mouth sores: Diagnosed barely 2 months ago and... - CLL Support

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mouth sores

Reetywell71 profile image
10 Replies

Diagnosed barely 2 months ago and on brukinsa for a month now. Tolerated fairly well so far except for mouth sores. Used magic mouthwash for10 days and cleared things up pretty well I stopped it but still getting lumpy things in mouth. Also dull ache in back molar. Anyone having trouble with mouth sores on this drug?

Reetywell 71

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Reetywell71
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AussieNeil profile image
AussieNeilPartnerAdministrator

Mouth sores are a reasonably common occurrence with treatment, so I'm surprised to find we only have 141 posts on this topic

healthunlocked.com/cllsuppo...

I hope you find something of use in these posts.

Trying to narrow down the search to include brukinsa+zanubrutinib didn't seem to find anything specific after a quick look either, sorry

healthunlocked.com/cllsuppo...

Neil

Katie-LMHC-Artist profile image
Katie-LMHC-Artist

When I was on Acalabrutinib I was told that rinsing with baking soda would help with mouth sores. I am now on Zanabrutinib and have not had that issue. Hope this helps! Take care!🦋

Reetywell71 profile image
Reetywell71 in reply toKatie-LMHC-Artist

Thank you. Trying oragel for mouth sores.

Poodle2 profile image
Poodle2

I was on a different treatment but had nasty mouth sores. It helped me to up my oral hygiene in general. I brushed my teeth after each meal. I either used salt and water or a normal mouth wash afterwards. Annoying but it helped.

Reetywell71 profile image
Reetywell71

Thank you! Working on it😘

Rosegardener54 profile image
Rosegardener54

Mary Ruth's liquid vitamins got rid of mine. My oncologist told me to take B vitamins for mouth sores. It works!

Reetywell71 profile image
Reetywell71 in reply toRosegardener54

👍 thanks

Bobby9toes profile image
Bobby9toes

I am taking Acalabrutinib and have also had mouth sores, they went away on their own.

Big_Dee profile image
Big_Dee

Hello Reetywell71

When I first started CLL treatment, infusion nurses suggested one cup of warm water with teaspoon of mixture 2/3 Baking Soda with 1/3 Table Salt twice a day. I have been doing this for years and because it keeps the bacteria low, mouth sores last 2-3 days and gone.

Reetywell71 profile image
Reetywell71 in reply toBig_Dee

Thank you

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