anyone from ireland

[trinag]

i currently attending my nearest hospital but i am at this point very fed up with their communication methods or lack of. i was wonderimg if anyone from ireland has advice for the best place to be attending be it public or private thanks

[owenm]

I'm in N.ire,

attending Antrim Area Hospital.

Although Belfast City Hospital is listed as the ITP centre of excellence in the area. (not sure if this is a proposed or a current thing)

Communication is a problem within the Nhs system here, I have no joint care between GP and Haematology consultant, and would often receive appointment letters after my appointment.

I have taken a more proactive role in my own care and treatment, this irons out all the ripples in things.

Hope you get sorted,

Owen

[iccle]

City hosp in Belfast has 2 Itp specialists, for adult itp

[beibhinn]

I am from Kilkenny. My daughter was diagnosed with Acute ITP.

[trinag in reply to beibhinn]

hi beibhinn do you go up to dublin or attend your local hospital. what sort of experience had you to date in dealing with consultants and hospitals

[beibhinn]

Local hospital. Drs & nurses were great, They consulted with a dr in Crumlin Children's Hospital.

[trinag in reply to beibhinn]

thanks a million i hope your daughter is keeping well

[Elaineod]

I'm in cork city and attend CUH were r u from

[trinag in reply to Elaineod]

im attending drogheda but dont have great faith. consultant appears to be good but link to rest of hospital is pretty poor nobody notified anyone that my platelets were 4. only i rang three times to get results i wouldnt have got treatment.

[lilybird in reply to Elaineod]

Cork here too. Daughter aged 22 and recently diagnosed.

[Elaineod]

Thats a bit sad..isnt it .....Dont they know how dangerous it is!!!!!! How is your own home doctor..If i give blood for a test they send bk or ring him with results..asap..if im low!!

[catherineb]

hi we have attended the RVH Belfast with our little boy for the three years he was diagnosed. his platelet count sat at 3 from diagnoses increasing at times during treatments but dropping back just as quick, we where treated by Dr McCartney childrens hospital, we are still attending even though he has a splenectomy in Feb after we had exhausted all avenues regarding meds. all i can say is dont be afraid to question everything if your not sure.. good luck i hope you get the care you deserve. xx

[Fifof]

Hi our 5 yr old son has had ITP for over two years now. We attend Our Lady's Hospital in Crumlin.. dr Nolan is the Specialist there.. I would recommend you to attend a specialist centre.

[RebeccaM]

hello, I am from ROI and have ITP my local hospital in Drogheda has a very good hematology department and they have been doing great things for me. They are very caring and friendly they are also great at their job. I have had ITP from the age of 8months to 9 years of age. Then I went into remission until 3 weeks ago (im 19 now and its back). My platelet count went down to 1 and they were very quick in treating me and getting me better. ^_^ hope everything works out for you xx

[ITPmum]

Hi , I am from Dublin 13 yo daughter attending Temple Street developed ITP after getting the Gardasil innoculation. She has had IGIV , steriods , but so far only worked temporarily. Drs in Temple Street very good.