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NRAS

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All posts for June 2022

Wrong words

When I speak, sometimes I say the wrong word for what I mean to say. One day I said shelf for cabinet. Today I said Africa, and I knew I was talking about...

When I speak, sometimes I say the wrong word for what I mean to say. One day I ...

brownsnest

•2 years ago

16 Replies

Tomorrow’s first rheumatologist consultation

At last the first appointment is nearly here. While very relieved, I’m starting to feel a little daunted as I have so many symptoms, not necessarily all...

At last the first appointment is nearly here. While very relieved, I’m starting ...

Gottarelax

•2 years ago

18 Replies

refused 5th Covid vax.

I took my reminder letter from NHS to the walk-in vaccination centre at Queen Mary's Hospital, SW15 but they refused to administer it on the grounds that...

I took my reminder letter from NHS to the walk-in vaccination centre at Queen Ma...

tangolil

•2 years ago

63 Replies

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I need to change Hospitals

Please can anyone tell me if they have been able to change their Hospital trust for another one for their Rheumatology appointments? I have been with the same...

Please can anyone tell me if they have been able to change their Hospital trust ...

greeksalad

•2 years ago

29 Replies

Ra Stuff

Hello troopers,I find it remarkable reading what folk have experienced and what they still must go through on the forum to mitigate their various difficult...

Hello troopers,I find it remarkable reading what folk have experienced and what ...

Wantplaytennis

•2 years ago

8 Replies

Update on f2f (being called to the headmasters room) :)

Hi Everyone Just thought I'd give an update on my f2f last Thursday. A bit of background, started on 90mg of etorcoxib January 2020, 200mg of...

Hi Everyone Just thought I'd give an update on my f2f last Thursday. A bit of ba...

Garnacha

•2 years ago

28 Replies

Vagus nerve massage for the ear 👂 Auricular release 😌

I came across this video which shows how to massage your ears and, possibly, stimulate your vagus nerve. I tried it; it felt really relaxing 😌 It is said to...

I came across this video which shows how to massage your ears and, possibly, sti...

Moomin8

•2 years ago

13 Replies

Travelling with Refrigerated Medication

Hello, I was wondering if anyone had travelled around with Cimzia or another medication that needs to be kept refrigerated? I am travelling for 2 months which...

Hello, I was wondering if anyone had travelled around with Cimzia or another med...

Maple_22

•2 years ago

27 Replies

NRAS Stress Matters Survey

*We have closed the survey due to reaching our target number of responses earlier than anticipated. Thank you to everyone who has completed the survey, your...

*We have closed the survey due to reaching our target number of responses earlie...

Aribah-NRAS

Partner•2 years ago

8 Replies

Clinical trials invitation

Clinical trials invitation :Study title :IMID BIOResource(Immune mediated Inflammatory Diseases) I have been sent this invitation to participate via my...

Clinical trials invitation :Study title :IMID BIOResource(Immune mediated Inflam...

tinlizzie

•2 years ago

1 Reply

Is anyone using Boswellia and/or Curcumin tablets for RA?

Hi Everyone! I've been diagnosed with RA in April 2017. Since then I have been using methotrexate (injection then pills). In the last year or so, I have been...

Hi Everyone! I've been diagnosed with RA in April 2017. Since then I have been ...

NavatheDarker

•2 years ago

21 Replies

RA, MT X and Folic acid

After 3 years, I am getting a reaction 15 minutes after a daily 5mg Folic Acid tablet. My Rheumatologist is unbelieving so I guess I'm alone unless other RA...

After 3 years, I am getting a reaction 15 minutes after a daily 5mg Folic Acid ...

Whitegate

•2 years ago

13 Replies

Amgevita / Adalimumab side effects

Hi everyone just a quick update, four months now taking 40mg Amgevita / Adalimumab. The side effects are now appearing which are not that good at all and...

Hi everyone just a quick update, four months now taking 40mg Amgevita / Adalimu...

Frankiefocus

•2 years ago

16 Replies

COSENTYX alternative??

I have been on 300mg Cosentyx since Dec, I also take MTX which my consultant reduced from 20 to 10 as she felt my neutrophils were too low. While I am better...

I have been on 300mg Cosentyx since Dec, I also take MTX which my consultant red...

Gilliancheche

•2 years ago

4 Replies

Starting Methotrexate, Prednisone together?

Hello, I hope I have posted in the right place on the forum now. To cut a long story short, I have just been diagnosed with Spondyloarthropathy through...

Hello, I hope I have posted in the right place on the forum now. To cut a long ...

Jomox

•2 years ago

43 Replies

Cataract surgery and recovery

I had cataract surgery on my right eye. The eye has been constantly watering - is that normal? I'm applying 3 different eye drops - one every 2 hours -...

