Hard skin from pressure

[Brychni]

I have no idea what to call this and, I'm posting here purely because of my Pm - scl 100 antibody, but I have developed weird hard, scaly, rough patches of skin in the 'sit bones' area where my bum cheeks meet my hips. Both sides. I'm not overweight nor am I really thin, (low but normal bmi) I do not sit all the time, don't ride a bike but I swim and do daily exercises. These patches are not red or itchy but are beginning to 'split'. I've always had quite dry skin and typically moisturise after every shower and swimming and this works well and have never gad any issues.

The only info online refers to pressure ulcers, mainly for people who are bedbound and very ill or dying. One thing I read mentioned muscle loss in the buttocks.

Anyway, does anyone here have anything similar?

I'm on hydroxychloroquine abd methotrexate for connective tissue disease and Inflammatory Arthritis. I eat well!

[Campergirl76]

My goodness ! You have been through a lot! I have just been diagnosed with Polymyositis and have been taking 20 prednisonal for 3 weeks but no effect yet. I also have Type 2 Diabetes which I am trying to medically control. They are checking to see how steroids affect my spikes. Early days.

My muscle degeneration has steadily progressed so I have had 43 weeks in hospital under observation and 4 visits to A&E this year with blows to the head and stitches, because of not being able to save myself. The latest was last Monday. I have carers coming in twice a day to help. Waiting to get hydrotherapy and assistance in exercises.

I had thought I would not need a tip-up chair, but now realise this is essential. I have been propping myself up on cushions, but this is putting too much strain on my “botty”, and I fear with my continued unintended weight loss (6kgs in 6 months) I might develop bed sores. I do not have hard patches you describe.

I have been diagnosed with Polymyositis privately in London as my local Health Authority could not give me info of when I would get a muscle scan and biopsy. They were leaving me indeterminately to deteriorate, and as I now know, early intervention is important.

Life changing, but not life-threatening…..if I do not improve I will have to look for a better home for my rescue dog😟. But I am expecting my first grandchild in less than 3 weeks. They live 3 minutes down the road from me🧸👼

I cannot help you on your particular problem but I hope to learn more from responses you get.

I have to thank my family and friends for the wonderful support they have given me in this unexpected turn in my active and happy life.

[Campergirl76 in reply to Campergirl76]

3 weeks in hospital not 43!

[Killy_21]

I take folic acid the day after methotrexat injection