Posts - Myositis UK | HealthUnlocked

Myositis UK

1,222 members • 497 posts

All posts for October 2019

It's not scary! 👻 Join a support group 🎃

Myositis UK Forum - Myositis UK's support group on facebook (UK only) https://www.facebook.com/groups/MyositisUKForum/ Myositis UK on Healthunlocked (web based...

Myositis UK Forum - Myositis UK's support group on facebook (UK only) https://ww...

Administrator•4 years ago

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Steroids

Just started 60mg prednisolone this morning and will be taking a reduced dose over the next seven weeks. How soon do these start working for Myositis? Thanks

Just started 60mg prednisolone this morning and will be taking a reduced dose ov...

•4 years ago

IBM specialists

Are there any IBM specialists/therapists in the UK?

Are there any IBM specialists/therapists in the UK?

•5 years ago

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Joining Myositis Uk

I have completed my details twice to join Myositis UK but have had no correspondence or confirmation. Can anyone shed any light on this process please? Thanks

I have completed my details twice to join Myositis UK but have had no correspond...

•5 years ago

Managing IBM

Is anyone currently receiving treatment for IBM? If so what treatment? Having been recently diagnosed I just wanted to see how others manage IBM. Thanks

Is anyone currently receiving treatment for IBM? If so what treatment? Having be...

•5 years ago

Please sign this petition to support patients in Wales

Many patients in Wales with complex auto immune conditions, such as Myositis and Lupus, currently receive inadequate care to manage their conditions. Please...

Many patients in Wales with complex auto immune conditions, such as Myositis and...

Administrator•5 years ago

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IBM diagnosis today

Hi All. I have just been diagnosed with inclusion body Myositis and I am just overwhelmed by this and not knowing what to do next. I will be seeing the...

Hi All. I have just been diagnosed with inclusion body Myositis and I am just ov...

•5 years ago

New to HealthUnlocked

IBM - Go to gym Monday/Wednesday/Friday - to strengthen back and move limbs - e.g legs on recumbent bike by pushing legs with hands to pedal. Get help to put...

IBM - Go to gym Monday/Wednesday/Friday - to strengthen back and move limbs - e...

•5 years ago

Highlights from the Myositis UK 2019 conference

Highlights from the Summer 2019 conference 😬 A fuller version will be in the next Myositis UK newsletter that goes out soon 😁...

Highlights from the Summer 2019 conference 😬 A fuller version will be in the ne...

Administrator•5 years ago

Hello

Hello. I wanted to introduce myself and to find out if my experience is similar to that of others. I am a 67 year old retired computer consultant. My symptoms...

Hello. I wanted to introduce myself and to find out if my experience is similar ...

•5 years ago

Azathioprine didnt work,what next?

Hello Everyone I was diaganosed with Polymyositis 18 months ago. Was on 150mg Azathioprine and had tappered to 8mg prednisone daily. Unfortunately my hips, leg...

Hello Everyone I was diaganosed with Polymyositis 18 months ago. Was on 150mg Az...

•5 years ago

In pain from recovering muscles

Hi, I'm slowly improving from polymyositis, but any mild exercises, puts a strain on my upper and lower back and other muscles causing a lot of pain. I order a...

Hi, I'm slowly improving from polymyositis, but any mild exercises, puts a strai...

•5 years ago

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Feeling really bad with a very heavy cold

I know it’s petty asking about colds but do people with polymyositis get prone to heavy colds.Im really struggling at the moment and thinking about the last...

I know it’s petty asking about colds but do people with polymyositis get prone t...

•5 years ago

Knitting Pattern inspired by Muscle Fibres!

Helen has designed this beautiful blanket & cushion with a design inspired by images of muscle fibres 😬 Each sale of the knitting pattern £1 will be raised...

Helen has designed this beautiful blanket & cushion with a design inspired by im...

Administrator•5 years ago

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Topics

Myositis - General(48)

Dermatomyositis(22)

Myositis Fundraising(14)

Polymyositis(9)

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