Posts - NRAS | HealthUnlocked

NRAS

36,607 members • 45,226 posts

All posts for June 2015

More trouble for me....

Went to the doctors yesterday as i wasn't sleeping due the pain in my neck. I couldn't get in so i rang my nominated phone number and spoke to my nurse and she...

Went to the doctors yesterday as i wasn't sleeping due the pain in my neck. I co...

sylvi

•9 years ago

17 Replies

Glasgow Support Group

New group has a Facebook page GlasgowNRAS and a contact email address GlasgowNRAS@gmail.com. We welcome anyone interested in setting the group up.

New group has a Facebook page GlasgowNRAS and a contact email address GlasgowNRA...

sooty007

•9 years ago

2 Replies

THE CURE

Have to laugh, if only it could work - I was talking with my neighbour this evening and she asked how I was feeling. I just said my knee was playing up again...

Have to laugh, if only it could work - I was talking with my neighbour this even...

Hidden

•9 years ago

9 Replies

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hot weather

most people seem to think that cold and damp makes R A worse, but I suffer more in the heat and that is when I can have a flare up. Anyone else have this?

most people seem to think that cold and damp makes R A worse, but I suffer more ...

catwoman4

•9 years ago

16 Replies

Demonstration today

I've heard on the radio that disabled people are demonstrating against proposed cuts to disability benefits at Parliament today. Does anyone have any detailed...

I've heard on the radio that disabled people are demonstrating against proposed ...

Hidden

•9 years ago

12 Replies

Etanercept

Hi all So excited that i have finally been given the go ahead for Etanercept and have my first jab on 1st July, any advice would be most appreciated, my RA...

Hi all So excited that i have finally been given the go ahead for Etanercept a...

dfur7785

•9 years ago

17 Replies

nhs ill health retirement

Hi i have polyarthritus, in lower neck cervical spine right shoulder knees and both ankles, i had a total hi replacement 4 yrs ago, was successful but still...

Hi i have polyarthritus, in lower neck cervical spine right shoulder knees and b...

suzyhart

•9 years ago

8 Replies

what hospital for rheumatologist

Hi All, am just wondering if anyone living near Bexley Kent goes to Queen Marys Hospital rheumatology and find it any good as they seem to have not replaced Dr...

Hi All, am just wondering if anyone living near Bexley Kent goes to Queen Marys ...

14penny

•9 years ago

3 Replies

First Appointment

Going to see my rhomatologist for the first time tomorrow not quite sure what to expect ? Also I've been told I need a letter for my pip application, not sure...

Going to see my rhomatologist for the first time tomorrow not quite sure what to...

CTrigss

•9 years ago

9 Replies

What next

Hi all Since February 2014 my RA has not been controlled. I had rituximab last August (which failed) and in March of this year I started toxciclumab...

Hi all Since February 2014 my RA has not been controlled. I had rituximab last ...

Rachel43

•9 years ago

5 Replies

itchy skin driving me crazy, can't sleep

My skin becomes very itchy when I get warm, I don't sweat very well and can't shower as my skin is so sensitive. Every night and sometimes during the day, my...

My skin becomes very itchy when I get warm, I don't sweat very well and can't sh...

Iona467

•9 years ago

11 Replies

Holiday?

Hi all, I was diagnosed with RA in late April this year and I'm now on Methotrexate, Hydroxychloroquine, Sulfasalazine, and Naproxen with Tramadol/Co-codamol...

Hi all, I was diagnosed with RA in late April this year and I'm now on Methotrex...

Hidden

•9 years ago

7 Replies

Medication - trying to get pregnant

Hi I was on diclophenac and methatrixate but have recently been changed to susfasalazine and nepraxim because trying to get pregnant, but just read online you...

Hi I was on diclophenac and methatrixate but have recently been changed to susf...

Bev486

•9 years ago

8 Replies

diclophenac

Hi folks Has anyone else had a problem getting diclophenac from chemist? Apparently there is a supplier problem in fife?

Hi folks Has anyone else had a problem getting diclophenac from chemist? Apparen...

Bev486

•9 years ago

9 Replies

Upset tummy

Hi, have had two of my three infusions of inflixamab, after the first one had an upset tummy. Since the second one am dashing to the loo in the morning and...

Hi, have had two of my three infusions of inflixamab, after the first one had an...

tich57

•9 years ago

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My day, feeling bleugh

Hiya all. Feeling a little down in the dumps. Got my PIP Assessment on Thursday and I saw the lovely rheumatology nurse today who agreed that the current...

