My GP discovered that I had elevated liver enzyme 7800 April 23 and sent me an ambulance to be thoroughly checked and went through CT San, MRI etc, seen by Hepatologist and Rheumatologist who suspected Myositis and after muscle biopsy on my thigh, she confirmed I have Mhositis.
Since then, I have been on Prednisolone (started 40mg and nos on 4mg and fishing with 1mg by the end of October), Methotrexate (once a week) and Folic acid (once a week).
Had fist infusion at the hospital November 23 and second one in in November this year and last one in 2025. Hopefully this will be end of all the treatment (depends on the test result)
I see my Consultant Rheumatologist regularly and countless blood test and the test result indicate "normal" but I sill very week and on a bad day, I struggle to walk, although Rheumatologist told me that she will make me up and running!?
i am 79 years old and being an unpaid carer for my 87 year old disable husband with dementia.and he needs 24/7 care!
How do you get a firm Mysiotis diagnosis? What scans will show affects on muscles? 
Diagnosed with Polymyostis 
Newly diagnosed with IBM
