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Need a Urologist in New Castle and/or Scotland that does Heparin Installation
I have a patient that has Interstitial Cystitis. She will be traveling to the U.K. next month (September 2015) and needs a urologist or uro-gynecologist in either New Castle or Scotland that does heparin bladder installations. If you know of anyone that can help her, please send me their contact details
I have a patient that has Interstitial Cystitis. She will be traveling to the U.K. next month (September 2015) and needs a urologist or uro-gynecologist in either New Castle or Scotland that does heparin bladder installations. If you know of anyone that can help her, please send me their contact details
icrelief
in
Pelvic Pain Support Network
9 years ago
Hi everyone
Hi, I have just joined this forum after reading it for a while. I was diagnosed with APS following a collapse from DVT and multiple bilateral PE's 8 years ago when I was 33. I continued to clot for about 5 years whilst on Warfarin despite my INR range being 3-4. I was tested ever week as it was never
Hi, I have just joined this forum after reading it for a while. I was diagnosed with APS following a collapse from DVT and multiple bilateral PE's 8 years ago when I was 33. I continued to clot for about 5 years whilst on Warfarin despite my INR range being 3-4. I was tested ever week as it was never
sartee
in
Hughes Syndrome APS Forum
9 years ago
Professor Graham Hughes Blog July 2015
BLOG – July 2015 My apologies for the delay with the BLOG. This year’s annual ‘Ten Topics’ meeting here in London was huge! So stimulating : I’ll tell you more. So far, at least here in London and Kent, July has been wonderful. Blue skies, little rain, warm weather. The tourist boats chugging up and
BLOG – July 2015 My apologies for the delay with the BLOG. This year’s annual ‘Ten Topics’ meeting here in London was huge! So stimulating : I’ll tell you more. So far, at least here in London and Kent, July has been wonderful. Blue skies, little rain, warm weather. The tourist boats chugging up and
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
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Huhghes Syndrome and a whole lot mine!
I have been diagnosed with Hughes Syndrome 6 years ago. Just went to the Hellen Diller Cancer Center----UCSF. They say so few have Hughes and even rarer in men. In the past 4 years I have had 2 limps taken from the male breasts. I brome my spine a while ago. I had 20 titanium rods installed. 3 years
I have been diagnosed with Hughes Syndrome 6 years ago. Just went to the Hellen Diller Cancer Center----UCSF. They say so few have Hughes and even rarer in men. In the past 4 years I have had 2 limps taken from the male breasts. I brome my spine a while ago. I had 20 titanium rods installed. 3 years
cleanerug
in
Hughes Syndrome APS Forum
9 years ago
Heparin
Hi all, to anyone who is having heparin injections, do you find that you have lots of lumps under the skin? I've been using arnica cream but it doesn't really help. Can anyone recommend anything else?. Thanks elfie.
Hi all, to anyone who is having heparin injections, do you find that you have lots of lumps under the skin? I've been using arnica cream but it doesn't really help. Can anyone recommend anything else?. Thanks elfie.
Elfie1
in
Hughes Syndrome APS Forum
9 years ago
operation 3 weeks ago, dvt??
hi morning all, i had a large reoccuring seroma removed from my right leg 3 weeks ago and had a drain inserted which i still have in now, 2 weeks ago on my left leg a red patch started at my ankle and has worked its way up my leg on the inside leg woke up this morning i can now feel the throbbing pain
hi morning all, i had a large reoccuring seroma removed from my right leg 3 weeks ago and had a drain inserted which i still have in now, 2 weeks ago on my left leg a red patch started at my ankle and has worked its way up my leg on the inside leg woke up this morning i can now feel the throbbing pain
emmalou81
in
Anticoagulation Support
9 years ago
Normal blood results
Hi I have decompensated liver disease was in HDU 2014 due to another episode of spontenous bacterial pertinitis which I take
septrin
daily for also septic shock liver failure but survived.
