recent diagnosis of MTD

[Jrob14]

Above question been sent to other support groups that’s why I’ve taken a pic, to reduce time Thanks for any support

[Jo-Goode Administrator]

Sorry to hear about your husband's ill health. With appropriate experienced care those with MDA5 seem to manage well long term; have a number with this antibody type in the larger facebook group I admin; the most risky period is before diagnosis, how soon the patient presents & if the condition is diagnosed in time. To me the Mycophenolate dose seems rather low, as max dose is 3000mg; in my opinion would need to be increased, so the pred could be reduced to at least 10mg (which is an amount specialists seem happy for patients to remain on long term).

Regards,

Jo

[Jrob14 in reply to Jo-Goode]

hi thanks for your response. Can I pls ask to join your FB group on this subject pls. My husband is currently on mycophenolate 1g twice day hydroxy 200mg twice day and 10mg prednisolone, he seems to be getting better but his shortness of breath remains the same.

[Jo-Goode Administrator in reply to Jrob14]

Here's the link thefacebook.com/groups/themyos...