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Myositis UK

1,222 members • 497 posts

Dermatomyositis posts

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Life insurance with Dermatomyositis

Hi all, I hope this sort of advice/discussion is welcome on here, I’m looking for some advice on life insurance as someone who was diagnosed with...

Hi all, I hope this sort of advice/discussion is welcome on here, I’m looking f...

amp0124

•8 months ago

4 Replies

Recent diagnosis of Dermamyositosis

Daughter 22 had Covid then her immune system attacked her.. she was hospitalised after 4 weeks of symptoms that kept getting worse rapidly. Muscle swelling and...

Daughter 22 had Covid then her immune system attacked her.. she was hospitalised...

Treacle666

•2 years ago

4 Replies

Dermatomyositis Diagnosis in December 2021

Good afternoon, Having received my diagnosis in the middle of December this is all very new and to be honest quite scary. the Myositis has been found in my...

Good afternoon, Having received my diagnosis in the middle of December this is a...

AnnabelleLucy

•2 years ago

7 Replies

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Not alone? Dermatomyositis

Hi, I'm Dia. I was diagnosed with dermatomyositis back in early 2019, but didn't come online until now. I've read the stats and seen how rare it was, but when...

Hi, I'm Dia. I was diagnosed with dermatomyositis back in early 2019, but didn't...

Hidden

•3 years ago

7 Replies

Waxy mouth & soapy taste?

Hi, dx Dermatomyositis in Aug 2020. Been on prednisolone (45mg/day) and methotrexate (20mg/once a week) for last three weeks. Noticing that I have a persistent...

Hi, dx Dermatomyositis in Aug 2020. Been on prednisolone (45mg/day) and methotre...

PinkLadyNo1

•3 years ago

4 Replies

Newly Diagnosed

Diagnosed 6 days ago with Dermatomyositis following muscle biopsy. Have been referred to Rheumatology by Dermatologist as looking likely for Systemic Lupus...

Diagnosed 6 days ago with Dermatomyositis following muscle biopsy. Have been ref...

PinkLadyNo1

•4 years ago

7 Replies

Recently diagnosed Looking for a positive out look on DM!

Hi All, I was recently diagnosed on the 6th July with Anti-synthetase, DM -anti jjo 1 and ILD! I was perfectly healthy 14 weeks ago life was normal. just...

Hi All, I was recently diagnosed on the 6th July with Anti-synthetase, DM -anti ...

Welshie_j

•4 years ago

9 Replies

Hallo ich bin neu hier,

bei meinem Bluttest zu Myositis ist PM-Scl 100 angekreuzt. Ich werde die Spalte nun so anzeigen wie es im Labor zu lesen ist. Myositis Mi-2 Ku...

bei meinem Bluttest zu Myositis ist PM-Scl 100 angekreuzt. Ich werde die Spalte ...

Sonnenschein56

•5 years ago

3 Replies

myositis nightmare.used to be fairly active,lost a lot of weight,depression,and a sence of being useless.

Does this ever end,can,t swallow,have to set up feed equipment pump every evening,ends about half 11.weekness in the legs,i use a stick for support.have to be...

Does this ever end,can,t swallow,have to set up feed equipment pump every evenin...

englishe

•5 years ago

2 Replies

BBC Nicky Campbell 5 Live Radio Show

Michael spoke on BBC Nicky Campbell 5 Live radio show about Dermatomyositis and how the skin aspect is effecting his life. Starts @ 18.00 to 34.20...

Michael spoke on BBC Nicky Campbell 5 Live radio show about Dermatomyositis and...

Jo-Goode

Administrator•6 years ago

2 Replies

Im new xx

Hi I have suffered from this rash plus ongoing tiredness and muscle aches for about 7 years now, sometimes without any symptoms at all but sometimes with...

Hi I have suffered from this rash plus ongoing tiredness and muscle aches for ab...

Lisawill

•6 years ago

2 Replies

Dermatomyotisis Treatment Options

Hi there. I am new on here. I am am a 36 year old female.I was diagnosed with dermatomyositis about 10 years ago but my CK levels were not super high and they...

Hi there. I am new on here. I am am a 36 year old female.I was diagnosed with d...

Littlegem22

•6 years ago

5 Replies

New member here , recently diagnosed with Dermatomyositis 😐

Hello members , i'm Mark , i joined here at the weekend , at the end of May 2017 a bright red rash started covering my face ,which i presumed was sunburn as i...

Hello members , i'm Mark , i joined here at the weekend , at the end of May 2017...

Mark_A_UK

•6 years ago

3 Replies

Introductions

Hi all, I was dx with dermatomyositis sine myositis due to my Chronic Lymphocytic Leukemia (CLL). It took just over 6 months of biopsies, blood tests, the...

Hi all, I was dx with dermatomyositis sine myositis due to my Chronic Lymphocyt...

Eliotf

•6 years ago

8 Replies

Idera IMO-8400 Clinical Trial - Video Chat Session

I picked this up from Twitter - Myositis Support in the USA and Idera are hosting a video chat session about a Phase 2 trial for Idera's drug IMO-8400 for...

I picked this up from Twitter - Myositis Support in the USA and Idera are hostin...

Lintilla

•7 years ago

3 Replies

Dermatomyositis - Information & links

◾Guide To Myositis - Written for Myositis UK by Les Oakley and updated by Dr Hector Chinnoy ◾General Guide About Myositis UK ◾Individual Personalised Care...

◾Guide To Myositis - Written for Myositis UK by Les Oakley and updated by Dr He...

Jo-Goode

Administrator•7 years ago

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Posts - Myositis UK | HealthUnlocked

Myositis UK

Dermatomyositis posts

Life insurance with Dermatomyositis

Recent diagnosis of Dermamyositosis

Dermatomyositis Diagnosis in December 2021

Not alone? Dermatomyositis

Waxy mouth & soapy taste?

Newly Diagnosed

Recently diagnosed Looking for a positive out look on DM!

Hallo ich bin neu hier,

myositis nightmare.used to be fairly active,lost a lot of weight,depression,and a sence of being useless.

BBC Nicky Campbell 5 Live Radio Show

Im new xx

Dermatomyotisis Treatment Options

New member here , recently diagnosed with Dermatomyositis 😐

Introductions

Idera IMO-8400 Clinical Trial - Video Chat Session

Dermatomyositis - Information & links

Search posts

Pinned Posts

Latest poll

Do you suffer pain with your Myositis?

Topics

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