Search
Search
About
Log in
Join
Experiences with
Septrin
Posts
Communities
615 public posts
Filter results
My own experiences, treatment regime and results (this is a long one)
Having had virtually all the symptoms for APS and with nightly injections of Heparin relieving the symptoms you would have thought that I would have been diagnosed with APS by the experts! But no. My anti-cardiolipin test came back at 35 which is 31 over the limit for a positive, however because this
Having had virtually all the symptoms for APS and with nightly injections of Heparin relieving the symptoms you would have thought that I would have been diagnosed with APS by the experts! But no. My anti-cardiolipin test came back at 35 which is 31 over the limit for a positive, however because this
Hidden
in
Hughes Syndrome APS Forum
13 years ago
Negative Anticardiolipin but told I have APS
I had elevated anticardiolipin and whatever other test shows positive for APS. On my second set of tests the anticardiolipin were normal but the other test went from 26 to 34. I miscarried at 15 weeks after a completely normal pregnancy until then. I get migranes, tingling, cold in my right arm, fatigue
I had elevated anticardiolipin and whatever other test shows positive for APS. On my second set of tests the anticardiolipin were normal but the other test went from 26 to 34. I miscarried at 15 weeks after a completely normal pregnancy until then. I get migranes, tingling, cold in my right arm, fatigue
Texasgal
in
Hughes Syndrome APS Forum
13 years ago
no more clopidogrel but on warfarin
I find this APS so confusing - Up until March on Aspirin, then due to an operation told not take, then after operation Heparin, but had mini TIA so put on Clopidogrel, and then a few weeks later Warfarin. Went to St T' first time and they said no more Clop and remain on Warfarin and start Hydroxychloroquine
I find this APS so confusing - Up until March on Aspirin, then due to an operation told not take, then after operation Heparin, but had mini TIA so put on Clopidogrel, and then a few weeks later Warfarin. Went to St T' first time and they said no more Clop and remain on Warfarin and start Hydroxychloroquine
daisy11
in
Hughes Syndrome APS Forum
13 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Does your INR level affect the way you feel?
I have had APLS for several years, picked up after several miscarriages so was on aspirin and heparin for my last pregnancy and for 6 weeks after. After that just aspirin, plaquenil and other bits and pieces. I had a TIA just after Christmas so they thought maybe I should be on warfarin long term.
I have had APLS for several years, picked up after several miscarriages so was on aspirin and heparin for my last pregnancy and for 6 weeks after. After that just aspirin, plaquenil and other bits and pieces. I had a TIA just after Christmas so they thought maybe I should be on warfarin long term.
tassie
in
Hughes Syndrome APS Forum
12 years ago
Hi:), I'm new to this forum.
Hi guys:)! I'm from Belgrade, Serbia. Two years ago I was diagnosed with Multiple Sclerosis after an episode of retroburbal neuritis. It was the only symptom I ever had so far. I was exmined at local Institute of neurology and MRI has shown small and rare focal lesions, without edemas and not typical
Hi guys:)! I'm from Belgrade, Serbia. Two years ago I was diagnosed with Multiple Sclerosis after an episode of retroburbal neuritis. It was the only symptom I ever had so far. I was exmined at local Institute of neurology and MRI has shown small and rare focal lesions, without edemas and not typical
ginger_lover
in
Hughes Syndrome APS Forum
13 years ago
'Funny Turns' and Hughes Syndrome
Having been diagnosed with Hughes Syndrome in 2002 (main symptoms: numb fingers, blind spots, migraines, dizziness, unsteady gait, speach and memory problems) and having seen Prof Hughes, then and subsequently, I was tried first with 75mg aspirin (no effect), then Plavix (no effect), then 5,000IU Fragmin
Having been diagnosed with Hughes Syndrome in 2002 (main symptoms: numb fingers, blind spots, migraines, dizziness, unsteady gait, speach and memory problems) and having seen Prof Hughes, then and subsequently, I was tried first with 75mg aspirin (no effect), then Plavix (no effect), then 5,000IU Fragmin
Manofmendip
in
Hughes Syndrome APS Forum
12 years ago
I'm wondering how soon into pregnancy should I start on heparin injections?
