Experiences with

Septrin

Septrin was part of the medication I started at the commencement of Ibrutinib. I take 1 tab 960 mg evey alternate days. Have been on it for about 6 months now.My question: is it a lifelong medication just like Ibrutinib? Thank you Oldscores 1

I have been med free since 2016 other than Septrin. My first flare included episcleritis. Something I had never suffered before or since. That is, until a couple of months ago. I have been back and forth to the ophthalmologist who has been trying to sort me out with Maxidex drops.

Hello beautiful girls, long time ago maybe not so long 4 months ago I gave birth to my beautiful son, who born sleeping. I didn't know why this happened. I came back to my country make so private test .did some research online.I did plenty of test and I have factor V Leiden , which it means I have thrombophilia

As it says in the title. I followed all the instructions, came off my warfarin and did the heparin injections, got to the hospital and no one had read my notes. There was no local anaesthetic available so no biopsy done. Now I have to wait for a case conference for them to decide the next step. So I

Hi everyone, This is so difficult to post but I really need advice following my partial knee replacement on 19th August. I take blood thinners because I have two mechanical valves in my heart. I had comprehensive care plan. I stuck religiously to the plan prior to admission, the surgery itself was

Hi all, I am currently in hospital after having a knee replacement. I have two mechanical valves after having open heart surgery in Feb 2021. I take Sinthrome instead of Warfarin, as I was losing my hair, so was switched by my surgeon. Anyway I am currently recovering from a knee operation. The

This is my third post in this group and I’m hoping to get some positive testimonials from long term APS patients. I’m 38, my partial diagnosis started a month ago when I was hospitalized with bilateral PEs. My first round of tested showed triple positive. Unsure what that means still. Went home from

This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me on heparin and did a procedure to break up the clots in the lungs (I forgot the name of the procedure) LOTS of blood work was done and the doctor

If you are on anticoagulants what platelet numbers do you have? Are any of you also on hydroxycarbamide too?

Hi everyone, for those on PD, have you had any catheter complications or blockages and how were they resolved? My father suddenly started to have his PD fluid drain bloody two weeks ago. We notified the nurse/dr who are both unresponsive and just assumed it’s a burst blood vessel. We requested a sample

My transplant coordinator msgd me on MyChart to tell me that my case goes before the next selection committee to submit to UNOS! I'm taking it with a grain of salt, because EVERY decision has a flip side, but this is the right direction. In the meantime, dialysis is going fair to middlein'. Apparently

Hello, I had a negative this cycle, my 3rd letrozole + trigger + progesterone cycle, it all seemed to look great, two follicles at 25 mm. I haven't felt this low in a while, overall mental health has been low last 15 months we are trying. We tried naturally always. I've been pregnant 3 times last year

Hey all, does anyone else have APS or a knowledge of how it can interact with Thyroid issues? I understand they are both autoimmune conditions.I was diagnosed in 2016 due to miscarriages (no clotting episodes, fingers crossed). I had heparin injections whilst pregnant but told I wouldn't need anything

hello! I’ve been doing ivf since 2021 now had 4 pregnancies and 4 losses - 2 MMC 1 pregnancy unknown location 1 ectopic with tube removal. Had quite a few tests TFTS normal antiphospholipid normal am on canesflor after the EMMA/ERa showed levels 89% (90 is normal so not bad). NK cells raised so am on

hi, I’m due to have a knee replacement in a few weeks and wondered if anyone who has had the procedure experienced any issues. I’m aware of my issues regarding medication ie allergy to warfarin but ok with heparin and have opted for an epidural but my concern is with the implant itself being rejected

Today they gave me heparin after treatment as my CVC has been clotting and the doctor prescribed it. I've never used it so wonder what some others who do have experienced? I have surgery scheduled Apr 1 and don't know when or it I need to not have it before.

Hi fellow warriors! No other reason to post other than vent 😂 I've had my third transfer last Thursday and while the other two were an absolute dream hormonally speaking, this one is making me genuinely crazy. The other two were medicated on the same protocol (one didn't take, the second ended in an

I have had a port for over three years now. I have had no issues at all with it until yesterday. I had bloods done and it was accessed as usual , but when the nurse put in the heparin lock I had an acute allergic reaction. It was almost instantaneous. I got a terrible fright as I felt I was burning up

My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones

After further research on the symptoms of last month's collapse and their possible causes, I had a suspicion that the culprit was the filet mignon. Regular food poisoning should have left some traces of the causative organism - none were found after testing blood, urine, etc. The restaurant is a high