Posts - Myositis UK | HealthUnlocked

Myositis UK

1,221 members • 497 posts

All posts for June 2019

Inclusion Body Myositis

I was diagnosed with Inclusion Body Myositis in 2013. The effects have gradually worsened and I now have difficulty in walking properly and with balance...

I was diagnosed with Inclusion Body Myositis in 2013. The effects have gradually...

•5 years ago

Recently diagnosed with Dermatomyositis

I’m new here and I’m trying to make sense of Dermatomyositis and me. Was diagnosed in March and ended up in hospital for almost a month not knowing what was...

I’m new here and I’m trying to make sense of Dermatomyositis and me. Was diagnos...

•5 years ago

Day 4

Hello fellow fighters ! I hope everyone is having a better day than yesterday. When I woke up this morning after taking my daily medication I made a small bowl...

Hello fellow fighters ! I hope everyone is having a better day than yesterday. W...

•5 years ago

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Tiredness !!

Hi as I mentioned previously I have just been diagnosed with IBM, does anyone else who suffers from it experience extreme fatique ? I get so so tired and have...

Hi as I mentioned previously I have just been diagnosed with IBM, does anyone el...

•5 years ago

Beautiful Sunday!

Today has been such a good day. Instead of being sad or depressed, I thanked god for allowing me to wake up. I then made me a cup of coffee, opened my blinds...

Today has been such a good day. Instead of being sad or depressed, I thanked go...

•5 years ago

The Myositis UK conference is only 10 days away!

The Myositis UK conference is only 10 days away! We have a great line up of speakers (see below) & for the first time cardiologists attending from Kings...

The Myositis UK conference is only 10 days away! We have a great line up of spea...

Administrator•5 years ago

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Dermatomyositis

Hello I was diagnosed with Dermatomyositis in 2018 and still believe I’m not receiving the right care. I am in hopes to connect with others who can maybe give...

Hello I was diagnosed with Dermatomyositis in 2018 and still believe I’m not rec...

•5 years ago

Just been diagnosed

Hi I got diagnosed with myosotis and polymyositis 2 days ago. I’ve had symptoms for 2 years Iam scared I don’t know what’s a head for me. Started 50mg of...

Hi I got diagnosed with myosotis and polymyositis 2 days ago. I’ve had symptoms ...

•5 years ago

Myositis UK has a new website!

Myositis UK has a new website 😬 Thanks to Laura, Myositis UK Trustee for your hard work! https://www.myositis.org.uk/

Myositis UK has a new website 😬 Thanks to Laura, Myositis UK Trustee for your h...

Administrator•5 years ago

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Myositis - General(48)

Dermatomyositis(22)

Myositis Fundraising(14)

Polymyositis(9)

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