Posts - Myositis UK | HealthUnlocked

Myositis UK

1,221 members • 497 posts

All posts for May 2017

Blurry vision?

I'm in a bit of a flare up after overdoing it last week. Weak muscles, shaking limbs. However, for three days now I also have very blurry vision and terrible...

I'm in a bit of a flare up after overdoing it last week. Weak muscles, shaking l...

•7 years ago

Losing hair

The last couple of haircuts I got, my hairdresser asked if my hair had started thinning (particularly when she was looking at the back of my head). Now I see...

The last couple of haircuts I got, my hairdresser asked if my hair had started t...

•7 years ago

Chair with vertical lift

Hi everyone, I have noticed several posts re chair with vertical lift (no tilt) but now I need to find out more I can't find the posts! Any help appreciated

Hi everyone, I have noticed several posts re chair with vertical lift (no tilt) ...

•7 years ago

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Interesting New Technology if you have IBM

http://www.einnews.com/pr_news/379972863/b-temia-and-myositis-canada-join-forces-to-raise-awareness-about-myositis-and-the-dermoskeleton-technology I hope I...

http://www.einnews.com/pr_news/379972863/b-temia-and-myositis-canada-join-forces...

•7 years ago

Manchester Afternoon Tea Meetup held on Saturday 20th May

Over 40 people attended our Manchester Afternoon Tea Meetup on Saturday 20th May 😀 Many thanks to Dr Hector Chinoy, who gave an overview of Myositis and...

Over 40 people attended our Manchester Afternoon Tea Meetup on Saturday 20th Ma...

Administrator•7 years ago

Fundraising for Myositis UK - Race at your Pace 100 mile walk in throughout May challenge.

Hiya, I am so pleased to say that I have completed my challenge of 100 miles within the month of May 😀 I am not stopping there as i will see how far i can get...

Hiya, I am so pleased to say that I have completed my challenge of 100 miles wit...

SuzellaBuhlmann

•7 years ago

Colin B's intro.

Hi all, I am a 59 year old male living in london. I was formally diagnosed with Dermatomyositis in February 2017 having been admitted to The Royal London...

Hi all, I am a 59 year old male living in london. I was formally diagnosed with ...

•7 years ago

Just been diagnosed with polymyositis

Hi need help been working all my life I am a 44 year old male with diabetìc all my life I have just be diagnosed with polymyositis the last month and it is so...

Hi need help been working all my life I am a 44 year old male with diabetìc all ...

•7 years ago

BYM 338 dosage shared

Two participants in the trial on the U.S. site were told what their dosages were. One received 3mg and one 10mg. Wondering if those involved in the U.K....

Two participants in the trial on the U.S. site were told what their dosages were...

•7 years ago

New Study - Hiker’s Feet

https://www.hopkinsrheumatology.org/2017/04/hikers-feet-new-skin-finding-patients-dermatomyositis/ A study lead by Lisa Christopher-Stine, M.D., M.P.H....

https://www.hopkinsrheumatology.org/2017/04/hikers-feet-new-skin-finding-patient...

Administrator•7 years ago

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2nd Global Myositis Conference

Wishing all the myositis doctors, nurses, scientists, and physiotherapists a successful meeting at the 2nd Global Conference on Myositis, especially those...

Wishing all the myositis doctors, nurses, scientists, and physiotherapists a suc...

Administrator•7 years ago

Myositis and Exercise

Can anyone throw light on another issue I am interested in, related to myositis of skeletal muscle - thighs, buttocks, and sometimes lower legs? Is exercise...

Can anyone throw light on another issue I am interested in, related to myositis ...

•7 years ago

Closing this week! - Steroid Survey

Dear Myositis UK member, We are working on a project about steroid tablets and their use in adults with myositis. We have created a short survey to...

Dear Myositis UK member, We are working on a project about steroid tablets a...

Administrator•7 years ago

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Statins and Myositis

Does anyone have any experience of muscle pain caused by statin medications? I have been taking a variety of statins for (I think) around 20 years, having been...

Does anyone have any experience of muscle pain caused by statin medications? I h...

•7 years ago

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