hello all. I don’t know what to make of my face to face appointment yesterday and I feel rather emotional.
It’s been well over two years since I saw a rheumatologist face to face - or indeed any kind of hospital medic. All that time my lovely learned consultant told me that although the arthritis was slowly burning through all my dip joints and deforming them ( apparently I have something more typical of psoriasic arthritis.) I was essentially “on the edge of control” and although I am stuck on pred he saw no desperate urgency. And so I have muddled on working full time and just accepting that this is how it is.
Yesterday’s guy was very brusque and matter of fact. He took one look at me and announced that the disease was very active indeed. He asked my what level I thought my disease was at and when I said a 3 or 4 ( already upped in my mind due to his previous comments) he said he would have put the number at much higher.
Don’t get me wrong it’s good that he wants to fix things but I feel very emotional about all this and worried now. How could he have such a different view of things? And does this mean I have been under served all this time by my previous beloved consultant? It’s also very unnerving to be so starkly reminded of just “how ill” I am.
I was really tearful after the appointment and would welcome any thoughts or experiences from my fellow arthritis sufferers.