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Myositis UK

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pain control

looking for help in controlling pain ….affecting my day to day life badly
Shiner33 profile image

pain control

looking for help in controlling pain ….affecting my day to day life badly

Physiotherapy

I was diagnosed in October last year and treatment (cyclophosphamide) was going ...
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ck level

good evening Just wonderIng what sort of levels congas been . Before being dia...
50guy profile image

Any experience of Therapy?

I am considering psycotherapy as I face up to the reality of this progressive,...
Bluffeypompom profile image

Dermatomyositis self help group/ anyone in existence ?, please send me contact. I am based in Swansea, Wales. 07804849206

josecifuentes
angelsue profile image

Dermatomyositis

I have a friend who was recently diagnosed with Dermatomyositis. Is this group a...
Zompopo1987 profile image

family member in ICU

my brother is in the ICU in critical condition. They have diagnosed dermatomyosi...
Talulah23 profile image

annmarie

hi. I am newly diagnosed with polymyositis and ILD (caused by the polymyositis)...
Airfry profile image

immunosuppressed, covid positive - anyone have an experience with antivirals?

hello lovely people of this wonderful forum - seeking any insight or guidance ...
ruablue profile image

Merry Christmas to All

Hope you all enjoy the Festive Season x
hopegalore20 profile image

Getting blood test for nutrients not found in common blood test

I have a few questions for the group. First my background information: I am in t...
Eliotf profile image

rituximab

Hello All, I hope you are all doing ok. I wondered if anyone has had rituximab...
ruablue profile image

Feeling so alone

I don't even know where to start after "getting better" when I was early teens f...
Ho0lio76 profile image

symptoms

Can someone please tell me about myositis symptoms? As I’m sure this is what I’v...

mistaken diagnosis

Hi I’m just wondering if myositis can be mistaken for PMR ? I am asking becau...

Life insurance with Dermatomyositis

Hi all, I hope this sort of advice/discussion is welcome on here, I’m looking f...
amp0124 profile image

Polymyositis with visible swelling

My friend is still struggling to get a diagnosis. Can i ask if anyone have Polym...
Angebuck profile image

Newly diagnosed with IBM

Hello folks, Recently diagnosed, around a year ago but had symptoms for well ov...
JerryK598 profile image

IBM & Bed slide sheets

Just a quick question to people living with inclusion body myositis- which slide...
InspireMe profile image

Positive for ej & oj antibody

Hello. I went to the rheumatologist for the first time recently and my blood wor...
88alexandra profile image

Myositis UK Newsletter Summer 2023

Summer 2023 Newsletter Includes details of new research for‘Inclusion body myo...
Jo-Goode profile image
Administrator

Myositis UK Conference Sunday 23rd July 2023

We are pleased to announce that we are holding our Annual General Meeting and Co...
Jo-Goode profile image
Administrator

Hello

Hi I have been diagnosed with an anti synthesase syndrome with features of myos...
Bronte007 profile image

How to join Myositis UK

Hi, I have been suffering from statin induced necrotising myopathy for over 3 ye...
harveysgran profile image

sIBM diagnosis

Was recently diagnosed with sIBM. How many years before my arms and legs lose fu...
TiredSoul10 profile image

Teddy Bo

how do I go about getting a teddy and a book for my daughter who has recently be...
BetherinaBoo profile image

Covid Vaccine - Yes or No?

So having had Polymysoitis since 1995, and been advised not to take any vaccines...
MyositisMan profile image

Diagnosis Help

Hi there, I have been suffering for over 2 years with extreme fatigue which was ...
BuddyDolly profile image

Alirocumab (Pralient) anti PCSK9

Hi I have NIMN caused by taking statins, that is more or less under control with...
Nearness profile image
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