontin, Horizant or Gralise
Does anyone have any experience with Gabapentin, Nuerontin or Horizant or Gralise for treating leva dopa induced dyskenisia? Report Ad Gabapentineg
Does anyone have any experience with Gabapentin, Nuerontin or Horizant or Gralise for treating leva dopa induced dyskenisia? Report Ad Gabapentineg
billybobAK
in
Cure Parkinson's
10 months ago
finding Answers
I have had diarrhea most of my life and have used Imodium for the most part. Have been working with GI specialist but no help so far. Taking Colestipol which at least usually keeps me from having an accident but goes not help the symptoms of needing to go. They seem to want to find right pills to help
I have had diarrhea most of my life and have used Imodium for the most part. Have been working with GI specialist but no help so far. Taking Colestipol which at least usually keeps me from having an accident but goes not help the symptoms of needing to go. They seem to want to find right pills to help
LadyHash
in
IBS Network
10 months ago
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Letting people down because of IBS
I'd made arrangements to go on a 250 mile train ride to help family members with a really difficult family problem. I knew it was a risk booking tickets and making commitments, but I gambled on it. The stress has been awful the past 3 weeks to a month now. I kept "positive-talking" myself and saying
I'd made arrangements to go on a 250 mile train ride to help family members with a really difficult family problem. I knew it was a risk booking tickets and making commitments, but I gambled on it. The stress has been awful the past 3 weeks to a month now. I kept "positive-talking" myself and saying
Luisa22
in
IBS Network
10 months ago
And so it begins......home dialysis
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
Bassetmommer
in
Kidney Dialysis
10 months ago
Pulsed Field Ablation underwhelming in trial
PFA has been the big hope in AF ablations. The results of a trial have however been underwhelming according to John Mandrola: https://www.medscape.com/viewarticle/995898 In the trial of 600 patients with AF who were split evenly between PFA and conventional RF, PFA was non-inferior but not superior
PFA has been the big hope in AF ablations. The results of a trial have however been underwhelming according to John Mandrola: https://www.medscape.com/viewarticle/995898 In the trial of 600 patients with AF who were split evenly between PFA and conventional RF, PFA was non-inferior but not superior
MarkS
in
AF Association
10 months ago
Dentist stress kalms and return to A/f
5:years on Dental extraction? major stress ,tried Kam's ? a/f started Sunday been persistent since , been good for 5 1/2 years 6 month before my second ablation.Very depressing. Just before the return to A/F I had a dentist remove a tooth Wondered if it hat and effect The tooth was eating itself .
5:years on Dental extraction? major stress ,tried Kam's ? a/f started Sunday been persistent since , been good for 5 1/2 years 6 month before my second ablation.Very depressing. Just before the return to A/F I had a dentist remove a tooth Wondered if it hat and effect The tooth was eating itself .
sooty757
in
AF Association
10 months ago
5 years on Dental extraction?
major stress ,tried Kam's ? a/f started Sunday been persistent since , been good for 5 1/2 years 6 month before my second ablation.Very depressing. Just before the return to A/F I had a dentist remove a tooth Wondered if it hat and effect The tooth was eating itself .. reabsorption?
major stress ,tried Kam's ? a/f started Sunday been persistent since , been good for 5 1/2 years 6 month before my second ablation.Very depressing. Just before the return to A/F I had a dentist remove a tooth Wondered if it hat and effect The tooth was eating itself .. reabsorption?
sooty757
in
AF Association
10 months ago
Grief over what should have been
Hi all I hope you're all as well as you can be. I've been hit by a tidal wave of grief today over what should have been my due date on 6 Sept if my 2nd pregnancy had gone to plan. I already went though this in June with what should have been my first due date. Feels like these milestones never end -
Hi all I hope you're all as well as you can be. I've been hit by a tidal wave of grief today over what should have been my due date on 6 Sept if my 2nd pregnancy had gone to plan. I already went though this in June with what should have been my first due date. Feels like these milestones never end -
Citizenerased83
in
Fertility Network UK
10 months ago
Reassessment head injury
Bit worried as gp and physio say need re assement as not getting better after head injury to get reassessment but worried about seeing neurologist and what assemsent might look especially over zoom what that look like and my memory quite bad if he ask about that?
Bit worried as gp and physio say need re assement as not getting better after head injury to get reassessment but worried about seeing neurologist and what assemsent might look especially over zoom what that look like and my memory quite bad if he ask about that?
