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Myositis UK

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Myositis - General posts

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Newly Diagnosed

Hi Everyone, Im hoping someone can help. Im 34 and I have been living with chron...
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New name, same UK only Myositis community on facebook: The Myositis Community of Great Britain & Ireland

The Myositis Community of Great Britain & Ireland, with over 2000 UK & Ireland m...
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Do they routinely test back muscles during an MRI & EMG?

I'm due to have an MRI and EMG some time in the distant future (I'm in the UK an...
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2020 AGM and Conference - Oxford

2020 AGM and Conference Save the date! This year’s conference will take place on...
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Azathioprine didnt work,what next?

Hello Everyone I was diaganosed with Polymyositis 18 months ago. Was on 150mg Az...
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Walking distances with Myositis

Hi everyone, as yet I am undiagnosed but have classic symptoms of IBM or Polymyo...
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Throat pain anyone?

Hi y’all. Suffering with some extreme choke style throat pain. Glands/nodes swol...

Myositis UK Forum - on facebook

As well as this web based forum we also have a very active Myositis forum on fac...
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Myositis UK April Flyer

Myositis UK members! Look out for the April Flyer being sent to members, this in...
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3rd Global Conference on Myositis Berlin, 27-30th March 2019

Myositis UK is proud to be the Gold Sponsor to the 3rd Global Conference on Myos...
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3rd Global Conference on Myositis (GCOM2019)

Myositis UK will be attending the 3rd Global Conference on Myositis in Berlin (G...
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Save the date for the 2019 Myositis UK Conference 😬

Save the date for the 2019 Myositis UK Conference 😬 This years annual Myositis ...
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Antisynthetase syndrome

Hi everybody My brother was diagnosed with antisynthetase syndrome end of may. ...
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Myositis UK 30th Anniversary Gala Dinner & Annual Conference

Myositis UK are celebrating 30 years as a registered charity! To celebrate we...
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This Valentine's Day #LoveYourHeart

This Valentine's Day #LoveYourHeart ❤️ Most people with auto immune disease do...
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New guide on Myositis by Hector Chinoy & Bob Cooper

New guide on Myositis by Hector Chinoy and Bob Cooper, aimed at physicians & tr...
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One week to the Myositis Christmas Meetup!

Only a week to the Myositis Christmas Meetup 🎄 😬 Free to Myositis UK member...
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Yes, it's possible to have normal lab results and have Myositis...

Yes, it's possible to have normal lab results and have Myositis...
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Myositis Meetup in Cambridgeshire!

Myositis Meetup for Coffee & Cake in Cambridgeshire! Costa Coffee, Ely Leisur...
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Manchester Afternoon Tea Meetup held on Saturday 20th May

Over 40 people attended our Manchester Afternoon Tea Meetup on Saturday 20th Ma...
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New Study - Hiker’s Feet

https://www.hopkinsrheumatology.org/2017/04/hikers-feet-new-skin-finding-patient...
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2nd Global Myositis Conference

Wishing all the myositis doctors, nurses, scientists, and physiotherapists a suc...
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Statins and Myositis

Does anyone have any experience of muscle pain caused by statin medications? I h...
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Survey Result

Results from survey "Do you have pain with your Myositis?" Yes 70 No 12 M...
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Information, links & Myositis specialist clinics

Information, links & Myositis specialist clinics: Admin to Myositis UK Healthun...
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New here!

Hi I'm a 31 year old type 1 diabetic. I was diagnosed with Myositis last week an...
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Training as disease-modifying treatment

Interesting article about this great duo :-) Exercise in Myositis, Origins fr...
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Lovely afternoon & cake!

Meetup afternoon tea 11th Feb 2017
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Myositis UK on Twitter

You can now follow Myositis UK on Twitter :-) https://twitter.com/UKMyositis
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Myositis UK AGM & Conference

The AGM and Conference 2017 will be on Sunday 2nd July at the Oxford Belfry Hote...
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