anyone from ireland: i currently... - ITP Support Assoc...

ITP Support Association

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anyone from ireland

trinag profile image
14 Replies

i currently attending my nearest hospital but i am at this point very fed up with their communication methods or lack of. i was wonderimg if anyone from ireland has advice for the best place to be attending be it public or private thanks

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trinag profile image
trinag
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14 Replies
owenm profile image
owenm

I'm in N.ire,

attending Antrim Area Hospital.

Although Belfast City Hospital is listed as the ITP centre of excellence in the area. (not sure if this is a proposed or a current thing)

Communication is a problem within the Nhs system here, I have no joint care between GP and Haematology consultant, and would often receive appointment letters after my appointment.

I have taken a more proactive role in my own care and treatment, this irons out all the ripples in things.

Hope you get sorted,

Owen

iccle profile image
iccle

City hosp in Belfast has 2 Itp specialists, for adult itp

beibhinn profile image
beibhinn

I am from Kilkenny. My daughter was diagnosed with Acute ITP.

trinag profile image
trinag in reply to beibhinn

hi beibhinn do you go up to dublin or attend your local hospital. what sort of experience had you to date in dealing with consultants and hospitals

beibhinn profile image
beibhinn

Local hospital. Drs & nurses were great, They consulted with a dr in Crumlin Children's Hospital.

trinag profile image
trinag in reply to beibhinn

thanks a million i hope your daughter is keeping well

Elaineod profile image
Elaineod

I'm in cork city and attend CUH were r u from

trinag profile image
trinag in reply to Elaineod

im attending drogheda but dont have great faith. consultant appears to be good but link to rest of hospital is pretty poor nobody notified anyone that my platelets were 4. only i rang three times to get results i wouldnt have got treatment.

lilybird profile image
lilybird in reply to Elaineod

Cork here too. Daughter aged 22 and recently diagnosed.

Elaineod profile image
Elaineod

Thats a bit sad..isnt it .....Dont they know how dangerous it is!!!!!! How is your own home doctor..If i give blood for a test they send bk or ring him with results..asap..if im low!!

catherineb profile image
catherineb

hi we have attended the RVH Belfast with our little boy for the three years he was diagnosed. his platelet count sat at 3 from diagnoses increasing at times during treatments but dropping back just as quick, we where treated by Dr McCartney childrens hospital, we are still attending even though he has a splenectomy in Feb after we had exhausted all avenues regarding meds. all i can say is dont be afraid to question everything if your not sure.. good luck i hope you get the care you deserve. xx

Fifof profile image
Fifof

Hi our 5 yr old son has had ITP for over two years now. We attend Our Lady's Hospital in Crumlin.. dr Nolan is the Specialist there.. I would recommend you to attend a specialist centre.

RebeccaM profile image
RebeccaM

hello, I am from ROI and have ITP my local hospital in Drogheda has a very good hematology department and they have been doing great things for me. They are very caring and friendly they are also great at their job. I have had ITP from the age of 8months to 9 years of age. Then I went into remission until 3 weeks ago (im 19 now :( and its back). My platelet count went down to 1 and they were very quick in treating me and getting me better. ^_^ hope everything works out for you xx

ITPmum profile image
ITPmum

Hi , I am from Dublin 13 yo daughter attending Temple Street developed ITP after getting the Gardasil innoculation. She has had IGIV , steriods , but so far only worked temporarily. Drs in Temple Street very good.

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