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Septrin
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Is Septrin (Co-trimoxazole) a lifelong medication
Septrin
was part of the medication I started at the commencement of Ibrutinib. I take 1 tab 960 mg evey alternate days. Have been on it for about 6 months now.My question: is it a lifelong medication just like Ibrutinib? Thank you Oldscores 1
Septrin
was part of the medication I started at the commencement of Ibrutinib. I take 1 tab 960 mg evey alternate days. Have been on it for about 6 months now.My question: is it a lifelong medication just like Ibrutinib? Thank you Oldscores 1
Oldscores1
in
CLL Support
5 months ago
Possible relapse, trouble seeing Rheumatologist.
I have been med free since 2016 other than
Septrin
. My first flare included episcleritis. Something I had never suffered before or since. That is, until a couple of months ago. I have been back and forth to the ophthalmologist who has been trying to sort me out with Maxidex drops.
I have been med free since 2016 other than
Septrin
. My first flare included episcleritis. Something I had never suffered before or since. That is, until a couple of months ago. I have been back and forth to the ophthalmologist who has been trying to sort me out with Maxidex drops.
lollypocket
in
Vasculitis UK
9 months ago
Bone Marrow Biopsy Didn't Happen
As it says in the title. I followed all the instructions, came off my warfarin and did the heparin injections, got to the hospital and no one had read my notes. There was no local anaesthetic available so no biopsy done. Now I have to wait for a case conference for them to decide the next step. So I
As it says in the title. I followed all the instructions, came off my warfarin and did the heparin injections, got to the hospital and no one had read my notes. There was no local anaesthetic available so no biopsy done. Now I have to wait for a case conference for them to decide the next step. So I
nellietheelephamt
in
MPN Voice
7 days ago
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Worry over my painful recovery after partial knee replacement surgery
Hi everyone, This is so difficult to post but I really need advice following my partial knee replacement on 19th August. I take blood thinners because I have two mechanical valves in my heart. I had comprehensive care plan. I stuck religiously to the plan prior to admission, the surgery itself was
Hi everyone, This is so difficult to post but I really need advice following my partial knee replacement on 19th August. I take blood thinners because I have two mechanical valves in my heart. I had comprehensive care plan. I stuck religiously to the plan prior to admission, the surgery itself was
Julie_O
in
Arthritis Action
14 days ago
Tranexamic acid after having surgery for a knee replacement when I’m also taking sinthrome
Hi all, I am currently in hospital after having a knee replacement. I have two mechanical valves after having open heart surgery in Feb 2021. I take Sinthrome instead of Warfarin, as I was losing my hair, so was switched by my surgeon. Anyway I am currently recovering from a knee operation. The
Hi all, I am currently in hospital after having a knee replacement. I have two mechanical valves after having open heart surgery in Feb 2021. I take Sinthrome instead of Warfarin, as I was losing my hair, so was switched by my surgeon. Anyway I am currently recovering from a knee operation. The
Julie_O
in
British Heart Foundation
28 days ago
Having a bad day
This is my third post in this group and I’m hoping to get some positive testimonials from long term APS patients. I’m 38, my partial diagnosis started a month ago when I was hospitalized with bilateral PEs. My first round of tested showed triple positive. Unsure what that means still. Went home from
This is my third post in this group and I’m hoping to get some positive testimonials from long term APS patients. I’m 38, my partial diagnosis started a month ago when I was hospitalized with bilateral PEs. My first round of tested showed triple positive. Unsure what that means still. Went home from
Vmarti
in
Hughes Syndrome APS Forum
2 months ago
Eliquis
This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me on heparin and did a procedure to break up the clots in the lungs (I forgot the name of the procedure) LOTS of blood work was done and the doctor
This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me on heparin and did a procedure to break up the clots in the lungs (I forgot the name of the procedure) LOTS of blood work was done and the doctor
Vmarti
in
Hughes Syndrome APS Forum
2 months ago
High platelets due to ET or MF is anyone on anticoagulants such as Clexane or Heparin?
If you are on anticoagulants what platelet numbers do you have? Are any of you also on hydroxycarbamide too?
If you are on anticoagulants what platelet numbers do you have? Are any of you also on hydroxycarbamide too?
