I posted this message on the Raynaud's and scleroderma group but after some research wondered if anyone here can help.me:
Got my blood results back from rheumatology today, they were looking for scleroderma because of my worsening Raynaud's and finger ulcers. Thankfully I tested negative for everything except the one in the title : PM Scl 100. Does anyone know what this means, if anything. To recap I am:
ANA positive
Anti phospholipid IgG positive
Permanently low platelets
High immunoglobulin IgM
Raynaud's
Undifferentiated Inflammatory arthritis, connective tissue and lupus (or so it says on my notes)
Thanks in advance.
Written by
Brychni
To view profiles and participate in discussions please or .
The markers I have are PM/Scl (both 75 and 100). My understanding is that it can hint to a scleroderma myositis overlap. The link I pasted below is to a grid that seems to be used for research/diagnosis and is what the specialist used when I was labelled as systemic sclerosis. Although I don't have the autoantibodies listed the specialist awarded 3 points for PM/Scl autoantibodies in that section. After an EMG I was told I also fit the diagnostic criteria for myositis as well, but the specialist suggested my doctor does a biopsy to confirm (which hasn't been done).
Sorry about the link. It was working when I pasted it. Hopefully this one works: rheuminfo.com/en/physician-... If not I searched 'scleroderma diagnostic chart' to find the chart the rheumatologist used for my diagnosis.
EMG I think tests muscles and nerves. The neurophysiologist put a needle in my muscle and then put electric through and a machine checked if my muscles were working 'normally'. It was a bit sore (especially the last test of tensing and holding the muscle with the needle in it) but not too bad.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.