Posts - Myositis UK | HealthUnlocked

Myositis UK

1,223 members • 497 posts

All posts for May 2019

IVIG Anyone?

Hello, Has anyone had any success with ivig? I have polymyositis and was just in hospital for around a week for respiratory failure type 2, and was given 3 x...

Hello, Has anyone had any success with ivig? I have polymyositis and was just in...

•5 years ago

Myositis UK Conference

Where is the year going! The Myositis UK Conference is fast approaching on the 23rd June! 😬 Advance registration is required, so if you would like to attend...

Where is the year going! The Myositis UK Conference is fast approaching on the ...

Administrator•5 years ago

New diagnosis

Hi I'm part way through getting a diagnosis and was wondering on other people's experiences of how long it took to get a firm diagnosis. I went with a painful...

Hi I'm part way through getting a diagnosis and was wondering on other people's ...

•5 years ago

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Myositis UK Forum - on facebook

As well as this web based forum we also have a very active Myositis forum on facebook, with over 1,100 members....

As well as this web based forum we also have a very active Myositis forum on fac...

Administrator•5 years ago

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Polymyositis fighter 💪🏿

Hi Guys, my name is Ronald,am 34 was diagnosed with polymyositis 2yrs ago and have been on and off prednisone and methotrexate medication. With lots of...

Hi Guys, my name is Ronald,am 34 was diagnosed with polymyositis 2yrs ago and ha...

•5 years ago

Hello to every sufferer fighting his/her way back to a kind of normality

Hello everybody, new to this group and new to Dermatomyositis (diagnosed 5 weeks ago). Finding the whole thing and meds side effects (steroids and...

Hello everybody, new to this group and new to Dermatomyositis (diagnosed 5 weeks...

•5 years ago

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Myositis - General(48)

Dermatomyositis(22)

Myositis Fundraising(14)

Polymyositis(9)

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