Hi All
I started with health issues in the 1980's but struggled to get and definite diagnosis. This changed when I was sent to a Guys and St Thomas'. They diagnosed me with Lupus and Sjogrens Syndrome. More recently diagnosed with Dermatomyositis.
I have had a lot of falls, overbalance and get shaky. I get sore hands with red lumps and skin redness. I also have Chronic Kidney Disease. I wondered if anyone gets similar symptoms.
Thank you
Hello. Yes the same. Had these symptoms on and off for years. Falls and pain and rashes being the main ones. Then all of a sudden 4 yrs ago got these patches on skin, tremors and sudden loss of mobility, hair fell out in clumps and the most extreme pain. Could barely use my hands. Also digestion and speech got affected.
Got diagnosed with DM and MCTD. Lung fibrosis. Plus later on MCAS. Got told was most likely terminal now due to the lung damage.
It literally happened so fast - one moment I was dancing doing yoga the next bed bound. I did notice though definite body pain stiffness and lots of falls for no reason over the years and this was in my late 30s . Got diagnosed very early 40s. I won't lie it's been very hard.
All that shared is to say to you you're not alone. How are you doing? Are you on steroids? Are you able to exercise? Movement and diet feature a lot.
If you want to share more or ask questions please feel free. Lots of people I'm told live v full lives with DM. I have a very rare aggressive strain I'm told. Most people do ok I believe. Hope you're doing ok. 🌸
Diagnosed with Polymyostis 
Just been diagnosed 
