Adenomyosis and hysterectomy

[Kimmi36]

Hi,

I was diagnosed with Adenomyosis and signs of endometriosis in 2019, been on the hysterectomy waiting list for 2 years and now I’m booked for surgery on 5th March. Now it’s getting closer I’m getting nervous and would just like to hear from anyone who’s had a hysterectomy and how the recovery was? Thanks

[Jem33]

hi I’m 2 weeks post hysterectomy, salpingo-oopherectomy & bowel shave and I am surprised by how well I’m doing.

I had stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis.

The day after my surgery (keyhole) I was up, washed and dressed by 7.30am. I’m still on painkillers but only paracetamol and diclofenac which is amazing considering before I was eating opiates like sweeties just to get through the day.

I was extremely lucky and had 2 specialist surgeons with colorectal/ urologist on standby (latter not required). These are requirements though for surgery for severe endo when bowel/bladder are involved. I do hope you’re at a BSGE centre with the same level of care.

Everyday I get stronger and the pain gets less. To date I would note I have had spasm pain in my abdomen (assuming healing pains), tiredness but no need to nap just rest up on the couch, slower mobility than normal and just general uncomfortableness. I have however had so much support that I have not done anything at home - no cooking/housework anything! So this has aided my recovery.

I know I’m a bit off full recovery but I’m hopeful for the future now and mentally I am 100% stronger.

Best of luck and do feel free to ask me anything, more than happy to give my experience if it helps.

[Natsc]

How did it go? I've in exact same position after waiting for long time. Can't wait for it but still very nervous. I hope your surgery went well and you're feeling better xx