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Myositis UK

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AntiSynthetase Syndrome Support Group & The Myositis Community of Great Britain & Ireland

AntiSynthetase Syndrome Support GroupWorldwide ASS support group on facebook - ...

IBM and commode

Getting up from the commode is now becoming difficult. Has anyone got any tips o...

University of Cambridge research survey

NEED YOUR HELP!!! University of Cambridge research survey: Melanie Sloan from ...
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advise on how to manage the derma (skin) with DM

I've been told that skin rash/ulcers are the most difficult to treat . Has anyo...

Holiday with a disability!

Have decided I need a break, the last 3 yrs have not been kind to me, I am looki...

Help with excess mucus in the throat

Hi I’m Exclimber. Diagnosed with inclusive body myosotis 9 lonely years ago. I ...

Medication weight gain

Hi All, I have dermatomyositis diagnosed in November and started on meds in Dec...

Ocular myosotis spreading?

Hello, does anyone know whether ocular myosotis can spread to other parts of you...

Predisnolone and Acne

Hi all, Currently on Prednisolone which has resulted in severe acne on back and ...

IBM and getting off the bed

Has anyone got any tips on aids to help get up off the bed. I am not able to use...

Recent diagnosis of Dermamyositosis

Daughter 22 had Covid then her immune system attacked her.. she was hospitalised...

That's how a myostitis person drink it's morning coffee

I like coffee because it gives me the illusion that I might be awake from this...

Symptoms have returned after picking up a bad cold -is that normal?

I was diagnosed with Dermatomyositis in November and I’ve been on my meds since ...

Does Polymyositis cause numbness and tingling in the face

My husband was originally diagnosed with Stills disease in March 2019. By August...

Looking fir travel insurance to cover Anti Jo Antisynthetase Syndrome

I have Anti jo Antisynthetase syndrome. Can anyone recommend a travel insurance ...

Hello, I am new here

Hi, I'm new here having been diagnosed with polymyositis just before Christmas. ...

The Myositis Community of Great Britain & Ireland

Just to make you aware of the Myositis Community group on facebook. It's a priv...

Dermatomyositis

Hi All, just been diagnosed with Dermatomyositis-been on my medication a month. ...

Dermatomyositis Diagnosis in December 2021

Good afternoon, Having received my diagnosis in the middle of December this is a...

Lifetime of Myositis?

I can remember as far back as aged 5 experiencing weird muscle fatigue and painf...

COVID fears

Hi all after a year of sheiding I caught COVID,I have joe-1 ,the resporitory te...

IBM and warfarin

Has anyone with IBM recently started warfarin and does it affect IBM at all?

Covid 19 vaccine derived Polymyositis

Prior to receiving the Pfizer COVID vaccine I was healthy, strong and active. A...

Necrotising myosotis

Hi, does anyone get restless legs, like pins and needles at night and muscle ach...

3rd jab

I had two phone call on Wednesday to have my flu jab,I also received a tex to ha...

Newly Diagnosed

Hi Everyone, Im hoping someone can help. Im 34 and I have been living with chron...

Statins and myosotis. A warning

I have necrotising myosotis which tests show is due to statin therapy. Every tim...

New name, same UK only Myositis community on facebook: The Myositis Community of Great Britain & Ireland

The Myositis Community of Great Britain & Ireland, with over 2000 UK & Ireland m...

Necosising myositis

Hi I have been diagnosed with necosising myositis as I have the A positive bloo...

Keeping positive,

Hi all still rocking💪💪
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