The Myositis UK Conference - Oxford 24th June
Jo-Goode7 days ago
The Myositis UK conference is only one week away! We are also holding a Gala Dinner on Saturday 23 June, to recognise 30 years fighting rar...
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Please support Dr Hector Chinoy
Jo-Goode20 days ago
My clinical and research work involves looking after patients with myositis and trying to find new and more effective ways of managing the d...
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Dr Helene Alexanderson
Jo-Goode21 days ago
Exercise & Myositis This year we are very excited that Dr. Helene Alexanderson, from the Karolinska Institute in Sweden, is a guest speaker...
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Myositis UK Conference Sunday 24th June 2018
Jo-Goodea month ago
Myositis UK Conference - Sunday 24th June 2018
Invited speakers include:
Dr Helene Alexanderson, Karlinska Institute Stockholm, Dr Patrick ...
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Follow Myositis UK on Twitter
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Myositis UK Afternoon Tea Meetup Manchester 19th May
*** LAST FEW PLACES AVAILABLE ***
Myositis UK Afternoon Tea Meetup - Manchester 19th May
Guest Speakers: Dr Hector Chinoy & Dr Liza McCann ?...
New! Question about diagnostic tests
oogleboogle2 months ago
I'm new here and have not been diagnosed with myositis but have similar symptoms to this and fibromyalgia.
My question is, my bloods ...
Hello - investigations pending
whisperit2 months ago
Just to introduce myself - I've been on the LupusUK Health Unlocked forum for some time now, after a diagnosis of MCTD (with ILD and Raynaud...
2 Replies2 Likes
stillhoping2 months ago
Can anyone add to the message I posted six months ago? I did get some helpful comments then but wonder if anyone else has now had to undergo...
2018 London Marathon
Jo-Goode2 months ago
Congratulations to our three runners who completed the hottest ever (75F) London Marathon! 😬
Kate Buck 7 hours 30 mins
Arthur Macpherson 5 ho...
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Myositis Forum UK
I'm admin for a Myositis group on facebook, Myositis Forum UK, with over 700 members
Meetup on Saturday
We have 40 attending the London Meetup on Saturday!
There are still a few places still available if you would like to attend.
Don't miss out...
The Meetup group has reached 150 members 😬
Don't miss out!
Join and email will be sent to you when future Meetups are announced meetup.com/MyositisUK/...
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Diagnosed with Polymyostis
donnadt3 months ago
I'm still trying to get head round the idea that I even have Polymyostis. Was diagnosed last year in August & on high steroids. Trying to re...
10 Replies3 Likes
Myositis UK 30th Anniversary Gala Dinner & Annual Conference
Jo-Goode3 months ago
Myositis UK are celebrating 30 years as a registered charity!
To celebrate we are having a 30th Anniversary Gala Dinner on 23rd June, follow...
Myositis clinic in South East
Jan223 months ago
I am new here and was initially diagnosed with D M three years ago. My diagnosis after lots of tests is now A N C A Vasculitis with Myositi...
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ANNUAL MYOSITIS CONFERENCE 2018
Tony-Burton3 months ago
Does anyone know the date of the annual Myositis UK gathering, normally held in July in Oxford.,
BBC Nicky Campbell 5 Live Radio Show
Michael spoke on BBC Nicky Campbell 5 Live radio show about Dermatomyositis and how the skin aspect is effecting his life.
Starts @ 18.00 to...
Change of venue for London Meetup 21st April
Please note the venue for the afternoon tea Meetup in London has changed to Browns Victoria
New here. One question
Anne_084 months ago
Does anyone here have lesions like eczema with pain(or burn) in the skin of the knees and elbows? and do you know depigmented vitiligo-like ...
Today is Rare Disease Day!
Jo-Goode4 months ago
Today is rare disease Day 😬
It's a day where rare diseases join together, from all over the world, to highlight the issues faced with having...
Myositis UK Meetup Afternoon Tea London - Guest Speaker: Dr Patrick Gordon
Afternoon Tea Meetup London - Guest Speaker Dr Patrick Gordon
Myositis UK Meetup's give the opportunity to meet and chat with others about My...
IBM Home exercise program
1252tim4 months ago
Hi. I was diagnosed with IBM last year. I got a cross trainer but had to sell it when I became weaker. I’m thinking of getting a recumbent c...
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Hello and here’s my very short story.
Jgbgt4 months ago
So today I am in a bed in the local DGH with IV steroids for 3 days. It’s really scary. I’m a healthy (I thought) 34 year old male with wif...
Myositis UK Meetup Afternoon Tea - Manchester 19th May
Myositis UK Afternoon Tea, Chancellors Hotel, Manchester
Saturday 19th May 2018 - 2pm
Guest Speakers: Dr Hector Chinoy & Liza McCann
This Valentine's Day #LoveYourHeart
This Valentine's Day #LoveYourHeart ❤️
Most people with auto immune disease do not know they are at an increased risk of developing a heart c...
Follow Myositis UK on Twitter & Facebook
Myositis UK posts on facebook & Twitter
VonnieD5 months ago
Today I took my first dose of methotrexate and prednisolone. It's taken a little while since being diagnosed with Polymyositis in November ...
1 Reply2 Likes
Annual Patient Conference videos (USA)
MAuk5 months ago
The Myositis Organization (a US based forum) has links on the front page for the annual Myositis Patient Conference. The presentations are o...
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