I had cataract surgery on my right eye. The eye has been constantly watering - i...

PSAWarrior28

•2 years ago

5 Replies

Inflammation and normal Crp levels

Hello. Is it possible to have inflamed tendons and normal CRP levels. Thanks

ks1966

•2 years ago

20 Replies

Private consultation

I am so glad in many ways I paid to do the spinal consultation as at least it’s made me feel calmer but also I now have a better understanding of what is going...

I am so glad in many ways I paid to do the spinal consultation as at least it’s ...

Deeb1764

•2 years ago

24 Replies

Reminder app

Does anyone know a reminder app for meds?? Depression caused me memory loss as I barely remember my morning pill P.s from the App Store pls

Does anyone know a reminder app for meds?? Depression caused me memory loss as I...

halsey18

•2 years ago

18 Replies

added twist part 2!

Forgot to say that I had ultrasound on the shoulder and the tendons are torn and have now been referred on to ... can't remember, for surgery presumably. Yay.

Forgot to say that I had ultrasound on the shoulder and the tendons are torn and...

Brychni

•2 years ago

8 Replies

added twist

Hello all Haven't posted for a while as generally, things OK ish. Had a few ups and downs with the HRT but seems to be good at the moment and overall a benefit...

Hello all Haven't posted for a while as generally, things OK ish. Had a few ups ...

Brychni

•2 years ago

3 Replies

No mask wearing

I have a face to face appointment with Rheumatologist coming up and have just heard that they have dropped all mask wearing in the clinics. I am very nervous...

I have a face to face appointment with Rheumatologist coming up and have just he...

Sheila_G

•2 years ago

141 Replies

Off Topic -La Coruna Sunrise

Two years a hermit. The longer I stayed in, the harder it became to see anyone. Two years indoors on my own. Things needed to change. Here I am on a cruise....

Two years a hermit. The longer I stayed in, the harder it became to see anyone....

HappykindaGal

•2 years ago

32 Replies

Adalimumab effect only lasting 10 days

I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?

I am on fortnightly injections and find day 1 to 11 I am quite pain free and not...

vonniesims

•2 years ago

8 Replies

Rutuximab and covid

Hello my husband has has 2 rutuximab infusions and a few days ago I read a post on this forum which said those who have had rutuximab and then catch covid has...

Hello my husband has has 2 rutuximab infusions and a few days ago I read a post ...

chinpolo

•2 years ago

36 Replies

Which anti inflammatory for RA?

Ibuprofen and Naproxen do not help. I've heard there is an alternative that can be prescribed, but can't remember the name of it. Anyone know?

Ibuprofen and Naproxen do not help. I've heard there is an alternative that ca...

tazman3

•2 years ago

23 Replies

benepali

Hi everyone, can anyone tell me how long it took for them to feel a difference in their RA after taking Benepali injections. My husband has not been controlled...

Hi everyone, can anyone tell me how long it took for them to feel a difference i...

Rockky

•2 years ago

27 Replies

Off topic

Good morning all just woke up to let Jack out ,what a loverly morning .This is the view from my bedroom window at 4-15 am .Going back to bed now .Have a good...

Good morning all just woke up to let Jack out ,what a loverly morning .This is t...

Matalow

•2 years ago

15 Replies

Query re immuno suppressant and Paxlovide

Looking for some advice re restarting my immuno suppressant Methotrexate and Benapali injections weekly. Have had Covid and had 5 day treatment of antiviral...

Looking for some advice re restarting my immuno suppressant Methotrexate and Ben...

Fj65

•2 years ago

4 Replies

Rituximab and covid

I've been on Rituximab successfully for several years now. But since learning that Rituximab reduces the impact of covid vaccinations, my rheumatologist is...

I've been on Rituximab successfully for several years now. But since learning th...

cathie

•2 years ago

34 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for June 2022

Wrong words

Tomorrow’s first rheumatologist consultation

refused 5th Covid vax.

I need to change Hospitals

Ra Stuff

Update on f2f (being called to the headmasters room) :)

Vagus nerve massage for the ear 👂 Auricular release 😌

Travelling with Refrigerated Medication

NRAS Stress Matters Survey

Clinical trials invitation

Is anyone using Boswellia and/or Curcumin tablets for RA?

RA, MT X and Folic acid

Amgevita / Adalimumab side effects

COSENTYX alternative??

Starting Methotrexate, Prednisone together?

Cataract surgery and recovery

Inflammation and normal Crp levels

Private consultation

Reminder app

added twist part 2!

added twist

No mask wearing

Off Topic -La Coruna Sunrise

Adalimumab effect only lasting 10 days

Rutuximab and covid

Which anti inflammatory for RA?

benepali

Off topic

Query re immuno suppressant and Paxlovide

Rituximab and covid

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