Feeling so alone

[Ho0lio76]

I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner.

2 years ago I was diagnosed with fibroids but I still ploughed on and tried to not let it effect me and in May this year I finally had a full hysterectomy. Literally a week after getting home I knew something was different I felt so weak and my joints were so sore, but I put it down to the invasive op I had had. Now 5 months later I have an appointment for Rheumatology and have had 3 blood tests ( another one Monday ) as my liver although functioning properly is showing an increasing high of liver enzymes.

My GP cant answer why and so I now wait until the end of the month-I am so grateful for the speed in which my GP is getting things moving but I am so anxious and scared as this illness stole my entire childhood from me and at ( almost 47) I just don't want it to steal anymore.

Sorry this sounds like a real pity party but I am just hoping there is even just one person who might get how I am feeling. Thank you for reading.

[Catpuss66]

sorry you feel so overwhelmed I havn’t any answers but came to tell you there is a real active FB group myositis Great Britain. Sure someone might be about to shed some light on those liver results. facebook.com/groups/themyos...