Hi I have decompensated liver disease was in HDU 2014 due to another episode of spontenous bacterial pertinitis which I take
septrin
daily for also septic shock liver failure but survived.
vicky44
in
British Liver Trust
9 years ago
Professor Graham Hughes' Blog May 2015
May 2015 May was best forgotten as far as the weather was concerned – rain, cold and windy – once again one felt sorry for the tourists huddled on the open tour buses and the river cruise boats. However, as I write this, “June is bustin out” ……. “please disregard my previous letter…” It’s funny how
May 2015 May was best forgotten as far as the weather was concerned – rain, cold and windy – once again one felt sorry for the tourists huddled on the open tour buses and the river cruise boats. However, as I write this, “June is bustin out” ……. “please disregard my previous letter…” It’s funny how
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
CLUMPING PLATELETS
The Curious Case of the Clumping Platelets The first time I heard the phrase CLUMPING PLATELETS was on January 26th this year when following my routine (as if anything can ever be routine in ITP) 3 month blood test on January 15th. I got a telephone call from my specialist advising that I would have
The Curious Case of the Clumping Platelets The first time I heard the phrase CLUMPING PLATELETS was on January 26th this year when following my routine (as if anything can ever be routine in ITP) 3 month blood test on January 15th. I got a telephone call from my specialist advising that I would have
AnthonyHeard
ITP Support Association
in
ITP Support Association
9 years ago
New and confused?!
Hi all. Hope you are all well. I have a long and painful medical history which I will put in below but not in too much detail. Feel free to ask questions - I am not shy about sharing! I apologise in advance for the long and rambling post. 2009 - had a partial hysterectomy, left ovaries took everything
Hi all. Hope you are all well. I have a long and painful medical history which I will put in below but not in too much detail. Feel free to ask questions - I am not shy about sharing! I apologise in advance for the long and rambling post. 2009 - had a partial hysterectomy, left ovaries took everything
Hidden
in
Hughes Syndrome APS Forum
9 years ago
Gastroparesis (slow stomach emptying with pain)
Does anyone have any knowledge of gastroparesis? I was back in the hospital on Friday with terrible stomach pain. For the last two weeks, every time I have eaten, I immediately feel full and ill within 30-45 minutes. I get a bulge at the top of my stomach like I am pregnant and I feel like I have
Does anyone have any knowledge of gastroparesis? I was back in the hospital on Friday with terrible stomach pain. For the last two weeks, every time I have eaten, I immediately feel full and ill within 30-45 minutes. I get a bulge at the top of my stomach like I am pregnant and I feel like I have
Tranquility1
in
Hughes Syndrome APS Forum
9 years ago
Professor Graham Hughes April 2015 Blog
April 2015 March saw a marvellous new initiative here in London. Baroness Estelle Morris, the Chair of our charity, and Baroness Drake succeeded in raising the issue of Hughes syndrome (antiphospholipid syndrome/APS) in the House of Lords. By doing this, they have succeeded in ramping up the awareness
April 2015 March saw a marvellous new initiative here in London. Baroness Estelle Morris, the Chair of our charity, and Baroness Drake succeeded in raising the issue of Hughes syndrome (antiphospholipid syndrome/APS) in the House of Lords. By doing this, they have succeeded in ramping up the awareness
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
Help Cant get rid of bruising
Can other help me. Way back last April i was on Heparin injections for APS - i also have SLEthis caused brusing that sI still have. However, what is driving me mad is that my body is like a dalmation dog. I cant get rid of the bruising. It covers my legs arms, trunk, neck etc. Im dreading summer
Can other help me. Way back last April i was on Heparin injections for APS - i also have SLEthis caused brusing that sI still have. However, what is driving me mad is that my body is like a dalmation dog. I cant get rid of the bruising. It covers my legs arms, trunk, neck etc. Im dreading summer
diane1428
in
Hughes Syndrome APS Forum
9 years ago
Serratia marcescens
We'd have liked to continue the tablets for another week but
Septrin
is a pretty powerful drug and Dad is so thin and weak and in his 80's. It was a dilemma of which would do him more harm- to leave the serratia bugs to wreak havoc in his lungs or to have more
Septrin
. Help!