I have had APS for 10 years and was diagnosed after I had a DVT in my first pregnancy. I am now on Pregnancy number 4 and 8 weeks along. I have not had any miscarriages and the last two pregnancies I was started on heparin and aspirin as soon as I found out. I have since moved areas and feel that doctors
I have had APS for 10 years and was diagnosed after I had a DVT in my first pregnancy. I am now on Pregnancy number 4 and 8 weeks along. I have not had any miscarriages and the last two pregnancies I was started on heparin and aspirin as soon as I found out. I have since moved areas and feel that doctors
bones34
in
Hughes Syndrome APS Forum
12 years ago
Newly Diagnosed and Pregnant with APS
Hi! My name is Rebecca, 25, I discovered I had APS after losing a baby girl midway through my pregnancy in January this year. Usually investigatory tests only seem to be done after 3 miscarriages but partly due to the negligent treatment I received at the hospital and a letters to PALS I was offered
Hi! My name is Rebecca, 25, I discovered I had APS after losing a baby girl midway through my pregnancy in January this year. Usually investigatory tests only seem to be done after 3 miscarriages but partly due to the negligent treatment I received at the hospital and a letters to PALS I was offered
Rebecca_H
in
Hughes Syndrome APS Forum
13 years ago
Last day at work today.. feels like I let APS win! :(
I was so proud of myself a couple of months ago when I reduced my hours at work and gave 8 weeks notice until I would leave completely- I was putting me first and taking time to relax. Today was my last day! I have been getting lots of really bad headaches recently and finding work very hard to concentrate
I was so proud of myself a couple of months ago when I reduced my hours at work and gave 8 weeks notice until I would leave completely- I was putting me first and taking time to relax. Today was my last day! I have been getting lots of really bad headaches recently and finding work very hard to concentrate
Rebecca_H
in
Hughes Syndrome APS Forum
13 years ago
can someone tell me
possible i cant remeber what it is called (long name) as soon as they can get ahold of it as it is hard to get apperently it does begin with a c but tht is all i can remember he is also on high dose steriods again just as we got him down to just 10mg a day grrr also he is on bryicnal sub-cut methotrexate
septrin
possible i cant remeber what it is called (long name) as soon as they can get ahold of it as it is hard to get apperently it does begin with a c but tht is all i can remember he is also on high dose steriods again just as we got him down to just 10mg a day grrr also he is on bryicnal sub-cut methotrexate
septrin
Hidden
in
Asthma Community Forum
17 years ago
Scared, confused and in need to help
Hi I was wondering if anyone has any advice for me. In November I had a weird reaction after eating some Japense meso paste which was put down to an allergic reaction. After this I had several reactions that involved feeling itchy and have a weird sensation about me that I knew something bad was about
Hi I was wondering if anyone has any advice for me. In November I had a weird reaction after eating some Japense meso paste which was put down to an allergic reaction. After this I had several reactions that involved feeling itchy and have a weird sensation about me that I knew something bad was about
Hidden
in
Asthma Community Forum
15 years ago
Venting for a moment...(warning this is long)
I feel so bad whinging here, as I know many of the members here have much much more severe asthma than what I've got. I caught a cold a week ago, started with a sore throught on Monday, Tues the runny nose, no fever just slightly elevated ( 37.5-37.7). Wednesday morning I had increasing asthma symptoms
I feel so bad whinging here, as I know many of the members here have much much more severe asthma than what I've got. I caught a cold a week ago, started with a sore throught on Monday, Tues the runny nose, no fever just slightly elevated ( 37.5-37.7). Wednesday morning I had increasing asthma symptoms
Hidden
in
Asthma Community Forum
18 years ago
My Story my road (shortened version) to diagnosis
As far back as I can remember from 18 onwards I think my first symptom was stomach pain In 1991 I became pregnant for the first time. I struggled with the pregnancy and I was in immense pain and admitted to hospital at about 7 months nothing conclusive was found and I was discharged to spend the
As far back as I can remember from 18 onwards I think my first symptom was stomach pain In 1991 I became pregnant for the first time. I struggled with the pregnancy and I was in immense pain and admitted to hospital at about 7 months nothing conclusive was found and I was discharged to spend the
TJSTICKYBLOOD
in
Hughes Syndrome APS Forum
13 years ago
I don't feel so isolated
Hi All I was diagnosed with lupus 19 years ago, I spent 2 months in Bristol Royal Infirmary where It was confirmed I had lupus. During that time I couldn't walk; couldn't eat and had to be given anti-sickness injections; had a heart murmur due to severe anaemia; approximately 85% of my hair fell
Hi All I was diagnosed with lupus 19 years ago, I spent 2 months in Bristol Royal Infirmary where It was confirmed I had lupus. During that time I couldn't walk; couldn't eat and had to be given anti-sickness injections; had a heart murmur due to severe anaemia; approximately 85% of my hair fell
dustydile
in
LUPUS UK
13 years ago
New to forum
Hi, I have 7 of the 11 so called indicators for Lupus, with the exception of the blood tests. These have always been corrupted because I am on warfarin. I have taken pictures of the rash on my face, which is controlled by steroids. I am having to come off the steroids because I have been on them for
Hi, I have 7 of the 11 so called indicators for Lupus, with the exception of the blood tests. These have always been corrupted because I am on warfarin. I have taken pictures of the rash on my face, which is controlled by steroids. I am having to come off the steroids because I have been on them for
LesJames
in
LUPUS UK
13 years ago
1
...
30
31
10
20
30
Filter results
Clear filters
Posted in
All communities
Hughes Syndrome APS Forum
295 results
Fertility Network UK
42 results
AF Association
40 results
View top 10 communities
Sort by
Most Relevant
Newest