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Antiphospholipid syndrome
Karen Schreiber1,2, Savino Sciascia3, Philip G. de Groot4, Katrien Devreese5, Soren Jacobsen2, Guillermo Ruiz-Irastorza6, Jane E. Salmon7, Yehuda Shoenfeld8,9, Ora Shovman8,10 and Beverley J. Hunt1 Abstract | Antiphospholipid syndrome (APS) is an autoimmune disease characterized by thepresence of
Karen Schreiber1,2, Savino Sciascia3, Philip G. de Groot4, Katrien Devreese5, Soren Jacobsen2, Guillermo Ruiz-Irastorza6, Jane E. Salmon7, Yehuda Shoenfeld8,9, Ora Shovman8,10 and Beverley J. Hunt1 Abstract | Antiphospholipid syndrome (APS) is an autoimmune disease characterized by thepresence of
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Update on my appointment with Haematologist
To recap, this was my original thread. https://healthunlocked.com/hughes-syndrome/posts/140022450/transitioning-from-dalteparin-to-rivaroxaban So today I had my meeting with my new Hematologist, and I have to say he was absolutely fantastic. I was well prepared thanks to all your guidance, and had
To recap, this was my original thread. https://healthunlocked.com/hughes-syndrome/posts/140022450/transitioning-from-dalteparin-to-rivaroxaban So today I had my meeting with my new Hematologist, and I have to say he was absolutely fantastic. I was well prepared thanks to all your guidance, and had
LupusKaren
in
Hughes Syndrome APS Forum
5 years ago
On clexane because of madly unstable INR
Hi all I had my aortic valve replaced and my aortic arch repaired due to aneurysm, in December 2016. Did loads of research and decided, as I was only 55, to have a mechanical valve. The one big mistake I made was not researching warfarin! From day one, I never had a stable INR, with it ranging from
Hi all I had my aortic valve replaced and my aortic arch repaired due to aneurysm, in December 2016. Did loads of research and decided, as I was only 55, to have a mechanical valve. The one big mistake I made was not researching warfarin! From day one, I never had a stable INR, with it ranging from
Debs_22
in
Hughes Syndrome APS Forum
5 years ago
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Stents
Hubby has APS and was on warfarin but was removed from it to insert 2 stents. They stopped the warfarin, and then put him on aspirin after stents inserted. He then, within days, had clots block the stents. They then inserted some sort of puffer machine to ‘puff’ out clots and put him on iv heparin. Now
Hubby has APS and was on warfarin but was removed from it to insert 2 stents. They stopped the warfarin, and then put him on aspirin after stents inserted. He then, within days, had clots block the stents. They then inserted some sort of puffer machine to ‘puff’ out clots and put him on iv heparin. Now
Debbiesue63
in
Hughes Syndrome APS Forum
5 years ago
My French ablation
Hello everyone, after all my fretting, I’m home after my ablation and fine, well I’m dead tired and my throat really hurts and I realize the term “rest for a week “really means rest as right now my body wouldn’t let me do anything if I wanted I’m quite breathless. Came home from Lyon , three hours drive
Hello everyone, after all my fretting, I’m home after my ablation and fine, well I’m dead tired and my throat really hurts and I realize the term “rest for a week “really means rest as right now my body wouldn’t let me do anything if I wanted I’m quite breathless. Came home from Lyon , three hours drive
Morzine
in
Atrial Fibrillation Support
6 years ago
Fistula problems
Second week of using fistula. A tech infiltrated it, could not use for two weeks. Tried to use it again and did not work. Was told may have to use heparin prior to run. I know is not a drug to fool around with. Any side effects to using with dialysis? My blood was very colored and clotted in tubing.
Second week of using fistula. A tech infiltrated it, could not use for two weeks. Tried to use it again and did not work. Was told may have to use heparin prior to run. I know is not a drug to fool around with. Any side effects to using with dialysis? My blood was very colored and clotted in tubing.
rascal01
in
Kidney Disease
6 years ago
Hashimoto’s thyroiditis
Following a flu virus at age 15, my immune system destroyed my thyroid gland. I spent years living in a fog; sleeping 12 hours, horrible fatigue, weight gain (fluid) irregular periods, horrible depression, high cholesterol, unable to concentrate. I was the poster child for hypothyroidism and it went
Following a flu virus at age 15, my immune system destroyed my thyroid gland. I spent years living in a fog; sleeping 12 hours, horrible fatigue, weight gain (fluid) irregular periods, horrible depression, high cholesterol, unable to concentrate. I was the poster child for hypothyroidism and it went
Autunm
in
Thyroid UK
6 years ago
CRPC with Complications.. Do not know what to do now ?