We'd have liked to continue the tablets for another week but
Septrin
is a pretty powerful drug and Dad is so thin and weak and in his 80's. It was a dilemma of which would do him more harm- to leave the serratia bugs to wreak havoc in his lungs or to have more
Septrin
. Help!
iviviv
in
Lung Conditions Community Forum
9 years ago
Home iv's
Hi Everyone, well after several 'problems' since December (2 exacerbations and 1 virus) my doctor at Papworth decided I needed iv's. It was agreed that I could do them at home as there is a very easy way of administering them which does not involve syringes with needles. I went on Wednesday to spend
Hi Everyone, well after several 'problems' since December (2 exacerbations and 1 virus) my doctor at Papworth decided I needed iv's. It was agreed that I could do them at home as there is a very easy way of administering them which does not involve syringes with needles. I went on Wednesday to spend
skinnylizzy59
in
Lung Conditions Community Forum
9 years ago
Pradaxa
Hi, My daughter has APS & Sjorgren's, and, although the GP happily tells us her thyroid is 'normal', Prof Hughes is not convinced! She has had no documented thrombotic events, but presents with the usual migraines, brain fog, neuralgia, etc. She has tried asprin and Plavix, but they did not help
Hi, My daughter has APS & Sjorgren's, and, although the GP happily tells us her thyroid is 'normal', Prof Hughes is not convinced! She has had no documented thrombotic events, but presents with the usual migraines, brain fog, neuralgia, etc. She has tried asprin and Plavix, but they did not help
floss112
in
Hughes Syndrome APS Forum
9 years ago
INR shot to bits
Brief timeline DVT & PE 2012 warfarin target INR 2.5 just started plaquenil with St Thomas's 2 months in of 3 trial. Oh joy ..... Was meant to go 8 weeks but asked for a test after 4 which was just as well as then had 2 weeks of low count of 1.8 and only minor adjustments to warfarin dose been feeling
Brief timeline DVT & PE 2012 warfarin target INR 2.5 just started plaquenil with St Thomas's 2 months in of 3 trial. Oh joy ..... Was meant to go 8 weeks but asked for a test after 4 which was just as well as then had 2 weeks of low count of 1.8 and only minor adjustments to warfarin dose been feeling
CheddarAddict
in
Hughes Syndrome APS Forum
9 years ago
FLAIR Trial - ErnieUK More Dehydration Round 5 FCR
So I learn that the main point of the Co-Trimoxzole (trade name
Septrin
) is for lung infections, PCP Pneumocystis pneumonia (I’m not sure how many forms of Pneumonia there are) Now it was a bit of a shock to go back to Hospital on day 2 for the transfusion, but with the increasing effects of the chemotherapy
So I learn that the main point of the Co-Trimoxzole (trade name
Septrin
) is for lung infections, PCP Pneumocystis pneumonia (I’m not sure how many forms of Pneumonia there are) Now it was a bit of a shock to go back to Hospital on day 2 for the transfusion, but with the increasing effects of the chemotherapy
Ernest2
in
CLL Support
9 years ago
Unknown DVT.......so far. Backpack in 5 weeks!!!
Hi. I write this post from my hospital bed. A week ago I was admitted after suffering pain, cold and numbness in my right foot reaching up to my mid-calf. After a visit to the walk-in centre and several tests and a CT scan at A&E they diagnosed a blood clot just below the knee. I am a fit and healthy
Hi. I write this post from my hospital bed. A week ago I was admitted after suffering pain, cold and numbness in my right foot reaching up to my mid-calf. After a visit to the walk-in centre and several tests and a CT scan at A&E they diagnosed a blood clot just below the knee. I am a fit and healthy
Char0209
in
Anticoagulation Support
9 years ago
Professor Graham Hughes January Blog 2015
January 2015 We are in the thick of preparations for this year’s annual ‘Ten Topics in Rheumatology’ meeting, to be held on Thursday 2nd and Friday 3rd July. This popular meeting, now in its 29th year, is a postgraduate meeting aimed at updating physicians (both training and consultant) in modern advances
January 2015 We are in the thick of preparations for this year’s annual ‘Ten Topics in Rheumatology’ meeting, to be held on Thursday 2nd and Friday 3rd July. This popular meeting, now in its 29th year, is a postgraduate meeting aimed at updating physicians (both training and consultant) in modern advances
MaryF
Administrator
in
Hughes Syndrome APS Forum
9 years ago
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