Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

All posts for November 2023

RLS-UK CHRISTMAS CARDS FOR SALE - FREE P&P (UK ONLY)

Please help us to raise awareness of RLS. Christmas cards are available for purchase. Should you wish to place an order please visit the shop on our website...

Please help us to raise awareness of RLS. Christmas cards are available for purc...

Kaarina

Administrator•6 months ago

1 Reply

Methadone and Anxiety

I am interested in hearing from the group, when prescribed methadone, if you have anxiety, as in on airplanes, medical exams, or possibly a situation that...

I am interested in hearing from the group, when prescribed methadone, if you hav...

vikkitennis

•6 months ago

13 Replies

Fed up

Tried all the medication available for rls Pramipexole was useful but stopped working so went onto Neupro which was useless. Back on pramipexole for 1 month...

Tried all the medication available for rls Pramipexole was useful but stopped ...

Rubynessie

•6 months ago

16 Replies

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DAWS success story?

Hi all, After a brutal stop of pramipexole (extended release) two weeks ago, predated by a tapering off Venlafaxine from March to August, I'm experiencing the...

Hi all, After a brutal stop of pramipexole (extended release) two weeks ago, pr...

Mikatrap

•6 months ago

49 Replies

reversal of approval

Ihave been on Buprenorphine for two and a half month and doing well. I was able to stop the Pramipexol. All of a sudden, the pharmacy says it can’t refill it...

Ihave been on Buprenorphine for two and a half month and doing well. I was able ...

teakabeagle

•6 months ago

45 Replies

Alternative treatment for RLS.

I was placed on Miramax for RLS. After a few days I was hallucinating and had vision irregularities. I thought that nothing would help me. But a counselor told...

I was placed on Miramax for RLS. After a few days I was hallucinating and had vi...

Jmackrella

•7 months ago

14 Replies

Switching from Gabapentin to Horizant?

I'm currently taking 2400mg of Gabapentin, for my PLMs, and gradually reducing..my plan is to switch to Horizant/Gabapentin enacarbil. Does anyone know how...

I'm currently taking 2400mg of Gabapentin, for my PLMs, and gradually reducing.....

pianoplayerPLMD

•7 months ago

1 Reply

continued RLS after stopping statin

As one post I read here said, many here may know and accept that statins can cause RLS. My PCP is sceptical of this and wondered why I still have RLS if I no...

As one post I read here said, many here may know and accept that statins can cau...

JAHMA

•7 months ago

4 Replies

FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!

First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained...

First, the relevant quote from the article: “The serum iron concentration was s...

DesertOasis

•7 months ago

32 Replies

Had enough

At my wits end now. It used to be at night but it's all day every day. I'm on the mac dose now of the Neupro patch. I've tried oils, creams, vitamins. Only...

At my wits end now. It used to be at night but it's all day every day. I'm on th...

Labradormummy

•7 months ago

15 Replies

Help this is not a life

The sensation of tugging and pulling and aching and electric jabs is in the groin as well now, WTF if going on??? Anxiety and jitters and whole body feels like...

The sensation of tugging and pulling and aching and electric jabs is in the groi...

Hidden

•7 months ago

3 Replies

Hrt yes or no

Hello....before my iron infusion a random gp suggested I take hrt ????I haven't presented with menopausal symptoms and still have regular cycles . I'm aware...

Hello....before my iron infusion a random gp suggested I take hrt ????I haven't ...

Baz33

•7 months ago

5 Replies

RLS AND MENOPAUSE

RLS-UK are interested to hear your experiences. For example, did your RLS symptoms intensify?

RLS-UK are interested to hear your experiences. For example, did your RLS sympto...

Kaarina

Administrator•7 months ago

21 Replies

Requip and Collagen

I have been taking Requip for several years and started taking Collagen last year as I had come off HRTand my hair and nails were in a terrible condition. I...

I have been taking Requip for several years and started taking Collagen last yea...

Brenda48

•7 months ago

13 Replies

Update

I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then...

I've finally come off ropinirole and am taking pregabalin150 mg only. It's not b...

Firenze1

•7 months ago

3 Replies

I am feeling so sick

Good morning friends. A few weeks ago I posted about fatigue and nausea and I received really helpful replies suggesting I may need to take Tramadol at regular...

Good morning friends. A few weeks ago I posted about fatigue and nausea and I re...

GaryHB

•7 months ago

39 Replies

getting off pramipexole

I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the...

I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramip...