Panad
in
Headway
1 year ago
Guidance for RLS
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
PinkTLC
in
Restless Legs Syndrome
10 months ago
can laxatives make constipation worse?
my doctors and charts indicate I have constipation, My colon is full of stool and this was clear during a recent X-ray and enterography ct scan, There is stool throughout the colon. I was told to adopt a laxative regime using miralax and each morning I have large loose bowel movements. But the
my doctors and charts indicate I have constipation, My colon is full of stool and this was clear during a recent X-ray and enterography ct scan, There is stool throughout the colon. I was told to adopt a laxative regime using miralax and each morning I have large loose bowel movements. But the
GKT1969
in
IBS Network
10 months ago
Depo IM injection advice
Good morning everyone,I have been really struggling with inflammation levels in my right knee and 3 joint aspirations have only helped for about 24 hours. I am being sent in for a Depo IM injection to try to help. I have only had this once before, several years back and I felt so ill afterwards for about
Good morning everyone,I have been really struggling with inflammation levels in my right knee and 3 joint aspirations have only helped for about 24 hours. I am being sent in for a Depo IM injection to try to help. I have only had this once before, several years back and I felt so ill afterwards for about
BillyJayDuncs
in
NRAS
10 months ago
4 days post 'fertile window' & mild pains
Quick question, i track my 'fertile window' using an app that guesses it based on my cycle length and when i have my periods etc, but to be fair, when it says i am fertile, i do usually have symptoms, such as mild cramps and increased cervical fluid......anyway..... can i ovulate at any stage within
Quick question, i track my 'fertile window' using an app that guesses it based on my cycle length and when i have my periods etc, but to be fair, when it says i am fertile, i do usually have symptoms, such as mild cramps and increased cervical fluid......anyway..... can i ovulate at any stage within
Mrsjaytee
in
Fertility Network UK
10 months ago
Do I need an emergency cortisol injection kit?
Hi everyone, I've been on pred now for six months (currently taking 20 mg per day). I have a friend with primary adrenal insufficiency and he keeps telling me I need a rescue pen in case I get injured or suffer physical trauma. He says I could die quickly without it. This link he sent me says death
Hi everyone, I've been on pred now for six months (currently taking 20 mg per day). I have a friend with primary adrenal insufficiency and he keeps telling me I need a rescue pen in case I get injured or suffer physical trauma. He says I could die quickly without it. This link he sent me says death
sferios
in
PMRGCAuk
11 months ago
NovoThor
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Onlymeandyou
in
Fibromyalgia Action UK
11 months ago
Calprotectin at 146 and panicking
Hey everybody. I’ve been experiencing constant abdominal discomfort for 10 weeks now. I wouldn’t say it’s pain but it’s definitely annoying, like my intestines are sore. It’s mostly lower abdomen but can be upper too. Sometimes food makes it better, sometimes worse. It happened to me 3 years ago
Hey everybody. I’ve been experiencing constant abdominal discomfort for 10 weeks now. I wouldn’t say it’s pain but it’s definitely annoying, like my intestines are sore. It’s mostly lower abdomen but can be upper too. Sometimes food makes it better, sometimes worse. It happened to me 3 years ago
CalebC
in
IBS Network
11 months ago
pmg, tapering and feeling low
hi there, I have had pmg since last September, I think bright on by the death of my partner of over 30 years, and I have been slowly tapering down to now on 2mg from 15mg, with a slight hiccup of chest infection six weeks ago when I was on 30mg for just a week. I have been ok mentally since then,
hi there, I have had pmg since last September, I think bright on by the death of my partner of over 30 years, and I have been slowly tapering down to now on 2mg from 15mg, with a slight hiccup of chest infection six weeks ago when I was on 30mg for just a week. I have been ok mentally since then,
Guilluame
in
PMRGCAuk
11 months ago
Speech and Language team in the UK
Just an update on my wife (Jackie, diagnosed since 29th Jan 23) and her PSP path, she had a visit from the Speech and Language therapy team yesterday and it's not good. She's struggling with food, she'd said that food wasn't going down. So they tried her with a sandwich and she couldn't clear it after
Just an update on my wife (Jackie, diagnosed since 29th Jan 23) and her PSP path, she had a visit from the Speech and Language therapy team yesterday and it's not good. She's struggling with food, she'd said that food wasn't going down. So they tried her with a sandwich and she couldn't clear it after
Derek1uk
in
PSP Association
1 year ago
Week 9 run 3 and thank you
So decided that today was the day for the final run . Did the run with Laura who has been with me throughout (thank you) and then kept running until I completed the 5K ( very slowly) in 51 mins. Reflecting on how far I have come with C25K , you have been with me through the first year of retirement
So decided that today was the day for the final run . Did the run with Laura who has been with me throughout (thank you) and then kept running until I completed the 5K ( very slowly) in 51 mins. Reflecting on how far I have come with C25K , you have been with me through the first year of retirement
Cassandra61
Graduate
in
Couch to 5K
11 months ago
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