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Myositis UK

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Frustration in obtaining conductivity and EMG tests, muscle scan and biopsy for diagnosis

I have at last been diagnosed with Polymyositis, having gone privately to the London Neurology Clinic. I am on prednisonal and a tummy lining tablet for the...

I have at last been diagnosed with Polymyositis, having gone privately to the Lo...

Campergirl76

•2 days ago

3 Replies

Presentation

Hi comunity, I'm a 63 years old male from Belgium. I was diagnosed with NAM in september this year. Actualy I'm under Medrol ( corticoïdes 48g) and...

Hi comunity, I'm a 63 years old male from Belgium. I was diagnosed with NAM in s...

Killy_21

•8 days ago

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muscle pain

I developed severe loss of muscle strength about 15 years back followed on by extreme arm muscle pain - so severe I cannot even take a BP test or use my arms...

I developed severe loss of muscle strength about 15 years back followed on by ex...

Nigellaflower

•10 days ago

1 Reply

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Dermatomyositis

Hi All I started with health issues in the 1980's but struggled to get and definite diagnosis. This changed when I was sent to a Guys and St Thomas'. They...

Hi All I started with health issues in the 1980's but struggled to get and def...

Hidden

•14 days ago

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I have just been diagnosed with Myositis, but not had a muscle biopsy to confirm the type. How long did it take you to get a muscle biopsy?

I have had a muscle condition in my lower legs and now my arms with difficulty swallowing which has degenerated over the last 3 months. I had 3 weeks in...

I have had a muscle condition in my lower legs and now my arms with difficulty ...

Campergirl76

•29 days ago

12 Replies

NLRatio

Neutrophil highLymphocytes low Divide top by bottom and you get NLRatio. Mine is high at 11 Does anyone else have this?

Neutrophil highLymphocytes low Divide top by bottom and you get NLRatio. Mine i...

Brychni

•1 month ago

12 Replies

Myositis consultant

I am self diagnosing the pain I am enduring most of the day and all of the night. Can anyone tell me if there is a myositis consultant in The Midlands, either...

I am self diagnosing the pain I am enduring most of the day and all of the night...

Peanuteater

•1 month ago

8 Replies

miss lg

hi everyone, I need a little advise please 🙂 I really haven’t been well since January went to the doctors as I just didn’t feel right my muscles were hurting...

hi everyone, I need a little advise please 🙂 I really haven’t been well since ...

Lgg23

•1 month ago

2 Replies

Polymyositis

Hi I was diagnosed with Polymyositis 2 years ago after a muscle biopsy on my left thigh The area where the muscle biopsy took place is still very painful so...

Hi I was diagnosed with Polymyositis 2 years ago after a muscle biopsy on my l...

Flowers88

•2 months ago

4 Replies

Recent diagnosis and Shocked

Hi I’m new to this site, I was diagnosed yesterday with Dermatomyositis, I’m having trouble pronouncing it let alone the spelling so hope I’ve got it correct....

Hi I’m new to this site, I was diagnosed yesterday with Dermatomyositis, I’m ha...

Bkart

•2 months ago

5 Replies

Expected new diagnosis of Myositis and my concerns

I know pretty much most of this is in my Bio and is just a copy paste to introduce myself. Can be scary when you have been a relatively healthy person all...

I know pretty much most of this is in my Bio and is just a copy paste to introdu...

Sparky076

•2 months ago

2 Replies

dermamyositis ptosis

does anyone have myositis and ptosis or myositis and mg

stiff19

•3 months ago

4 Replies

My 11 year old has Myositis

Hello all, my 11 year old was suddenly taken ill early July this year (2024) and after a week in hospital was diagnosed with Myosotis. She currently is not...

Hello all, my 11 year old was suddenly taken ill early July this year (2024) and...

Jayneepoo

•3 months ago

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Pm scl 100

Brychni 23 hours ago•3 Replies Hello 👋 I posted this message on the Raynaud's and scleroderma group but after some research wondered if anyone here can...

Brychni 23 hours ago•3 Replies Hello 👋 I posted this message on the Raynaud's ...

Brychni

•4 months ago

3 Replies

Gochujan

My GP discovered that I had elevated liver enzyme 7800 April 23 and sent me an ambulance to be thoroughly checked and went through CT San, MRI etc, seen by...

My GP discovered that I had elevated liver enzyme 7800 April 23 and sent me an a...

Gochujan

•4 months ago

5 Replies

Myositis UK Newsletter "Myositis News"

The Summer edition of "Myositis News" is now available online. https://www.myositis.org.uk/wp-content/uploads/2024/07/Myositis-News-Summer-2024.pdf

The Summer edition of "Myositis News" is now available online. https://www....

Jo-Goode

Administrator•4 months ago

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Where is the conference please ?

