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Abdominal hysterectomy
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Can’t decide
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
Lily1986
in
Endometriosis UK
10 months ago
Advice needed!!
Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting results. Stage 3C High grade serous cancer. Experiencing back pain in recent weeks, just wondered if anyone else had experienced this and if we should
Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting results. Stage 3C High grade serous cancer. Experiencing back pain in recent weeks, just wondered if anyone else had experienced this and if we should
ORGM
in
My Ovacome
9 months ago
Happy New Year
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
10Ronnies
in
My Ovacome
9 months ago
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prostap injections
I have been on prostap injections for coming up to 2 years now my doctor is happy for me to continue with this I am tired so so tired all of the time I never have energy EVER It is so hard I am getting my next 3 monthly injection next week Ive been told Im waiting to have a hysterectomy
I have been on prostap injections for coming up to 2 years now my doctor is happy for me to continue with this I am tired so so tired all of the time I never have energy EVER It is so hard I am getting my next 3 monthly injection next week Ive been told Im waiting to have a hysterectomy
Prettythings1
in
Endometriosis UK
11 months ago
Life after hysterectomy
Hello, I have been to see my consultant and he has given me a couple of options going forward one being a full hysterectomy. After 27 years I am wanting something a little more permanent. My question is how have people got on after a hysterectomy, has this totally relieved your symptoms or do you still
Hello, I have been to see my consultant and he has given me a couple of options going forward one being a full hysterectomy. After 27 years I am wanting something a little more permanent. My question is how have people got on after a hysterectomy, has this totally relieved your symptoms or do you still
MooBoos1
in
Endometriosis UK
11 months ago
Bleeding for holiday
Hello everyone, I have posted on here before, in summary I am 39 years of age, on waiting list for a Hysterectomy hopefully in the coming months. My symptoms are pelvic pain and heavy bleeding, currently managed via low dose of Provera. I have tried Norethisterone but experienced side effects including
Hello everyone, I have posted on here before, in summary I am 39 years of age, on waiting list for a Hysterectomy hopefully in the coming months. My symptoms are pelvic pain and heavy bleeding, currently managed via low dose of Provera. I have tried Norethisterone but experienced side effects including
Kittie5117
in
Endometriosis UK
11 months ago
Zoledronate infusions yearly for 3 years
Hi ,i am 73 years old and am looking for reassurance that what i have been advised by my rheumatologist is right for me. Zoledronate infusions I had a full hysterectomy aged 34. One fracture of ankle,foot and fibular. One chipped ankle and one hairline fracture of wrist. Did fracture my patella aged
Hi ,i am 73 years old and am looking for reassurance that what i have been advised by my rheumatologist is right for me. Zoledronate infusions I had a full hysterectomy aged 34. One fracture of ankle,foot and fibular. One chipped ankle and one hairline fracture of wrist. Did fracture my patella aged
Metalmich
in
Bone Health and Osteoporosis UK
11 months ago
Add back hrt with Zoladex
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Saffie123
in
Endometriosis UK
11 months ago
Post menopause, pernicious anaemia and endometriosis
Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year
Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year
Fiestadrive
in
Endometriosis UK
11 months ago
Should my Thyroxine be put down?
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Jojozo
in
Thyroid UK
11 months ago
Feeling so alone
I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner. 2 years ago I was diagnosed with fibroids but
I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner. 2 years ago I was diagnosed with fibroids but
Ho0lio76
in
Myositis UK
11 months ago
Help! Consultant appt brought forward....
Brief background, I had my 2nd laparoscopy on 31 August. Big fibroid squashing everything and stage 4 endometriosis....couldn't do anything because fibroid taking up so much room. And worry is endo infiltration of bowels. Pouch of Douglas 'obliterated'. Doc mentioned hysterectomy which freaked me out
Brief background, I had my 2nd laparoscopy on 31 August. Big fibroid squashing everything and stage 4 endometriosis....couldn't do anything because fibroid taking up so much room. And worry is endo infiltration of bowels. Pouch of Douglas 'obliterated'. Doc mentioned hysterectomy which freaked me out
MJD1712
in
Endometriosis UK
11 months ago
Constant pain down below and heavy feeling.
