My transplant coordinator msgd me on MyChart to tell me that my case goes before the next selection committee to submit to UNOS! I'm taking it with a grain of salt, because EVERY decision has a flip side, but this is the right direction.
In the meantime, dialysis is going fair to middlein'. Apparently, there's an issue with venous pressures and clotting in the machine. One session recently, I was three flushes in before they took me off early. No biggie, as I was on a maintenance run. They never need to draw off fluid because I still produce urine. They want to avoid raising the heparin amounts during dialysis, and I'm in total agreement with that. And now, my nephrologist wants to send me to the vascular clinic for CT of the vein downstream of my fistula. I've already had two fistulagrams, for those of us keeping score.
More as time goes on....
G
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PeaB4YouGo
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I've never heard of a UNOS board. I'm on the list for a transplant and have been for almost 3 years. I know about all the testing etc and then there was a meeting with what they call my team. Surgeon, nephrologist, nurse,social worker, financial person and whoever else but they are at the transplant center/hospital.
I don't know maybe this board is where you live or something new?
I'm not sure where you're from, but UNOS is the organization that coordinates and manages the organ donor/recipient lists in the US. More at: en.wikipedia.org/wiki/Unite...
Hello. As far as dialysis goes, I was a patient in hospital 3 months. They dialyzed me 3 days/wk X3 months post AKI from Meningococcal Septicemia, so I had a central line in my chest... CVA port?The unit nurses were wonderful and the best at what they do. I had no graft, so don't know what advice I can offer.
Only thing I can offer is when you don't feel right during treatment, let the staff know immediately. It's probably because of too much dilution or minerals taken out. It feels like "impending doom" probably 'cause bp was dropping fast.😯
Good luck with transplant board process. Hope it happens soon.🙏
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Transplant list
Travel while on wait list
Am I not taking my Stage 4 CKD seriously enough?
Just rambling and venting
