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Suspected Bechets - affecting me mentally & physically
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
TigerLily42
in
Behçet's UK
1 month ago
Cold sores
Hi looking for ABIT advice, my partner was diagnosed with CLL in 2016 he finished O&V treatment 2022 and all has been well with now 6 monthly review with his consultant. he's recently started to suffer from recurring coldsores and some joint pain that don't seem to be healing, he has no other previous
Hi looking for ABIT advice, my partner was diagnosed with CLL in 2016 he finished O&V treatment 2022 and all has been well with now 6 monthly review with his consultant. he's recently started to suffer from recurring coldsores and some joint pain that don't seem to be healing, he has no other previous
Hd07
in
CLL Support
1 month ago
Bitter Taste In Mouth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
LizMitchell
in
PMRGCAuk
2 months ago
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Thrush from Trimbow worse at the end of inhaler
I’ve been using Trimbow for about 6 months now and it’s changed my life, however, I get horrible dry mouth and oral thrush side effects. Maybe I’m imagining it, but I’ve noticed that it gets much worse towards the end of the inhaler and clears up a bit once I start a new one.? Anyone else? I always
I’ve been using Trimbow for about 6 months now and it’s changed my life, however, I get horrible dry mouth and oral thrush side effects. Maybe I’m imagining it, but I’ve noticed that it gets much worse towards the end of the inhaler and clears up a bit once I start a new one.? Anyone else? I always
GaspingGardener
in
Lung Conditions Community Forum
2 months ago
Thank you,
Just to say thank you to everyone who replied to me about Covid and sore mouth, still have this horrible sore gums and dry mouth hopeing e it will get better soon , Wishing you all a happy Christmas and what we all need a healthy new year Kate x
Just to say thank you to everyone who replied to me about Covid and sore mouth, still have this horrible sore gums and dry mouth hopeing e it will get better soon , Wishing you all a happy Christmas and what we all need a healthy new year Kate x
Kate2628
in
NRAS
3 months ago
German tara
HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to
HI EVERYONE went docter or could be inhalers s bout dry mouth told her it's like sandpaper my tongue abit sore doesn't stop me eating but my taste not good docter says there's nothing I can give you only thing we have is for peaple wh on end life care so was waste off time just have to
Germantara
in
Lung Conditions Community Forum
3 months ago
sore gums anyone?
Good morning everyone just a quick query, each time I reduce my T4 I find I get sore gums and sometimes ulcers in my mouth. Happened about 4 or 5 times. Have any of you had this problem? Also knocks my insomnia into another gear.
Good morning everyone just a quick query, each time I reduce my T4 I find I get sore gums and sometimes ulcers in my mouth. Happened about 4 or 5 times. Have any of you had this problem? Also knocks my insomnia into another gear.
Bollieforme
in
Thyroid UK
4 months ago
methotrexate
I have been on methotrexate for years first tablets then injections. Last year it was increased and I started getting severe mouth ulcers so it was reduced again but I am still getting mouth and tongue ulcers that start two days after injection last about 3/4 days just in time for the next injection
I have been on methotrexate for years first tablets then injections. Last year it was increased and I started getting severe mouth ulcers so it was reduced again but I am still getting mouth and tongue ulcers that start two days after injection last about 3/4 days just in time for the next injection
Grandchildren8
in
NRAS
4 months ago
behcets and fatigue
Hi everyone! Do you find that when you have several mouth ulcers in your mouth you get more fatigued/brain fog? Not sure if the ulcers are causing the fatigue, I feel they could - or it could be an overall flare up where ulcers + fatigue just so happen to be happening at the same time
Hi everyone! Do you find that when you have several mouth ulcers in your mouth you get more fatigued/brain fog? Not sure if the ulcers are causing the fatigue, I feel they could - or it could be an overall flare up where ulcers + fatigue just so happen to be happening at the same time
jaquarius
in
Behçet's UK
4 months ago
Canker Sores/Mouth ulcer
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Tramezzini
in
PBC Foundation
5 months ago
Mouth ulcers with GCA and prednisone?
