I have at last been diagnosed with Polymyositis, having gone privately to the London Neurology Clinic. I am on prednisonal and a tummy lining tablet for the last 2 weeks after 3 months of battling for information as to when or where I would get tests from my Health Authority.
I have type 2 diabetes so at the moment I now have to wait and see how treatment goes, but at least I am now on treatment, not left to deteriorate as has been the situation for 3 months. My sudden loss of mobility has been a heavy blow.
Written by
Campergirl76
To view profiles and participate in discussions please or .
Sorry you are struggling, but it's good you have a diagnosis and started treatment. Hopefully the doctors will monitor you carefully, especially with the diabetes as well. I hope you start to feel better with the medication and also that you can continue to get support through the private clinic. Unfortunately, the NHS does seem incredibly slow to act due to their huge waiting lists and they also seem reluctant to prescribe protective medications like tummy liners.
Dr Patrick Gordon heads the Myositis centre NHS tertiary service at Kings College, you can ask your GP to refer on NHS to oversee your care long term; a patient recently referred patient told advised that his first appointment arrived for 5 weeks away.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Anyone get calcinosis?
