Posts - Myositis UK | HealthUnlocked

Myositis UK

1,348 members•539 posts

All posts for February 2018

Today is Rare Disease Day!

Today is rare disease Day 😬 It's a day where rare diseases join together, from all over the world, to highlight the issues faced with having a rare disease....

Today is rare disease Day 😬 It's a day where rare diseases join together, from...

Administrator•7 years ago

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Myositis UK Meetup Afternoon Tea London - Guest Speaker: Dr Patrick Gordon

Afternoon Tea Meetup London - Guest Speaker Dr Patrick Gordon Myositis UK Meetup's give the opportunity to meet and chat with others about Myositis. We may...

Afternoon Tea Meetup London - Guest Speaker Dr Patrick Gordon Myositis UK Meetu...

Administrator•7 years ago

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IBM Home exercise program

http://www.myositis.org/storage/documents/Misc/Home_exercise_IBM.pdf

http://www.myositis.org/storage/documents/Misc/Home_exercise_IBM.pdf

Administrator•7 years ago

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IBM

Hi. I was diagnosed with IBM last year. I got a cross trainer but had to sell it when I became weaker. I’m thinking of getting a recumbent cross trainer...

Hi. I was diagnosed with IBM last year. I got a cross trainer but had to sell it...

•7 years ago

Hello and here’s my very short story.

So today I am in a bed in the local DGH with IV steroids for 3 days. It’s really scary. I’m a healthy (I thought) 34 year old male with wife, 2 year old girl...

So today I am in a bed in the local DGH with IV steroids for 3 days. It’s really...

•7 years ago

Myositis UK Meetup Afternoon Tea - Manchester 19th May

Myositis UK Afternoon Tea, Chancellors Hotel, Manchester Saturday 19th May 2018 - 2pm Guest Speakers: Dr Hector Chinoy & Liza McCann PLEASE NOTE: You...

Myositis UK Afternoon Tea, Chancellors Hotel, Manchester Saturday 19th May 201...

Administrator•7 years ago

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This Valentine's Day #LoveYourHeart

This Valentine's Day #LoveYourHeart ❤️ Most people with auto immune disease do not know they are at an increased risk of developing a heart condition - take...

This Valentine's Day #LoveYourHeart ❤️ Most people with auto immune disease do...

Administrator•7 years ago

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Follow Myositis UK on Twitter & Facebook

Myositis UK posts on facebook & Twitter Twitter: https://twitter.com/UKMyositis Facebook: https://www.facebook.com/Myositis-UK-428638317246585/

Myositis UK posts on facebook & Twitter Twitter: https://twitter.com/UKMyositis...

Administrator•7 years ago

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New beginnings

Today I took my first dose of methotrexate and prednisolone. It's taken a little while since being diagnosed with Polymyositis in November to get to this...

Today I took my first dose of methotrexate and prednisolone. It's taken a littl...

•7 years ago

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