Has anyone experienced problems with persistent mouth ulcers? These have become more frequent as I have reduced my prednisone dosage. I am now down to 6.5 mg prednisone (I have GCA) and have about five ulcers in my mouth right now which is quite painful. I am wondering if anyone has any advice as to
Has anyone experienced problems with persistent mouth ulcers? These have become more frequent as I have reduced my prednisone dosage. I am now down to 6.5 mg prednisone (I have GCA) and have about five ulcers in my mouth right now which is quite painful. I am wondering if anyone has any advice as to
Charkha
in
PMRGCAuk
7 months ago
sjogrens
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Samanthaann
in
PBC Foundation
7 months ago
DRY MOUTH/ HORRIBLE TASTE
Hi Everyone , December I had puffy red right cheek , sore to touch , no cold, no earache, but my face ached. Had my eyes checked all ok, saw GP , gave me some nose drops, didnt work , he said thought it might be my sinuses , i did suffer with sinus issues 60 years ago , but in my memory seemed
Hi Everyone , December I had puffy red right cheek , sore to touch , no cold, no earache, but my face ached. Had my eyes checked all ok, saw GP , gave me some nose drops, didnt work , he said thought it might be my sinuses , i did suffer with sinus issues 60 years ago , but in my memory seemed
TGSHJ71
in
LUPUS UK
8 months ago
Foot/mouth hand or something else??
Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes are similar to feet. But my thumbs are going white too and thin skin. Anyone know what's happening. I'm very stressed. Doctors are not helping
Does anyone know what this is. It started with red burning spots then turned into patches. Then I had chicken like pox all over my body and face. Hands rashes are similar to feet. But my thumbs are going white too and thin skin. Anyone know what's happening. I'm very stressed. Doctors are not helping
Shine54
in
LUPUS UK
4 months ago
horrible taste in mouth, nothing tastes good
After looking in my mouth, my GP said, I think you have thrush. A dentist had said an X-ray showed no tooth infection was causing the bad taste. GP prescribed nystatin. After taking it the bad taste is worse than ever, especially in the morning, and the area behind my top and bottom teeth feels
After looking in my mouth, my GP said, I think you have thrush. A dentist had said an X-ray showed no tooth infection was causing the bad taste. GP prescribed nystatin. After taking it the bad taste is worse than ever, especially in the morning, and the area behind my top and bottom teeth feels
Mstiles
in
PMRGCAuk
9 months ago
What is your experience with oral thrush and nystatin?
I’m experiencing a bad taste in my mouth that’s affecting my taste of food and sometimes feeling like there’s a lump in my throat when swallowing. . My GP looked in my mouth and said “you may have thrush”. She prescribed Nystatin. I don’t have the white plaques that bleed, etc., just
I’m experiencing a bad taste in my mouth that’s affecting my taste of food and sometimes feeling like there’s a lump in my throat when swallowing. . My GP looked in my mouth and said “you may have thrush”. She prescribed Nystatin. I don’t have the white plaques that bleed, etc., just
Mstiles
in
PMRGCAuk
10 months ago
mouth ulcers
anyone have mouth ulcers on tongue whilst taking hydroxycarbamide ? I have ET jak 2 Painful mouth ulcers on my tongue. Any suggestions how to treat ? Thanks Hazel
anyone have mouth ulcers on tongue whilst taking hydroxycarbamide ? I have ET jak 2 Painful mouth ulcers on my tongue. Any suggestions how to treat ? Thanks Hazel
HazeBlue
in
MPN Voice
10 months ago
Mouth ulcers
Hello does anyone else or us there any link between hashimotos and mouth ulcers and cold sores. I suffer terribly from both. Particularly if I've drank too much alcohol or run down or have pmt. My mouth ulcers can be terrible and struggle to eat/drink. It normally happens after damaging my mouth
Hello does anyone else or us there any link between hashimotos and mouth ulcers and cold sores. I suffer terribly from both. Particularly if I've drank too much alcohol or run down or have pmt. My mouth ulcers can be terrible and struggle to eat/drink. It normally happens after damaging my mouth
Billy2023
in
Thyroid UK
10 months ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
6 days ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
10 days ago
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