Where is the conference please ? Kind regards Carol

Daisydumplin

•5 months ago

2 Replies

Myositis UK Conference 14th July 2024

This years Myositis UK AGM & Conference is approaching, but still time to book a place 🙂 It will be held on Sunday 14th July 2024 at the Woodland Grange,...

This years Myositis UK AGM & Conference is approaching, but still time to book a...

Jo-Goode

Administrator•5 months ago

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support/ help

My husband has been in hospital since the 26th of May, he was a patient for 6 days before we had a diagnosis of dermatomyositis. He is currently in intensive...

My husband has been in hospital since the 26th of May, he was a patient for 6 d...

Cornwall24

•5 months ago

11 Replies

REFERRAL TO THE FORUM

"Long time member of PMRUK. What I thought was r/o, new physical evidence has brought me here. The PMR community has been great for the past 2 years, but they...

"Long time member of PMRUK. What I thought was r/o, new physical evidence has br...

SMH4CRNA

•5 months ago

1 Reply

diagnosed 4 days ago IBM never heard of it before so gathering as much info as i can in preparation

diagnosed 4 days ago INM never heard of it before so gathering as much info as I can in preparation

diagnosed 4 days ago INM never heard of it before so gathering as much info as I...

Myperu20

•5 months ago

1 Reply

Hi Guys

Hi, Well where to start?? My left eye went purple /red a few weeks ago and we thought it was an eye infection. 5 day course of antibiotics and it seemed to...

Hi, Well where to start?? My left eye went purple /red a few weeks ago and we ...

mrdarcy1

•5 months ago

2 Replies

New here

I think I put this in the wrong thread originally so I’m re sending, hopefully in the right place. Hello. I’m new here. My name is Lilia. I have...

I think I put this in the wrong thread originally so I’m re sending, hopefully i...

LiliaM

•5 months ago

2 Replies

Dermatomyositis - is it cyclical?

I’m still awaiting formal diagnosis. Tested positive for Anti Mi2, ANA 360 and had rashes across my neck, shoulders, eyebrows, behind ears and side of head...

I’m still awaiting formal diagnosis. Tested positive for Anti Mi2, ANA 360 and h...

Mumofthreeandadog

•6 months ago

1 Reply

Having chest pain

Hello everyone. Still going through the phase of being diagnosed even though I do have a current diagnosis of mctd. But my Ssa Ro52 was positive and Ana 1:640...

Hello everyone. Still going through the phase of being diagnosed even though I ...

Jadaboo4

•6 months ago

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Newbie here.

Hi, I'm Ian. Sorry for this long post. Just found out today after a 7+ yr journey of trying to figure out what is wrong with me that I have markers for...

Hi, I'm Ian. Sorry for this long post. Just found out today after a 7+ yr journe...

Eogz

•6 months ago

13 Replies

mri results

evening forum keep waiting for mri result ( had mri scan 5 weeks ago). Rang rheumatologist secretary and have been told will be posted results this week(...

evening forum keep waiting for mri result ( had mri scan 5 weeks ago). Rang rhe...

50guy

•6 months ago

1 Reply

Depression

I'm 63 eorjed all my life then 5 years ago told I had polymyalgia in 2022 told I never had polymyalgia but did have Pernicious Anemia which made sense then...

I'm 63 eorjed all my life then 5 years ago told I had polymyalgia in 2022 told I...

Foxy619

•6 months ago

2 Replies

Any AGM/annual meeting planned for this year 2024?

Anyone any idea if any AGM/annual meeting is planned for this year?

SoonToBe

•6 months ago

5 Replies

mri scan

good evening Was wonder How long you waited for the results for mri scan. Thanks A

good evening Was wonder How long you waited for the results for mri scan. Tha...

50guy

•7 months ago

1 Reply

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Posts - Myositis UK | HealthUnlocked

Myositis UK

Frustration in obtaining conductivity and EMG tests, muscle scan and biopsy for diagnosis

Presentation

muscle pain

Dermatomyositis

I have just been diagnosed with Myositis, but not had a muscle biopsy to confirm the type. How long did it take you to get a muscle biopsy?

NLRatio

Myositis consultant

miss lg

Polymyositis

Recent diagnosis and Shocked

Expected new diagnosis of Myositis and my concerns

dermamyositis ptosis

My 11 year old has Myositis

Pm scl 100

Gochujan

Myositis UK Newsletter "Myositis News"

Where is the conference please ?

Myositis UK Conference 14th July 2024

support/ help

REFERRAL TO THE FORUM

diagnosed 4 days ago IBM never heard of it before so gathering as much info as i can in preparation

Hi Guys

New here

Dermatomyositis - is it cyclical?

Having chest pain

Newbie here.

mri results

Depression

Any AGM/annual meeting planned for this year 2024?

mri scan

Search posts

Pinned Posts

Latest poll

Do you suffer pain with your Myositis?

Topics

Archive