Sore mouth & tongue : My mouth keeps feeling sore... - Thyroid UK

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Sore mouth & tongue

Suei profile image
Suei
22 Replies

My mouth keeps feeling sore, this affects my tongue, roof of mouth & gums, also feels sensitive & hot. I have several health issues including hypothyroidism, ME/CFS, fibromyalgia & hypertension so not sure if any of these could be the cause?

Advice appreciated 🤞

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Suei profile image
Suei
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22 Replies
Rainbow-Lover profile image
Rainbow-Lover

In my case, this is a classic symptom of my B12/Folate being low.

Have you had vitamins tested?

Suei profile image
Suei in reply to Rainbow-Lover

Thank you, I don’t know but will look into it 🥰

Rainbow-Lover profile image
Rainbow-Lover in reply to Suei

If your GP won’t test, you can get home tests via Medichecks or Blue Horizon

Anthea55 profile image
Anthea55

It took me years to discover that my swollen mouth was due to an intolerance to potato.

Suei profile image
Suei in reply to Anthea55

Oh wow! I’ve been wondering if certain foods irritate my mouth.

Lolitina profile image
Lolitina

hi, from my experience it's some kind of food intolerance I advise you ask for a food intolerance test

buddy99 profile image
buddy99

How is your thyroid doing? Do you have any blood test results for TSH, FT4 and FT3? Everything you mention can be caused or misdiagnosed because of low thyroid.

Aside from that sore mouth can have a lot of causes. I, for example, get it from citrus. But I also was much more sensitive when my thyroid hormones were not optimal.

Suei profile image
Suei in reply to buddy99

Thank you, not sure if I’m due a blood test?

humanbean profile image
humanbean

I still don't know the exact cause of my sore mouth, sore tongue, and repeated mouth ulcers although my years and years of smoking will have had something to do with it. (I stopped 15 years ago.) Having said that, I used to get masses of mouth ulcers as a child, years before I ever started smoking, so whatever the cause it is more complicated than just my smoking.

The things I've found that help slightly reduce my problems are :

1) Avoid toothpaste containing sodium lauryl sulfate.

2) Experiment with using toothpaste with or without fluoride. I avoid it, but it might make no difference to some people.

3) Use an electric toothbrush but don't press too hard.

4) If you can floss, do so. If it causes your gums to bleed I've found vitamin C helps with that a lot.

4) Keep Vitamin B12 and folate at optimal levels. For me personally, I keep my B12 (both serum B12 and active B12) at the top of the range. If I allow my levels to drop my mouth problems get worse for a while, then adding in B12 and folate supplements might make it worse still for a couple of weeks. Then as my levels rise the soreness and ulcers improve.

I supplement B12 with methylcobalamin and folate with methylfolate. They are both easy to find online.

5) I use this mouthwash - they are both the same, just different flavours. I prefer the original flavour :

superdrug.com/mouth-ulcer-t...

superdrug.com/mouth-ulcer-t...

6) I also use this as the last step in my toothbrushing routine - Bee Health Propolis 50 ml :

dolphinfitness.co.uk/en/bee...

I've tried all sorts of things promising to cut the pain in my mouth, gums, roof of my mouth, and tongue. The Propolis was one of my desperation experiments, but to my surprise it really does help me a lot. It reduces the pain in my ulcers and they seem to heal up faster than they do without it.

Christabel profile image
Christabel in reply to humanbean

I remember a long time ago using propolis lozenges that had a toffee-like consistency for throat problems. They don't seem to be available now.

I looked at the spray you recommended, and unfortunately it contains mint and menthol, neither of which I can tolerate :-( It sounds very good otherwise.

humanbean profile image
humanbean in reply to Christabel

This site has lots of Bee Health Propolis products in various forms. Amazon has some as well.

dolphinfitness.co.uk/en/bee...

You might find something that you can tolerate.

For example :

dolphinfitness.co.uk/en/bee...

Ingredients : Standardised purified propolis resin, Bulking agent (microcrystalline cellulose), disintegrant (croscarmellose sodium), anti-caking agents (magnesium stearate, silicon dioxide)

Suei profile image
Suei in reply to humanbean

Thank you, sounds like you’ve had a rough time 🥹

Thank you so much for your advice x

fairgo45 profile image
fairgo45

I had these symptoms about 3 years ago I thought it was a dental problem but they found nothing wrong I went to the doctor again nothing obviously wrong it was hard to explain to anyone. I kept trying to find the answer and eventually found a woman with the same problem and it's called "Burning mouth syndrome "

Back to the doctor who was willing to prescribe an antiviral called Valclovir 1000mg twice a day for as long as it took in my case it was gone after a few weeks so there's your cure

ThyroidDeb profile image
ThyroidDeb in reply to fairgo45

That's interesting, I have burning mouth but mine seems caused by anxiety or stress. I take Valtrex for cold sores, which seems also affected with stress but I take only as needed, start as soon as I feel something. My doctor never suggested it for burning mouth. She did put me on buspirone which seems to help a lot. Thanks, I will ask about this.

fairgo45 profile image
fairgo45 in reply to ThyroidDeb

Yes try it you have nothing to lose but the burning mouth which is a really strange but curable complaint hope your doctor's willing to put you on it for a few months to try it as it will also get rid of your cold sores as well

Suei profile image
Suei in reply to fairgo45

Thank you, I’ve heard the term burning mouth but wasn’t sure if that’s what I had, it seemed to ease for a while then flare again. Maybe it is stress related? X

Anthea55 profile image
Anthea55

I found out about food intolerances many years ago. My daughter had tested positive for milk, so as my joints and hands were beginning to seize up I thought I'd try it.

My results in order of effect were Oats (recent porridge for breakfast), Wheat, Alcohol (I could have told them that),........ Chocolate, etc. Not tested for potato at that stage.

Gave up the oats and wheat and within 2 or 3 months my joints were much improved. To my delight my indigestion which I'd had for years had cleared up. Bonus!

I can take chocolate occasionally. Recent winter thought I'd have hot chocolate before bed. After a couple of weeks I wasn't feeling too good - then remembered the chocolate on the list, so now have hot milk without the chocolate and feel better.

I really think I'd be in a wheelchair by now if I hadn't found out the wheat/oats problem. I'm not coeliac but food without wheat and oats is in the 'free from' section. Unfortunately too many products have potato / potato starch in them so I have to read labels carefully.

Suei profile image
Suei in reply to Anthea55

Thank you for your input x

ThyroidDeb profile image
ThyroidDeb

I get what is called burning mouth syndrome. Spices affect my mouth during a flare. I get sores, my throat, tongue, gums, actually the whole mouth burns and is sensitive to foods. This is caused all from anxiety/ stress for me. Once I started Buspirone, after a couple month I have it less unless something stressful happens but it goes away faster. Good luck.

Suei profile image
Suei in reply to ThyroidDeb

Thank you, this might be why mine is flaring? X

soppysokes profile image
soppysokes

sorry cant help you since I have the same thing but will follow the answers youve generated and give some a try! does it make your breath feel hot as well?

ThyroidDeb profile image
ThyroidDeb in reply to soppysokes

Haven't noticed that but will pay closer attention. I can feel it down the top of my esophagus too.

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