jointpain
in
MPN Voice
3 months ago
Peritoneal dialysis catheter block
Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample
Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample
Marbella17
in
Kidney Disease
3 months ago
My UNOS listing
My transplant coordinator msgd me on MyChart to tell me that my case goes before the next selection committee to submit to UNOS! I'm taking it with a grain of salt, because EVERY decision has a flip side, but this is the right direction. In the meantime, dialysis is going fair to middlein'. Apparently
My transplant coordinator msgd me on MyChart to tell me that my case goes before the next selection committee to submit to UNOS! I'm taking it with a grain of salt, because EVERY decision has a flip side, but this is the right direction. In the meantime, dialysis is going fair to middlein'. Apparently
PeaB4YouGo
in
Kidney Disease
4 months ago
IVF newbie (question about lister and mental health)
Hello, I had a negative this cycle, my 3rd letrozole + trigger + progesterone cycle, it all seemed to look great, two follicles at 25 mm. I haven't felt this low in a while, overall mental health has been low last 15 months we are trying. We tried naturally always. I've been pregnant 3 times last year
Hello, I had a negative this cycle, my 3rd letrozole + trigger + progesterone cycle, it all seemed to look great, two follicles at 25 mm. I haven't felt this low in a while, overall mental health has been low last 15 months we are trying. We tried naturally always. I've been pregnant 3 times last year
PenpalLdn
in
Fertility Network UK
5 months ago
Anti Phospholipid Syndrome and Thyroid
Hey all, does anyone else have APS or a knowledge of how it can interact with Thyroid issues? I understand they are both autoimmune conditions.I was diagnosed in 2016 due to miscarriages (no clotting episodes, fingers crossed). I had heparin injections whilst pregnant but told I wouldn't need anything
Hey all, does anyone else have APS or a knowledge of how it can interact with Thyroid issues? I understand they are both autoimmune conditions.I was diagnosed in 2016 due to miscarriages (no clotting episodes, fingers crossed). I had heparin injections whilst pregnant but told I wouldn't need anything
Dahliasanddaisies
in
Thyroid UK
5 months ago
advice needed please! Recurrent losses
hello! I’ve been doing ivf since 2021 now had 4 pregnancies and 4 losses - 2 MMC 1 pregnancy unknown location 1 ectopic with tube removal. Had quite a few tests TFTS normal antiphospholipid normal am on canesflor after the EMMA/ERa showed levels 89% (90 is normal so not bad). NK cells raised so am on
hello! I’ve been doing ivf since 2021 now had 4 pregnancies and 4 losses - 2 MMC 1 pregnancy unknown location 1 ectopic with tube removal. Had quite a few tests TFTS normal antiphospholipid normal am on canesflor after the EMMA/ERa showed levels 89% (90 is normal so not bad). NK cells raised so am on
Peanutpie1
in
Fertility Network UK
5 months ago
knee replacement
hi, I’m due to have a knee replacement in a few weeks and wondered if anyone who has had the procedure experienced any issues. I’m aware of my issues regarding medication ie allergy to warfarin but ok with heparin and have opted for an epidural but my concern is with the implant itself being rejected
hi, I’m due to have a knee replacement in a few weeks and wondered if anyone who has had the procedure experienced any issues. I’m aware of my issues regarding medication ie allergy to warfarin but ok with heparin and have opted for an epidural but my concern is with the implant itself being rejected
Bigskies
in
The UK Mastocytosis Support Group
6 months ago
Heparin
Today they gave me heparin after treatment as my CVC has been clotting and the doctor prescribed it. I've never used it so wonder what some others who do have experienced? I have surgery scheduled Apr 1 and don't know when or it I need to not have it before.
Today they gave me heparin after treatment as my CVC has been clotting and the doctor prescribed it. I've never used it so wonder what some others who do have experienced? I have surgery scheduled Apr 1 and don't know when or it I need to not have it before.
horsie63
in
Kidney Disease
7 months ago
FET drugs emotional rollercoaster
Hi fellow warriors! No other reason to post other than vent 😂 I've had my third transfer last Thursday and while the other two were an absolute dream hormonally speaking, this one is making me genuinely crazy. The other two were medicated on the same protocol (one didn't take, the second ended in an
Hi fellow warriors! No other reason to post other than vent 😂 I've had my third transfer last Thursday and while the other two were an absolute dream hormonally speaking, this one is making me genuinely crazy. The other two were medicated on the same protocol (one didn't take, the second ended in an
BearPanda
in
Fertility Network UK
8 months ago
Allergy to heparin
I have had a port for over three years now. I have had no issues at all with it until yesterday. I had bloods done and it was accessed as usual , but when the nurse put in the heparin lock I had an acute allergic reaction. It was almost instantaneous. I got a terrible fright as I felt I was burning up
I have had a port for over three years now. I have had no issues at all with it until yesterday. I had bloods done and it was accessed as usual , but when the nurse put in the heparin lock I had an acute allergic reaction. It was almost instantaneous. I got a terrible fright as I felt I was burning up
Seedlings
in
My Ovacome
9 months ago
Interesting info
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
wilsond
in
AF Association
10 months ago
I found the cause of last month's collapse
After further research on the symptoms of last month's collapse and their possible causes, I had a suspicion that the culprit was the filet mignon. Regular food poisoning should have left some traces of the causative organism - none were found after testing blood, urine, etc. The restaurant is a high
After further research on the symptoms of last month's collapse and their possible causes, I had a suspicion that the culprit was the filet mignon. Regular food poisoning should have left some traces of the causative organism - none were found after testing blood, urine, etc. The restaurant is a high
GAdrummer
in
Advanced Prostate Cancer
10 months ago
Steroids or Intralipids or both?
Hi everyone, I’m about to start my next FET cycle. After repeated implantation failures I had all the tests (EMMA ALICE ERA and NKC) I have natural killer cells so they want to put me on steroids and the Intralipids. I know all this is considered a bit experimental by HFEA and it’s on their red/ grey
Hi everyone, I’m about to start my next FET cycle. After repeated implantation failures I had all the tests (EMMA ALICE ERA and NKC) I have natural killer cells so they want to put me on steroids and the Intralipids. I know all this is considered a bit experimental by HFEA and it’s on their red/ grey
FierceGrace85
in
Fertility Network UK
10 months ago
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