My dad was diagnosed with PC in June 2015 with bone mets. Had tried Docetaxel, Zytiga, Xtandi and Radium and Lupron , Nothing worked and he got only side effects from those. He did better after he stopped Xtandi (last Chemotherapeutic agent he had) and stayed on Lupron with his PSA went down from over
My dad was diagnosed with PC in June 2015 with bone mets. Had tried Docetaxel, Zytiga, Xtandi and Radium and Lupron , Nothing worked and he got only side effects from those. He did better after he stopped Xtandi (last Chemotherapeutic agent he had) and stayed on Lupron with his PSA went down from over
Cladius
in
Advanced Prostate Cancer
6 years ago
Vitamin K antagonists
This is a response to a warning that someone gave in a recent thread: "Be careful about taking Vitamin K. The following study suggests that long-term use of a Vitamin K ANTAGONIST may DECREASE the risk of prostate cancer by 17%: journals.lww.com/md-journal... "Based on that, I would be wary of increasing
This is a response to a warning that someone gave in a recent thread: "Be careful about taking Vitamin K. The following study suggests that long-term use of a Vitamin K ANTAGONIST may DECREASE the risk of prostate cancer by 17%: journals.lww.com/md-journal... "Based on that, I would be wary of increasing
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Pulmonary Embolism, confidence somewhat shattered
First of all Happy New Year everyone. Since September I have been generally unwell, with a myriad of symptoms, too numerous to mention, but one problem that troubled me most, breathing problems, and the feeling of being throttled. 3 trips to A & E, had me sent away with a range of dismissive suggestions
First of all Happy New Year everyone. Since September I have been generally unwell, with a myriad of symptoms, too numerous to mention, but one problem that troubled me most, breathing problems, and the feeling of being throttled. 3 trips to A & E, had me sent away with a range of dismissive suggestions
LupusKaren
in
LUPUS UK
6 years ago
Scary Update on a thread of mine
I thought I would update you all on my original thread, though not the update I would have liked to give. https://healthunlocked.com/hughes-syndrome/posts/138685399/advice-on-blood-test-result-please I had a long chat with my GP and he agreed to refer me to Hematology for advice, especially as I was
I thought I would update you all on my original thread, though not the update I would have liked to give. https://healthunlocked.com/hughes-syndrome/posts/138685399/advice-on-blood-test-result-please I had a long chat with my GP and he agreed to refer me to Hematology for advice, especially as I was
LupusKaren
in
Hughes Syndrome APS Forum
6 years ago
Nk cells test(beta2-glycoprotein-I antibodies)need some advice plz!
Hello everybody Hope u all doing well in your tough journey! I have been tested for NK cells(blood test) in Denmark in less than 3 weeks ago! It has’nt been just NK cell as it was a very comprehensive blood test with several items of antibodies and coagulations etc.The Prof informed us yesterday by
Hello everybody Hope u all doing well in your tough journey! I have been tested for NK cells(blood test) in Denmark in less than 3 weeks ago! It has’nt been just NK cell as it was a very comprehensive blood test with several items of antibodies and coagulations etc.The Prof informed us yesterday by
Paris1771
in
Infertility Support
6 years ago
NK cells test(beta2-glycoprotein-I antibodies) need some advice plz!!
Hello everybody Hope u all doing well in your tough journey! I have been tested for NK cells(blood test) in Denmark in less than 3 weeks ago! It has’nt been just NK cell as it was a very comprehensive blood test with several items of antibodies and coagulations etc.The Prof informed us yesterday by
Hello everybody Hope u all doing well in your tough journey! I have been tested for NK cells(blood test) in Denmark in less than 3 weeks ago! It has’nt been just NK cell as it was a very comprehensive blood test with several items of antibodies and coagulations etc.The Prof informed us yesterday by
Paris1771
in
Fertility, Miscarriage & IVF Support
6 years ago
NK cells test( beta2-glycoprotein-I antibodies) need some advice plz!
