Pm scl 100: Brychni 23 hours ago•3 Replies Hello... - Myositis UK

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Pm scl 100

Brychni profile image
3 Replies

Brychni

23 hours ago•3 Replies

Hello 👋

I posted this message on the Raynaud's and scleroderma group but after some research wondered if anyone here can help.me:

Got my blood results back from rheumatology today, they were looking for scleroderma because of my worsening Raynaud's and finger ulcers. Thankfully I tested negative for everything except the one in the title : PM Scl 100. Does anyone know what this means, if anything. To recap I am:

ANA positive

Anti phospholipid IgG positive

Permanently low platelets

High immunoglobulin IgM

Raynaud's

Undifferentiated Inflammatory arthritis, connective tissue and lupus (or so it says on my notes)

Thanks in advance.

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Brychni
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StormySky profile image
StormySky

The markers I have are PM/Scl (both 75 and 100). My understanding is that it can hint to a scleroderma myositis overlap. The link I pasted below is to a grid that seems to be used for research/diagnosis and is what the specialist used when I was labelled as systemic sclerosis. Although I don't have the autoantibodies listed the specialist awarded 3 points for PM/Scl autoantibodies in that section. After an EMG I was told I also fit the diagnostic criteria for myositis as well, but the specialist suggested my doctor does a biopsy to confirm (which hasn't been done).

empendium.com/mcmtextbook/t....

I hope that now they have some blood test results they can figure out what is going on for you and also find something to help with the ulcers.

Good Luck!

Brychni profile image
Brychni in reply toStormySky

Hi StormySKy - thank you for the link although it didn't work. What is an EMG test?

StormySky profile image
StormySky in reply toBrychni

Sorry about the link. It was working when I pasted it. Hopefully this one works: rheuminfo.com/en/physician-... If not I searched 'scleroderma diagnostic chart' to find the chart the rheumatologist used for my diagnosis.

EMG I think tests muscles and nerves. The neurophysiologist put a needle in my muscle and then put electric through and a machine checked if my muscles were working 'normally'. It was a bit sore (especially the last test of tensing and holding the muscle with the needle in it) but not too bad.

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