Posts - Myositis UK | HealthUnlocked

Myositis UK

1,348 members•539 posts

All posts for April 2017

Donations for Research.

Is there a way to Donate specifically for Research to DM and PM in UK please, or is it for Myositis in general. Thanks, Christine.

Is there a way to Donate specifically for Research to DM and PM in UK please, or...

•8 years ago

Lucy Wedderburn speaks at BSR Conference

Lucy Wedderburn, JDM expert and advisor to Myositis UK, had the honour to give the first Barbara Ansell address at the BSR conference in Birmingham this week....

Lucy Wedderburn, JDM expert and advisor to Myositis UK, had the honour to give t...

Administrator•8 years ago

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big thank you

Hi Jo just wanted to say a big thank you received my myositis magazine this morning, and another big thank you to everyone who was involved in the London...

Hi Jo just wanted to say a big thank you received my myositis magazine this mor...

•8 years ago

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2017 London Marathon

Well done to Team Muscle running the London Marathon! A superb effort by our 9 runners raising over £17,000 for Myositis UK :-)...

Well done to Team Muscle running the London Marathon! A superb effort by our 9 ...

Administrator•8 years ago

Tired

Tired of feeling like I am carrying extra body. The heaviness and pain is awful

Tired of feeling like I am carrying extra body. The heaviness and pain is awful...

•8 years ago

Sky Badger

Sky Badger find help for families with disabled and special needs children; grants, holidays, help at school, legal advice, counselling etc....

Sky Badger find help for families with disabled and special needs children; gran...

Administrator•8 years ago

Jo & Dave's Double Marathon

Well done Jo & Dave! "Paris marathon complete, just London Marathon to go.....we have now raised £4,689.53 for Myositis UK - thank you to everyone who has...

Well done Jo & Dave! "Paris marathon complete, just London Marathon to go........

Administrator•8 years ago

The challenges of being a ‘good’ patient

"The reality is that my plight cannot be accurately captured by the opinion a doctor holds of me as I sit in front of them for all of a few minutes. I do not...

"The reality is that my plight cannot be accurately captured by the opinion a do...

Administrator•8 years ago

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Steroid survey

Dear Myositis UK member, We are working on a project about steroid tablets and their use in adults with myositis. We have created a short survey to...

Dear Myositis UK member, We are working on a project about steroid tablets a...

Administrator•8 years ago

Survey Result

Results from survey "Do you have pain with your Myositis?" Yes 70 No 12 Myositis UK - Healthunlocked Yes 14 No 4 Myositis Forum UK (facebook) Yes 56 No...

Results from survey "Do you have pain with your Myositis?" Yes 70 No 12 M...

Administrator•8 years ago

Information, links & Myositis specialist clinics

Information, links & Myositis specialist clinics: Admin to Myositis UK Healthunlocked - Jo Goode. Diagnosed in 1994 with Dermatomyositis aged 25 and been a...

Information, links & Myositis specialist clinics: Admin to Myositis UK Healthun...

Administrator•8 years ago

New here!

Hi I'm a 31 year old type 1 diabetic. I was diagnosed with Myositis last week and have been on 20mg preds for 4 weeks while awaiting blood results. Feeling...

Hi I'm a 31 year old type 1 diabetic. I was diagnosed with Myositis last week an...

•8 years ago

Did you know?

It's the #OlivierAwards tonight :-) Did you know Laurence Oliver had Dermatomyositis? "Some artists have 10‐year spans of greatness — only to level off as...

It's the #OlivierAwards tonight :-) Did you know Laurence Oliver had Dermatomy...

Administrator•8 years ago

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Easter Coffee Morning

Tracey Nicholson is holding a Easter Coffee Morning in aid of Myositis UK Saturday 15th April, Strathmiglo Bowling Club, Fife...

Tracey Nicholson is holding a Easter Coffee Morning in aid of Myositis UK Satur...

Administrator•8 years ago

New poll added

Do you suffer with pain? - new poll added to page

Do you suffer with pain? - new poll added to page

Administrator•8 years ago

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Training as disease-modifying treatment

Interesting article about this great duo :-) Exercise in Myositis, Origins from the Karolinska Professor Ingrid Lundberg is chief physician at the...

Interesting article about this great duo :-) Exercise in Myositis, Origins fr...

Administrator•8 years ago

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New to the site

Hello I'm new here I have DM. I got it 10 years ago.I was working in a nursing home and passing medication and I would put the styacope around my nice and then...

Hello I'm new here I have DM. I got it 10 years ago.I was working in a nursing h...

•8 years ago

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Information, links & Myositis specialist clinics

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Do you suffer pain with your Myositis?

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Myositis - General(48)

Dermatomyositis(24)

Myositis Fundraising(14)

Polymyositis(11)

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