Hello everybody Hope u all doing well in your tough journey! I have been tested for NK cells(blood test) in Denmark in less than 3 weeks ago! It has’nt been just NK cell as it was a very comprehensive blood test with several items of antibodies and coagulations etc.The Prof informed us yesterday by mail
Hello everybody Hope u all doing well in your tough journey! I have been tested for NK cells(blood test) in Denmark in less than 3 weeks ago! It has’nt been just NK cell as it was a very comprehensive blood test with several items of antibodies and coagulations etc.The Prof informed us yesterday by mail
Paris1771
in
Fertility Network UK
6 years ago
Septrin
Found a Brian deer investion into
Septrin
from the times newspaper in the U.K. Don’t know what year it was Unbelievable reading is it still prescribed to our Aussie and American readers ?
Found a Brian deer investion into
Septrin
from the times newspaper in the U.K. Don’t know what year it was Unbelievable reading is it still prescribed to our Aussie and American readers ?
Jsk1950
in
CLL Support
6 years ago
15 November 2018 by Professor Graham R V Hughes MD FRCP
For us, the warm late summer/autumn weather continued through into November. The colours rival those of Maine. Our new education charity website (www.ghic.world), is now getting into gear. We have been joined by Suzanna Magill, who, as Manager, will run our international network. We welcome all articles
For us, the warm late summer/autumn weather continued through into November. The colours rival those of Maine. Our new education charity website (www.ghic.world), is now getting into gear. We have been joined by Suzanna Magill, who, as Manager, will run our international network. We welcome all articles
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Question for those not on anti coagulants
hi, I saw the APS specialist today who is retesting me for APS but believes i might have Serro negative APS. He was talking about the different medications and due to my age is reticent to put me on Warfarin or Heparin. He wants to keep me on asprin but also treat me with hydroxychoroquine and chlopidogrel
hi, I saw the APS specialist today who is retesting me for APS but believes i might have Serro negative APS. He was talking about the different medications and due to my age is reticent to put me on Warfarin or Heparin. He wants to keep me on asprin but also treat me with hydroxychoroquine and chlopidogrel
Skatingonthinice
in
Hughes Syndrome APS Forum
6 years ago
HELP PLEASE
Hi all I’m after some advice please. Here’s my story.. I am now 45 years old and basically I had 3 normal pregnancies/normal births between 1995-2001. In 2013 we decided to try for another baby from 2013-2015 I had 3 miscarriages. I was referred in July 2016 to a Obstetrician & Gynaecologist and then
Hi all I’m after some advice please. Here’s my story.. I am now 45 years old and basically I had 3 normal pregnancies/normal births between 1995-2001. In 2013 we decided to try for another baby from 2013-2015 I had 3 miscarriages. I was referred in July 2016 to a Obstetrician & Gynaecologist and then
LSTP2018
in
Hughes Syndrome APS Forum
6 years ago
Significant bleed following elective surgery - any thoughts?
Hi all. I received a metallic aortic valve in December 2016 as I had aortic regurgitation and an aortic aneurysm. I was placed on warfarin but could never be stabilised on this, with my INR ranging from 1.1 to greater than 8 at any given time. I was referred to haematology - who said it was down to
Hi all. I received a metallic aortic valve in December 2016 as I had aortic regurgitation and an aortic aneurysm. I was placed on warfarin but could never be stabilised on this, with my INR ranging from 1.1 to greater than 8 at any given time. I was referred to haematology - who said it was down to
Debs_22
in
Anticoagulation Support
6 years ago
Platelets & Metastasis. Low Molecular Weight Heparin.
New study below. Should interest those using heparin. "The interaction with platelets is of crucial importance for tumor cells passing through hematogenous metastasis. Platelets protect cancer cells from immune surveillance and exhibit many other prometastatic effects. Notably, platelets can change
New study below. Should interest those using heparin. "The interaction with platelets is of crucial importance for tumor cells passing through hematogenous metastasis. Platelets protect cancer cells from immune surveillance and exhibit many other prometastatic effects. Notably, platelets can change
pjoshea13
in
Advanced Prostate Cancer
6 years ago
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