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Myositis UK

1,348 members•539 posts

All posts for January 2025

newly diagnosed

Would like to find out if there is a support/forum group re Inclusion Body Myositis in East Sussex as I do not know anyone with this disease and would like to...

Would like to find out if there is a support/forum group re Inclusion Body Myosi...

GonewithWind1

•2 days ago

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Inclusion Body Myositis

I was diagnosed approx 20 yrs ago aged 40. My condition has progressed to the point that I can no Ionger walk and my arms are getting weaker. I am bed ridden...

I was diagnosed approx 20 yrs ago aged 40. My condition has progressed to the po...

Calbost

•7 days ago

2 Replies

Early signs / symptoms but not diagnosed

hi all Ill be honest I really am at what I think could be the start of polymyositus and wanted to ask peoples opinion.. Started about 4 - 5 weeks ago with...

hi all Ill be honest I really am at what I think could be the start of polymyos...

JDent

•13 days ago

1 Reply

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Recently diagnosed with dermatomyositis

Hello All! About two months ago I had a bad chest infection, during which I became surprisingly weak, mostly thighs and upper arm and the strength didn't...

Hello All! About two months ago I had a bad chest infection, during which I be...

Fluffyrainbow

•23 days ago

12 Replies

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All posts(113)

Myositis - General(48)

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