Hello, I found a lump in my tummy in July, my CA125 was 80. After scans I was told, mid August, that I have a borderline tumor and will have a hysterectomy,removal of fallopian tubes, omentum & possibly appendix.
I am still waiting for this op, I feel it has been a long time to wait. Should I be pushing or is it not so urgent as it is a borderline tumor.
many thanks for any advice x
Keep phoning and emailing your specialist nurse(s). I had a borderline tumour as well and initially given over two months to wait for my op (same procedure as yours). I kept in regular contact with my wonderful specialist nurses, as well as my GP, advising them of my worsening symptoms, and they kept telling the MDT that I needed an earlier date. So when a date opened up, they immediately got in touch and this meant my operation took place a month earlier than originally scheduled. Good luck 💙
Thank you for your replies. I phoned yesterday & they phoned me back in the afternoon with a date for 2 weeks time x
Good luck be pro active in your care. Secretarys to your Specialist are usually excellent good luck and hope you're sorted very soon. Love Sheila xxx
Hi
I had this operation 10 months ago, I chased for the operation and was given appointment quite quickly. Everything went well the consultants are amazing I will be forever grateful to them. Good luck xx
Well I had the same issue however they moved forward with my surgery very quickly due to havinga mass the size of a honeydew melon. Even borderline is not good. I'd push because cancer grows very quickly. Hysterectomy sucks but losing your life is worse. Praying all goes well for you
Thank you everyone for your replies x
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