Moretravel1

•7 months ago

21 Replies

Coming of Ropinorol

Hi I have been on Ropinorol since 2007 And now have mayor DAWs Tried to come of it but it is impossible I get to 0.25mg I am ok but has soon has I stop taking...

Hi I have been on Ropinorol since 2007 And now have mayor DAWs Tried to come of ...

Browne1212

•7 months ago

16 Replies

rls and af

I have been given Prop for my AF, cardiologist changed me over from Digoxin to it. I also have restless legs and they seem to have become really bad since...

I have been given Prop for my AF, cardiologist changed me over from Digoxin to i...

Hidden

•7 months ago

2 Replies

Could This Be Why Some of Us have Less RLS While Sleeping in The Prone Position

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2719968/ Prone position supposedly increases body temperature. Raised body temperature increases dopamine...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2719968/ Prone position supposedly...

DesertOasis

•7 months ago

14 Replies

propanolol

I have been put on propanolol for AF, my legs have seem to have got worse with the jitters and I have very high anxiety. Has anyone reacted to prop like this?...

I have been put on propanolol for AF, my legs have seem to have got worse with t...

Hidden

•7 months ago

6 Replies

Severe RLS and scared.

I have had intermittent RLS for most of my adult life which increased 10 years ago and became severe. I am taking Ropinerole 2mg at night with an extra 0.25...

I have had intermittent RLS for most of my adult life which increased 10 years ...

Helthom

•7 months ago

28 Replies

Gabapentin dose

Can someone (Sue?) clarify the point at which gabapentin looses efficacy?I've seen both 600 mgs and 900 mgs. Thanks

Can someone (Sue?) clarify the point at which gabapentin looses efficacy?I've se...

Whippetmama

•7 months ago

7 Replies

To Infuse or not to Infuse

I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few...

I figured it was time to put the 45 infusion stories I could find all together s...

DesertOasis

•7 months ago

15 Replies

Coming out of a very very long dark tunnel.

Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite...

Those of you who have the patience to read my sometimes rambling posts will know...

HipHop1972

•7 months ago

9 Replies

Augmentation- Report via Yellow Card Scheme

The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole,...

The MHRA is encouraging people to report adverse side effects via the Yellow Car...

Joolsg

•7 months ago

5 Replies

Iron infusion

I had an iron infusion 10 days ago .I'm taking 1800mg gabapentin over 3 doses and taking fumarate oral iron x 2 x 325 mg . My symptoms have reduced and my...

I had an iron infusion 10 days ago .I'm taking 1800mg gabapentin over 3 doses an...

Baz33

•7 months ago

13 Replies

Duration of dopamine agonist withdrawal symptoms?

I stopped Mirapexin extended release 0.26mg 12 days ago, and my withdrawal symptoms are a nightmare and getting worse and worse. How long should it last? When...

I stopped Mirapexin extended release 0.26mg 12 days ago, and my withdrawal sympt...

Mikatrap

•7 months ago

11 Replies

Red Yeast Rice Supplement

does anybody take this supplement for cholesterol, if so does it interfere with your RLS. It is free of Monacolin, think that might be important. Thanks

does anybody take this supplement for cholesterol, if so does it interfere with ...

Catbennie

•7 months ago

4 Replies

Gabapentin and night time waking

HiI've had some wonderful advice on here previously so just returning for a bit more although I do follow the posts in here. I'm on Gabapentin take 1800mg my...

HiI've had some wonderful advice on here previously so just returning for a bit ...

VJ29

•7 months ago

24 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for November 2023

RLS-UK CHRISTMAS CARDS FOR SALE - FREE P&P (UK ONLY)

Methadone and Anxiety

Fed up

DAWS success story?

reversal of approval

Alternative treatment for RLS.

Switching from Gabapentin to Horizant?

continued RLS after stopping statin

FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!

Had enough

Help this is not a life

Hrt yes or no

RLS AND MENOPAUSE

Requip and Collagen

Update

I am feeling so sick

getting off pramipexole

Coming of Ropinorol

rls and af

Could This Be Why Some of Us have Less RLS While Sleeping in The Prone Position

propanolol

Severe RLS and scared.

Gabapentin dose

To Infuse or not to Infuse

Coming out of a very very long dark tunnel.

Augmentation- Report via Yellow Card Scheme

Iron infusion

Duration of dopamine agonist withdrawal symptoms?

Red Yeast Rice Supplement

Gabapentin and night time waking

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