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Myositis UK

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I have ibm - is there really no treatment? Is it recommended to walk, despite the pain or is this harmful?

I have ibm - is there really no treatment? Is it recommended to walk, despite th...

•4 years ago

Inclusion Body Myositis

I was diagnosed with Inclusion Body Myositis in 2013. The effects have gradually worsened and I now have difficulty in walking properly and with balance...

I was diagnosed with Inclusion Body Myositis in 2013. The effects have gradually...

•6 years ago

Newbie!

Hi everyone I'm new here and pleased to join you. I was diagnosed with IBM 2017 and it has been a very long journey. I began showing symptoms, falling etc,...

Hi everyone I'm new here and pleased to join you. I was diagnosed with IBM 2017...

•6 years ago

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IBM Home exercise program

http://www.myositis.org/storage/documents/Misc/Home_exercise_IBM.pdf

http://www.myositis.org/storage/documents/Misc/Home_exercise_IBM.pdf

Administrator•7 years ago

IBM research studies

Part funding from Myositis UK Two new publications, supported by the NIHR Manchester Musculoskeletal Biomedical Research Unit, provide new information that...

Part funding from Myositis UK Two new publications, supported by the NIHR Manch...

Administrator•8 years ago

IBM study, with funding from Myositis UK

IBM study, with funding from Myositis UK: In this exploratory study, comparison of patients with IBM with and without anti-cN-1A autoantibody reactivity...

IBM study, with funding from Myositis UK: In this exploratory study, comparison...

Administrator•8 years ago

IBM

Hi All Had problems signing up to this new site, hopefully all from Myositis UK will come across - I've missed getting regular updates from everyone. Wishing...

Hi All Had problems signing up to this new site, hopefully all from Myositis UK ...

•8 years ago

Vertical Rising Recliner Chairs?

Hi everybody, Does anyone have (or know of) a riser/recliner sitting room chair that has the option of a vertical lift WITHOUT tilt? If it has the option of...

Hi everybody, Does anyone have (or know of) a riser/recliner sitting room chair...

•8 years ago

Park House Hotel

http://www.parkhousehotel.org.uk/the-hotel/ Award-winning Park House Hotel supports disabled guests and their carers or companions to have a holiday or period...

http://www.parkhousehotel.org.uk/the-hotel/ Award-winning Park House Hotel suppo...

Administrator•8 years ago

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Trying Again

I'm trying adding a topic.

I'm trying adding a topic.

•8 years ago

Home exercise for IBM

Dr Helene Alexanderson from the Karolinska Institute Stockhom, talks at the 2016 TMA conference - home exercise for IBM...

Dr Helene Alexanderson from the Karolinska Institute Stockhom, talks at the 2016...

Administrator•8 years ago

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Inclusion Body Myositis - Information & links

◾Guide to Inclusion Body Myositis - Written by Dr Hanna ◾Guide To Myositis - Written for Myositis UK by Les Oakley and updated by Dr Hector Chinnoy ◾General...

◾Guide to Inclusion Body Myositis - Written by Dr Hanna ◾Guide To Myositis - Wr...

Administrator•8 years ago

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