Hiya all. Feeling a little down in the dumps. Got my PIP Assessment on Thursday ...

jlmack

•9 years ago

11 Replies

Tocilizumab injections.

Has anyone suffered from a huge distended stomach as a sideeffects for this drug. When I say swollen I mean looking full term pregnancy swelling.

Has anyone suffered from a huge distended stomach as a sideeffects for this drug...

creakybones

•9 years ago

2 Replies

Pride

I was too proud to apply for mobility allowance some years ago. I had to retire at 59 from nursing due to RA, but with my pension and my late husbands was ok...

I was too proud to apply for mobility allowance some years ago. I had to retire ...

Cagsie

•9 years ago

4 Replies

pip benefit

I,ve just posted my pip application form,doe,s anyone know how long it takes to receive a reply.

I,ve just posted my pip application form,doe,s anyone know how long it takes to ...

gradyjackjacob

•9 years ago

10 Replies

Struggling with it all

Hi, I'm really struggling with lots of aspects of my RA, I have been really lucky with a relatively quick diagnosis because it was so bad at Christmas! I was...

Hi, I'm really struggling with lots of aspects of my RA, I have been really luck...

Ra35

•9 years ago

22 Replies

Frustrated

I have had RA since October, have been on methotrexate 4 times now each time my Liver Enzymes are out of control, had been on naproxen for over a year now and...

I have had RA since October, have been on methotrexate 4 times now each time my ...

Niclyn

•9 years ago

4 Replies

Buzzing head and hissing ears

Hi every one I follow the posts every day and wondered if anyone else has a buzzing sound and a hissing noise in their ears . I have had RA for a year and a...

Hi every one I follow the posts every day and wondered if anyone else has a buzz...

Euphemia41

•9 years ago

12 Replies

RA pip face to face

Hello all, I've been told I'm having a face to face for my PIP and wondered if anyone has had one at home? And what I should expect, very nervous!

Hello all, I've been told I'm having a face to face for my PIP and wondered if a...

Ra35

•9 years ago

2 Replies

Travelling with meds

Hi, I'll be flying to Lisbon early next month and I have all my meds to take along including my tocilizumab self-administered injections. has anyone travelled...

Hi, I'll be flying to Lisbon early next month and I have all my meds to take alo...

nesantos

•9 years ago

10 Replies

Pain pain please go away.......

Got up this morning in a lot of pain. Didn't want to go out to a county parade,but i knew hubby wouldn't let me stay at home as i take the photos for our...

Got up this morning in a lot of pain. Didn't want to go out to a county parade,b...

sylvi

•9 years ago

13 Replies

Liver blockage :(

Hi I wrote a wee post 5 days ago about me being jaundiced....was admitted to hospital and after Ultra sound and CT scan have discovered I have a blockage on...

Hi I wrote a wee post 5 days ago about me being jaundiced....was admitted to ho...

Rockpool60

•9 years ago

4 Replies

Just got to keep going.....

I've not been on here for a while as I've been so ill with pain and disability. Abatacept plus MTX was working great for me earlier on in the year. I had a...

I've not been on here for a while as I've been so ill with pain and disability. ...

Metal-legs

•9 years ago

12 Replies

Feeling hopeful

Well after 6 months of pure hell, having come off biological therapy I saw the consultant who has started leflunomide for me. Fingers crossed it helps get this...

Well after 6 months of pure hell, having come off biological therapy I saw the c...

Cara40

•9 years ago

7 Replies

Tocilizumab infusions

Hi everyone, It will be 2 weeks on Tuesday since I had my first infusion and I am feeling really good. I just had one flare up with my right knee, very...

Hi everyone, It will be 2 weeks on Tuesday since I had my first infusion and I a...

angel-delight

•9 years ago

11 Replies

Writing problems

Hi. I'm struggling with writing because of elbow pain. Has anyone tried Ergosof pens and do they help? Thanks Susan

Hi. I'm struggling with writing because of elbow pain. Has anyone tried Ergosof ...

Alderess

•9 years ago

7 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for June 2015

More trouble for me....

Glasgow Support Group

THE CURE

hot weather

Demonstration today

Etanercept

nhs ill health retirement

what hospital for rheumatologist

First Appointment

What next

itchy skin driving me crazy, can't sleep

Holiday?

Medication - trying to get pregnant

diclophenac

Upset tummy

My day, feeling bleugh

Tocilizumab injections.

Pride

pip benefit

Struggling with it all

Frustrated

Buzzing head and hissing ears

RA pip face to face

Travelling with meds

Pain pain please go away.......

Liver blockage :(

Just got to keep going.....

Feeling hopeful

Tocilizumab infusions

Writing problems

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