Please bare with me as this must be a common post!I have endo in uterus muscle, pouch of Douglas and on ligaments and on my bowel. Also had a 5cm endometrioma. I'm in pain most of the time from my endometrioma and bowel but used to get about 5to 7 days of less pain after my period in my other areas.
Please bare with me as this must be a common post!I have endo in uterus muscle, pouch of Douglas and on ligaments and on my bowel. Also had a 5cm endometrioma. I'm in pain most of the time from my endometrioma and bowel but used to get about 5to 7 days of less pain after my period in my other areas.
Loveneige
in
Endometriosis UK
11 months ago
horror surgery
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
MrsPaddingtonBear
in
Endometriosis UK
11 months ago
Best apps for tracking cycle after hysterectomy
Hello all, I was wondering if anyone had any suggestions for useful apps for tracking your cycle after a hysterectomy? Back in Feb i had a hysterectomy and a small bowel resection, they left both ovaries. The recoveries not gone to plan. Was meant to be able to run/start yoga again after the 3 month
Hello all, I was wondering if anyone had any suggestions for useful apps for tracking your cycle after a hysterectomy? Back in Feb i had a hysterectomy and a small bowel resection, they left both ovaries. The recoveries not gone to plan. Was meant to be able to run/start yoga again after the 3 month
PaintToughTed
in
Endometriosis UK
11 months ago
Options?
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Cats1311
in
Endometriosis UK
11 months ago
Can HRT stop working?
Hi, I had a total hysterectomy June 22 and have been on everol estrogen 100mg patches since and my menopause symptoms were controlled for the most. However, these past few weeks my symptoms have been creeping back starting with sleeplessness, night sweats, brain fog and now my skin is itchy as anything
Hi, I had a total hysterectomy June 22 and have been on everol estrogen 100mg patches since and my menopause symptoms were controlled for the most. However, these past few weeks my symptoms have been creeping back starting with sleeplessness, night sweats, brain fog and now my skin is itchy as anything
EvieJ70
in
Menopause and Perimenopause Support
9 months ago
prostrap injections
Hi All, thank you for the add- I am new here. I have ademomyosis, fibroids and also possibly endometriosis. I am listed for a total hysterectomy but start (thursday!) prostrap injections to see how I would cope with no ovaries (with add back HRT) and to check the effect on my terrible ovulation symptoms
Hi All, thank you for the add- I am new here. I have ademomyosis, fibroids and also possibly endometriosis. I am listed for a total hysterectomy but start (thursday!) prostrap injections to see how I would cope with no ovaries (with add back HRT) and to check the effect on my terrible ovulation symptoms
ForestFi
in
Endometriosis UK
9 months ago
Borderline Tumor
Hello, I found a lump in my tummy in July, my CA125 was 80. After scans I was told, mid August, that I have a borderline tumor and will have a hysterectomy,removal of fallopian tubes, omentum & possibly appendix. I am still waiting for this op, I feel it has been a long time to wait. Should I be pushing
Hello, I found a lump in my tummy in July, my CA125 was 80. After scans I was told, mid August, that I have a borderline tumor and will have a hysterectomy,removal of fallopian tubes, omentum & possibly appendix. I am still waiting for this op, I feel it has been a long time to wait. Should I be pushing
Dolphinseasshore
in
My Ovacome
1 year ago
Well am living the dream once again second laporaascopy and still the same any advice anybody in a lot of pain
On my second laporaascopy and still in pain when will this nightmare end any advice would you op for a other laporaascopy or hysterectomy
On my second laporaascopy and still in pain when will this nightmare end any advice would you op for a other laporaascopy or hysterectomy
Callum2010
in
Endometriosis UK
1 year ago
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